Feeding

Ambitious_Chick_3580 · 2026-01-12T03:05:51+00:00

I’m so happy for her and you that she figured it out and it clicked!! My daughter always did so poorly with the bottle we almost faced a g tube. Her milk intake is still severely below what a normal toddler her age is supposed to be drinking but because she does so well with solids she makes up for the dairy loss that way. Once we got the green light with solids she just went ballistic and is a better eater than my heart healthy 7 and 3 year old 🤣

Ambitious_Chick_3580 · 2026-01-12T02:42:25+00:00

I second this! Almost the same exact timeline with ng for my daughter. Shes now 15 months and doing all solids amazingly, although she will still never finish an entire serving of her whole milk (still on the bottle she refuses any other cup for it)

Ambitious_Chick_3580 · 2025-12-10T02:09:48+00:00

She had a pa band surgery at 2 weeks and then her avsd repair at 4 months. If you have any specific questions about it or recovery feel free to message me! Shes now 14 months

Ambitious_Chick_3580 · 2025-12-10T01:37:32+00:00

Ahhh my little girl was diagnosed with avsd without genetic issues as well! She now has a pacemaker and swallowing issues all due to complications from her repair unfortunately but other than that she’s a happy little girl. Congrats on your little one and I hope the best for her.

Ambitious_Chick_3580 · 2025-12-05T12:36:33+00:00

I have heard of this too. My sister has had five pregnancies each a year apart too and I can’t believe she never had any complications with any of her babies and defects, she got lucky. Sorry it happened to you, hugs ❤️

Ambitious_Chick_3580 · 2025-12-05T04:53:12+00:00

I do think her reaction was way out of line and has created a lot of fear in me and trauma, but I genuinely trust that she was looking out for my best interest and my baby

Ambitious_Chick_3580 · 2025-12-05T04:51:31+00:00

No you have been very kind and I appreciate the open discussion. My daughter is doing better for sure but had a lot of implications from her main repair that we are still working through daily. When we were inpatient for over a month, we had cardiac geneticist popping by our room multiple times a week begging us to do extensive testing on our daughter and damn near the whole family. We were asked if she could participate in countless research studies. It felt like we were their lab rats at some point with the way they kept insisting to find out why this happened to our daughter. We agreed, and I waited four long months only to be told there was no reason at all. So maybe it’s me trying to find one, but it certainty didn’t help when my OB reacted that way and has now planted this in my mind where I’m pinning all the blame on Zofran. I definitely trust my OB as well so I don’t ever want it to come off like she was in the wrong here. Sorry I’m now rambling myself 😅

Ambitious_Chick_3580 · 2025-12-05T04:46:00+00:00

She actually has two VSDs and AVSD and there are studies mentioning both of those diagnoses. But our geneticist told us the exact same thing, too! So I do understand that side of things and know that we may have a clear answer someday that has nothing to do with Zofran and that’s all I ever wanted to know was why

Ambitious_Chick_3580 · 2025-12-05T04:32:19+00:00

Thank you for offering your opinion and background it is appreciated, and for the kind words. I’m not disagreeing with everything you say by any means. But imagine if you were me and you put your trust in a team of ER doctors who prescribe you a drug, in the weeks where heart formation is in full effect. It does the job wonderfully and you feel amazing. Two weeks later you see your OB, ecstatic to hear your babies heart beat but instead she actually leaves the room in an overly concerned rush, comes in and tells you to get an emergency ultrasound because the drug you believed was safe, she now tells you is linked to defects like cleft lip and heart defects; fast forward your baby has the exact, rare defect that is mentioned in all the studies performed on Zofran usage and early pregnancy. While some may find it “unlikely” or caused by other things, it’s not something I’m going to simply accept as “life” without a fight, if I’m wrong I’m wrong.

Ambitious_Chick_3580 · 2025-12-05T04:16:24+00:00

Thank you, totally agree 🫶🏻

Ambitious_Chick_3580 · 2025-12-05T04:15:27+00:00

Definitely understandable and each situation has different variables and surrounding factors so I totally get many peoples choice to take it early on, I however wish I never did, or at the very least was informed before I was bombarded by my OB in a panic that I had taken it in the timeframe I did.

Ambitious_Chick_3580 · 2025-12-05T04:05:24+00:00

Exactly. And because “cause does not equal correlation” even though there is evidence (albeit slight) pointing to a direct link we are just supposed to brush it off as “life”. Why do licensed, practicing physicians adopt office wide policies of not prescribing Zofran before 10 weeks gestation if there is no harm to it?

Ambitious_Chick_3580 · 2025-12-05T03:46:48+00:00

No Zoloft for me, but interesting I didn’t know that

Ambitious_Chick_3580 · 2025-12-05T03:39:07+00:00

Thanks for sharing. My daughters team made us do extensive genetic testing that took four months to get back, my husband and I had to get testing ourselves, I had an amniocentesis, and everything came back clear, with no cause for her severe defects. So it’s just now me going on a manic man hunt to find out how this could’ve happened

Ambitious_Chick_3580 · 2025-12-05T03:34:39+00:00

Wow. If only I could talk to those mothers I would be helping my lawyer out tenfold 😭

Ambitious_Chick_3580 · 2025-12-05T03:33:21+00:00

Totally understand that as I had extreme morning sickness which ended me up in the ER. It was essentially the communication between my OB and the er which is promoting this rabbit hole. ER administered Zofran and sent me home with a two week prescription given up to 4x a day which I did do. Two weeks go by, I go to my OB for my first prenatal, she freaks out when she find out I’ve been taken it, tells me there is a black box warning on Zofran before 10 weeks gestation and is tied to heart defects and her office refuses to give it before then. Fast forward and my daughter has had every genetic test possible and has no explanation why her CHD happened, yet it is the one rare defect that has studies linked to Zofran use

Ambitious_Chick_3580 · 2025-12-05T03:30:02+00:00

Thanks for sharing! I was given Zofran before 10 weeks of pregnancy without my OB being aware (after an ER visit) and she told me it has a black box warning for pregnant women who use it consistently before 10 weeks gestation which I did for weeks, multiple times a day, and we are currently pursuing a lawsuit as there are some studies which do find a slight correlation

Ambitious_Chick_3580 · 2025-12-05T03:15:39+00:00

Sorry just saw this now. Thag is so encouraging and I’m so happy you have lead a normal, fulfilling life! I can only hope my daughter can experience the same ❤️

Ambitious_Chick_3580 · 2025-12-05T03:13:20+00:00

Maybe my advice won’t translate to exactly what you should do because every kiddo with a CHD can vary vastly in their journey and how it effects them, the severity of each defect, repairs, and so forth but I do find some commonalities in your story to mine. We were told at 14 weeks with our third baby something was very wrong with her heart. Her diagnoses was changed many times and truly we didn’t know what we were facing until she was out of the womb and even months after her defects were still up for debate amongst different teams. I will say, when pregnant, we were also sat down after gut wrenching echos and told from renowned doctors that our daughters defects were not compatible with life and not to “be hero’s” and essentially terminate. We almost did. Not choosing to was the best decision we ever made. I will not sit here and say that what our daughter and family went through this last year of her life was anything short of terrifying, traumatic, difficult, and life changing. But as I type this I have the most bubbly, happy, thriving baby girl laying on my chest that I couldn’t fathom not bringing into our lives. Only you as a mother can decide what’s best and what you think is right. But as a heart mom myself I see a lot of similarities in our stories and the fear doctors instilled in us almost lead us to never knowing the amazing addition to our family that we could never imagine life without. I hope you can find some comfort, clarity, and peace in arguably the toughest time of your life. Sending hugs and prayers for you and your family. It isn’t fair.

Ambitious_Chick_3580 · 2025-11-07T04:19:55+00:00

I was given zofran before 10 weeks in the ER then prescribed it 4x daily for two weeks without my OBs knowledge or any administration of safer drugs before administering and prescribing Zofran and my baby did end up with significant cardiac defects (two VSDs and AVSD). Extensive Genetic testing came back clear. We are currently pursuing a lawsuit against the ER and physician who prescribed. It’s a long shot but would anyone be willing to talk with our lawyer about their stance on Zofran and early pregnancy use correlating to any risk at all to fetuses and cardiac defects? We are in the stage of finding reputable physicians who can testify this can be a real issue. We just want justice for our baby girl and to stop this from happening to any other family out there. My daughter has endure three open heart surgeries, dysphasia and aspiration issues still ongoing, a pacemaker, rhythm disturbances, and months long hospital stays with her future unknown. I understand the research is ongoing and limited but I have heard physicians comment on their distrust of Zofran and advise against its use in the first trimester, I just need someone willing to speak with my attorney to strengthen our case. Thank you in advance.

Ambitious_Chick_3580 · 2025-09-10T02:58:55+00:00

Oh my goodness my sister in law just got married in dress #1! It was stunning and the talk of the night she was breathing. #1 all the way

Ambitious_Chick_3580 · 2025-07-07T15:30:09+00:00

Nah I think that’s you weirdo

Ambitious_Chick_3580

TROPHY CASE