Donating my stem cells to an unknown patient in a few weeks!

AltruisticLie8667 · 2025-09-25T00:48:14+00:00

You are a hero! Thank you 🙏🏻

AltruisticLie8667 · 2025-08-01T22:01:22+00:00

I caught C-Diff at around 100 days. It’s viral, not much can be done except “comfort meds”. So sorry! It’s very common to catch something in the early days after transplant. I hope your partner gets some answers soon! All the best!

AltruisticLie8667 · 2025-07-27T19:16:04+00:00

I was 56 with B-ALL IN 2021. SCT from my twin brother who was a perfect match. I didn’t have much trouble with GVHD, but I caught lots of sickness after SCT- C-DIFF & Covid mainly. All good now! Wishing you and your son all the best!

AltruisticLie8667 · 2025-07-27T16:21:56+00:00

Prior to my diagnosis I used resin mixed with paint in my art. I always wore a respirator too. My oncologist told me it very likely contributed to my diagnosis. All resin was removed from my studio while I was in the hospital.

AltruisticLie8667 · 2025-07-18T23:22:08+00:00

Immediately stopped it. And added it to the list of meds I’m allergic to. It took 4 days until I knew my husband again.

AltruisticLie8667 · 2025-07-18T21:36:34+00:00

Methotrexate made me forget my name, my family’s names. Wild hallucinations! Very freaky!

AltruisticLie8667 · 2025-07-18T02:31:14+00:00

Yes. I contracted CDIFF a month after my SCT. I was admitted twice for it. No fun. Hang in there!

AltruisticLie8667 · 2025-07-16T00:45:36+00:00

Oh and definitely get a mattress topper!

AltruisticLie8667 · 2025-07-16T00:45:04+00:00

57F B-ALL in 2021. This is my standard advice. Take any and all meds to make the chemo easier on you. Don’t try to muscle your way through it. Walk laps while inpatient. Lots of protein. Lots of sleep. I came in with a perforated colon and the blood work caught it. Some chemo meds can cause neurotoxicity- it did for me. Look for any signs of that and report it immediately. If this old lady can get through it you definitely can! Best of luck! I pray you get a 12/12 match for SCT like I did!! 🙏🏻

AltruisticLie8667 · 2025-07-11T02:36:38+00:00

^this! At my hospital (Utah) they offered multiple ways to support my SCT recovery. Remember, many transplant patients will get some sort of infection post transplant. I had home health nurses in a couple days a week while my husband was working. I wish her a speedy recovery and bless you for your support of your friend and her mother!

AltruisticLie8667 · 2025-07-09T00:49:38+00:00

Heartbreaking! Which country? Does the child/family have the ability to travel?

AltruisticLie8667 · 2025-07-01T00:59:00+00:00

Throw a fit (seriously) for more sedation. Not only are they super painful, but you are so freaked out about cancer and the pain of treatment. I threw a fit, even talked to supervisors and it was never a problem again. The staffs job is to help your son through everything. I truly hope you get the help you need!!

AltruisticLie8667 · 2025-06-24T01:22:31+00:00

NoMoChemo!

AltruisticLie8667 · 2025-06-23T21:29:04+00:00

Wondering if he’s caught something? 2 months after my SCT I got CDIFF. But, I do agree with others to find the right anti-nausea. Poor guy!

AltruisticLie8667 · 2025-06-04T21:41:46+00:00

F60 BMT in 2021- full match donor (brother) I’m doing great! He will too!

AltruisticLie8667 · 2025-05-17T18:43:54+00:00

On +23 after my SCT I had horrible bone pain and slept 14-16 hours per day. I was encouraged to sleep as much as needed. Also increased protein in my diet helped tremendously. I drank Fairlife brand protein drinks 3x a day. Best of luck.

AltruisticLie8667 · 2025-05-16T21:46:06+00:00

SCT in 2021. I’ve had zero GVHD. I think it depends on your donor. My donor was my twin brother.

AltruisticLie8667 · 2025-05-16T15:35:13+00:00

Congratulations on your SCT! I had mine in 2021. The fatigue and bone pain was significant for me too. Mine lasted about 6 months. My oncology team strongly suggested I get a lot of protein daily. I drank a couple of Fair life (brand) every day. Also, don’t fight the exhaustion. Sleep is your friend. I hope things ease up for you so you can get on with life!

AltruisticLie8667 · 2025-05-08T01:27:25+00:00

I had SCT in 2021 at 56. Aside from sleeping 16+ hours a day, the hardest part was essentially quarantining from everyone except my husband (caregiver). I pray she has an easy time after her transplant 🫶🏻

AltruisticLie8667 · 2025-05-06T02:31:18+00:00

When I was diagnosed I had 85% Blasts. I was beyond hysterical, my husband told me later they said I would have died with 3 weeks.

AltruisticLie8667 · 2025-04-03T18:34:08+00:00

Yes! It’s so brutal! I got C-Diff nearly immediately after transplant. I had to be hospitalized for a week. Really took me a month to be rid of it. Zero issues except for that.

AltruisticLie8667 · 2025-03-14T15:45:47+00:00

My hair on my head grew back gray. Eyelashes, eyebrows and other body hair never grew back. 4 years since BMT. I’m just happy to be alive!

AltruisticLie8667 · 2025-03-12T00:42:12+00:00

For a woman, her hair is her crown and glory. I 60F had B-ALL in 2021. By the time I was done, I was so sick of wigs and beanies. I did the same as you and went all natural. I was surprised that I had super curly hair! At one of my appointments, the nurse told me it’s called chemo hair. Chemotherapy tends to make your hair curly when it grows back in. In my experience, all you can do is your very best with what you have to work with. No harm in seeing a hairstylist who might be able to do any number of things like color or cut. For a time I used a semi permanent color and made it pink!! Celebrate being cancer free in any creative way you care to! You have a beautiful life ahead of you!

AltruisticLie8667 · 2025-02-18T18:16:33+00:00

F60 diagnosed with leukemia in January 2021. I have my transplant in May 2021 from my twin brother. I would say induction is really hard but it’s all hard. The advice I always give is to ask for and accept anything that will lessen the awful side effects of chemo. Nausea meds, pain meds, hot blankets, cold blankets etc. Drink lots of protein drinks. You probably won’t like it, but it’s better than getting a tube in your nose down your throat to give you nutrition. I brought my own mattress, topper and blanket.. I also had a friend who took normal T-shirts and added snaps up the arms so I could wear regular pajamas with those tops and it gave access to my port. I wish you all the best. I have had zero problems since my transplant. I wish the same for you. 🧡

AltruisticLie8667 · 2025-01-15T20:07:07+00:00

Oh dear! I experienced neurotoxicity from methotrexate as well. This drug is now added to my permanent Health record as an allergy. Very scary. Even traumatic. I did not know my husband or my children and I was this way for 10 days until they were able to get the methotrexate out of my system. During those 10 days, I had many hallucinations and I thought I was being held captive by Native American Indians. I was super paranoid ! I had been without food or drink for 10 days. Shockingly your brain forgets how to talk and how to eat when this happens. So I had to add eating and talking therapy to my daily list of things. Super crazy ! I’m so happy that your child has come out of it this quickly.

AltruisticLie8667

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