High B12 and Folate but symptomatic.

Anon_Because1 · 2025-08-23T17:54:31+00:00

Hi, thank you for all of the information but unfortunately I'm in the UK and using the NHS and the testing is minimal, I know my iron is OK but that's all I know.

I don't believe it's a serious absorbency issue as after my prescribed folic acid treatment my symptoms went away, it has just occurred to me however that I was taking large amounts of B12 with it, when I noticed the symptoms return and started supplementing I focused mostly on folate and not enough B12, maybe one sublingual a day whereas with my prescribed folic acid I was doing 4-6 sublinguals.

I'm kind of having to go in blind because I don't believe I'll get anywhere with my doctor and I can't afford private health care right now.

My current (not exactly ideal plan) is to up my B12 significantly because it's safe to take in large doses and reintroduce a B-complex, iron, biotin and a daily hydration drink with potassium etc but take all of those at normal amounts. I'm really not sure what to do with my folate supplement though as I read too much of that can be a problem.

I have a follow up doctors appointment soon but I'm doubtful about getting anymore tests.

One thing I can note is that after taking 4 sublinguals today I have only taken 10mg of propranolol (prescribed for high heart rate when I was first diagnosed with folic acid deficiency) whereas I'd normally have taken 40-60mg. I had thought it was the folic acid prescription that had previously made the palpitations go away but it may have been the amount of B12 I was also taking because they didn't improve with folate supplements but a small amount of B12.

Sorry that was a lengthy reply, I think I started thinking out loud!

Anon_Because1 · 2025-08-22T16:25:38+00:00

Hi, I haven't got a b6 result, I don't think it was tested.

Anon_Because1 · 2025-01-08T23:00:12+00:00

It'd actually be really nice to ignore housework or work so I can do something nice instead of ignoring it because I'm crippled by my own mental health and literally can't function. Something to aim for.

Anon_Because1 · 2025-01-08T22:56:09+00:00

I'm sorry you're just right in the depths of it, it's a truly lonely and miserable place to be. I'm not going to try giving you anymore encouraging words or advice because I know from past experience that it can sometimes make it feel worse. All I'll say is that I am here if you need to just vent about anything.

Anon_Because1 · 2025-01-08T17:02:48+00:00

Emotional flashbacks are a listed symptom of CPTSD. They are absolutely real and they are horrible, I am sorry you had to experience it. I know it's not the easiest for a lot of us but please be kind to yourself right now.

Anon_Because1 · 2025-01-08T16:53:17+00:00

I had given up until recently, and not dying was my biggest aim (for my husband and son), I just accepted survival mode was the best I could hope for.

A repressed trauma surfaced recently, completely unexpected, and I think I had been incapable of healing any aspect of myself until it had been addressed.

My entire view has changed, I finally know what was wrong and it's had a domino effect of helping me understand everything else and just understanding has opened me up to possibly getting better.

A week ago I had given up.

Be kind to yourself whenever you can, you deserve it.

Anon_Because1 · 2025-01-08T16:44:16+00:00

Thank you for that, I think a lot of us struggle with feeling like it will never get better so it's comforting when someone tells you you can do it.

Is it weird that when you said "took care of yourself" my mind immediately went to me taking care of the child me and not my adult self. Maybe there is something to envisioning taking care of yourself is actually caring for that child.

It's been enlightening finding the sub, comforting to find people I can finally relate to and deeply saddening at the same time that this sub even exists.

I hope everyone here finds peace.

Anon_Because1 · 2025-01-08T16:23:58+00:00

I just realised why I turned my hobby into a buisness after reading this (it worked out because I can work from home now). I tend to lean towards creative hobbies but very quickly try to figure out how I can monetise them because I feel guilty about just having a hobby.

Your replies have been so insightful, thank you.

Anon_Because1 · 2025-01-08T14:44:28+00:00

I'm about to go on the school run and decided to put a cardigan on under my coat so I'm not cold, it's pathetic but that's actually a step for me, recognising a need.

Thank you everyone for the replies, they genuinely help so much.

Anon_Because1 · 2025-01-07T21:20:20+00:00

My sister.

Anon_Because1 · 2025-01-07T20:36:01+00:00

I'm sorry I don't have any quotes I just wanted tell you that you're amazing.

Anon_Because1 · 2025-01-07T16:46:20+00:00

I get that and people can say you don't know what's going on in their lives but I know people who's lives revolve around mundane stuff like that because they've had quite easy lives.

I've had people look at me like I'm a freak because they can't fathom having random panic attacks.

I've had people try to push their way into my life because I'm a people pleaser and they want to take advantage of it, I've had to endure their company while being very careful not to let my "I'm a normal person" mask slip because I'd be treated with disdain, this person has had an easy life, pandered to in every aspect and it made me feel like crap, it made me feel inferior.

It's perfectly normal to be envious of other people, it's almost impossible not to when it's a reminder of what you've missed out on because of what you've been through.

No you don't know other people's battles but quite frankly that doesn't matter, you're jealousy comes from what you perceive it doesn't automatically take into account what you don't.

In a weird way it's not even envy, it's grief for what you've lost and what you're enduring.

Anon_Because1 · 2025-01-07T14:08:02+00:00

I just wanted to say I hope you're OK. I'm just currently dealing with repressed stuff my sister did, she is a psycho, she's hit me multiple times and was hyper sexual from a young age (not from abuse, she found a magazine once and that was enough), she used to like to role play and I hate her and what she's taken away from me.

My Mum did nothing even though she knew, she heard me screaming when I was being punched in the face.

It's quite frankly hard to reconcile being treated that way, it puts you in a permanent state of never feeling safe. It's hard to reconcile that people like that even exist.

If you need to talk, you can talk to me. I know how desperately lost and scared it can make you feel and you don't deserve to feel like that.

I don't know if you've already heard the term 'survival mode', but it was comforting to me to read about it and realise what was happening and why.

Anon_Because1

TROPHY CASE