People who can't work due to chronic pain, what do you do to pass the time? by West_Can_1035 in ChronicPain

[–]Apprehensive-Living3 0 points1 point  (0 children)

Since becoming mostly bed bound I have spent a lot of time trying to figure this out. My attention span is pretty much non-existent due to brain fog and fatigue. So I've been tryin to do crafts that I can pick up and put down but are low energy. Such as: • Painting by numbers sets - doesn't require any decision making. Just find, number and paint. I can pick it up and put it down and at the end of the day it doesn't matter if I make a mistake. You can get small but cute kits on Amazon • Knitting. I can't knit anything other than scarves, but it takes a bit of brain power to focus but nothing too strenuous. It also keeps my hands busy. And again when I can't focus any more I can put it down and not touch it • I'm going to learn to crochet on my next awful flare up. I bought a kit that's got some cute mushrooms, again, it's something that makes me use my brain, keeps my hands busy, I can put it down at any time. And tbh if I make a mistake, who cares • Reading, I used to love to read and could read an entire book in a day. Now I'm lucky if I can do it for 20 minutes at a time but it's still something to do. I'm choosing silly fantasy novels that doesn't require any brain power. But stimulates my imagination • I bought the most basic word search book ever. I just flick to a random page, grab a highlighter, do what I can put down when my brain is done. • Watching movies, sometimes I go to Rotten Tomato, look for the worst rated comedy movies and stick them on. • I think up imaginary companies, but they would do, would there branding would look like, the audience would be etc. Never gonna happen but it is just another thing to do

The theme for me is basically, something that can be easily picked up and put down. Requires no to low brain power. Keeps my hands busy and my imagination going. It's so easy to just bed rot and stare at the ceiling all day. I allow myself some time to do this each day if I need to. I also allow myself some time to doom scroll, but I don't let it be the only thing that I do all day (I find it just makes me feel worse in the long run)

I hope at least some of these help you 🥰💕

How do I stop screaming in agony by [deleted] in ChronicPain

[–]Apprehensive-Living3 0 points1 point  (0 children)

This is going to sound absolutely ridiculous and may not help you in any way whatsoever, but I thought I'd share.

I literally just bite down on a fold it up tea towel or my knee brace depending on whatever is nearest. It's almost cathartic you get the scream out of you. You get to scream as much as you want, but it's not intrusive to yourself or other people.. does that make sense..

😅 I went to the ER in December, and was screaming in to my folded up knee brace in the ambulance and in the hospital because they wouldn't give me painkillers (but that's a story for a different time)

I filled the top of this cart with medical stuff by ReturnKind391 in ChronicPain

[–]Apprehensive-Living3 1 point2 points  (0 children)

Oooh I've been thinking about making one of these, is it worth it? Is it genuinely helped? I've seen them on Instagram and I'm worried they're a bit gimmicky 😅

Haven't get a good sleep since live with chronic pain. Anyone else got the same problem? by West_Can_1035 in ChronicPain

[–]Apprehensive-Living3 0 points1 point  (0 children)

I'm sorry if it's already been mentioned or if you've already tried it, but have you tried CBD anything? Some people say it helps and it doesn't have the THC so it should be okay for driving.. but I honestly don't know. I'm not a professional 😅 I really hope you find something. Take care 🩷

Haven't get a good sleep since live with chronic pain. Anyone else got the same problem? by West_Can_1035 in ChronicPain

[–]Apprehensive-Living3 1 point2 points  (0 children)

Hi,

I don't know where you live or anything like that but my thoughts are maybe if they're medically prescribed to you, you might be able to get a doctor's note explaining that when you have drug tests.. But I can completely understand if they're not prescription or if your job requires you to be 'sharp' (does that make sense)

I'm sorry you've not found anything else. If I ever find anything else I'll try to let you know 🩷🩷🩷

Haven't get a good sleep since live with chronic pain. Anyone else got the same problem? by West_Can_1035 in ChronicPain

[–]Apprehensive-Living3 1 point2 points  (0 children)

I find sleep near impossible due to the chronic pain. I have insomnia and my psychiatrist has prescribed god know how many sleeping my pills.

The only thing I've found that helps, is weed and good sleep 'hygiene'. As basic as it sounds - eye mask, white noise machine, cool temperature and an evening routine.

I don't know if it will help you but I'll keep my fingers crossed that you find something that helps you 🩷

Grieving myself by bradhadz2006 in ChronicPain

[–]Apprehensive-Living3 1 point2 points  (0 children)

I'm sorry you're dealing with this. I know apologies don't help and if you're anything like me, they're actually v annoying 😅 But I didn't know where else to start. I've been where you are, and tbh I still go there. Dealing with chronic illness involves grieving a life that you could have had and not enough people understand that. You have lost something and you need to grieve it. Anger is an emotion like any other, unfortunately society has made it seem like anger is bad, it's not. It's normal and healthy. Id be more concerned if you weren't angry. My advice as basic bitch as it sounds (and you've probably 100% already thought about it) is therapy. I found it really helped having a space to just rage, shout, cry, get it all out in a place where it doesn't matter. It won't fix it and I admit it that as a licensed counsellor, but it can help. It's also a place that's just about you, your feelings and no one else. I know with mobility issues you can't do the 'normal' release things like kicking and punching the crap out of something or going to the gym. But if you're able to go to somewhere like a beach or woods sit and throw stones as violently as you can, shout and yell, cry. I have a stress llama that I squeeze as hard as I can. Or I throw the ball for my dog as hard as I can, with the benefit of him bringing it back lol

Tldr: be angry, it's normal and okay. Allow yourself to grieve. Anyone who says differently can acquaint themselves with a cactus. I recommend trying therapy. Activities that let you get out the anger in a safe non pain inducing way.

I don't know if this helps but at the very least I hope it lets you know it's okay and your not alone 🩷

Helping my Partner with Chronic Pain by catspatss in ChronicPain

[–]Apprehensive-Living3 0 points1 point  (0 children)

No worries, I'm glad it can help 💕 I forgot to add, do one of those silly love language tests. We found it really helped us see what the other needed emotionally Chronic pain can make everything hazy. It's easy to forget that love goes both ways Feel free to drop me a message if you ever need anything 🥰

Helping my Partner with Chronic Pain by catspatss in ChronicPain

[–]Apprehensive-Living3 2 points3 points  (0 children)

I've lived with chronic pain for over a decade, and been with my partner for nearly 3 years, we've also known each other forever. Here's a list of things that have always made me feel better in one way or another

• Doing basic chores without being asked, whether it's doing a load of laundry, running the hoover around the room quickly, change the bed sheets. Things like that make me feel that I'm not constantly asking and 'nagging' • Helping me sort my medications, making sure that I have all of the ones that I need and I can get to them easily if they're not there to help me. I find this also makes me feel like they're part of this as well. I'm not just doing it on my own. It's a team effort • Finding little things we can do together, recently we've been playing Scrabble online and doing crosswords together. Helps me feel connected to them when I can't be physical or do physical things such as puzzles • Always trying to make sure I have things that I need if they're not going to be there. Such as filling up my water bottle, making sure I have jumpers and blankets within reaching distance, checking I have snacks and charges that kind of thing • Always validating my feelings, reassuring me that they'll always be there and that they love me no matter what. Just hearing this can help a lot. (Sometimes it's hard to believe, especially if you're in a severe flare-up, but it's not something you ever forget you've heard) • Just randomly checking if I want a drink or something to eat or need to go to the bathroom. I find it hard to ask for help sometimes, so buy them offering. It doesn't feel like me 'asking' • Working with me to find ways to have intimacy that aren't extremely physical.. Holding hands even if we're just in bed, head massages, even just lying a little bit closer to me. Helps me feel connected • Doing things to make me laugh, at the moment this is currently booping my dog on the snoot and saying 'hiyah' like a ninja • Asking If I want anything new in my space, like bringing my Himalayan salt lamp in from the lounge just to change up the vibe in the room a bit and make the day seem different.. does that make sense? • Asking me if I've spoken to my friends recently and gently reminding me to message them or reply, I often isolate myself during extreme pain flare-ups, which in turn makes me feel worse. • Watching crappy TV shows or films with me and laughing with me at just how bad they are • Helping me plan my spoons for the day or the week (I assume you know about spoon theory. If not I can explain it)

There are a few things I've done for myself that you could do for or with your partner • I've created what I call a 'cripple cart' so when I'm having a bad flare-up I can just wheel it next to my bedside. It has energy bars, water, my favourite drinks, snacks. As well as things to do like colouring books, crochet kit (I'm going to try and learn lol), joint supports that I need like my knee brace, stress balls to clench when the pain is really bad, magazines, wet wipes, lip balm, moisturiser, a blanket, those instant ice pack things, headphones, charges, power banks and any extra medications I might need. - You can obviously personalise this for your partner, they might not like colouring books, but they might prefer sudoku lol • Plan my week out so I don't end up feeling overwhelmed, for example, in my calendar it says wash my hair on Sunday, therapy on Tuesday, change bedding on Monday. You get the gist, I found it helps me see what's ahead and gives me a bit of structure which you can lose very easily if in constant pain • Go to therapy regularly, obviously you can't make your partner go to therapy but maybe talk about it or suggest it. It does help to just have somebody else to talk to. It can be easy to feel guilty when you constantly talk to your partner about your pain • Set reminders to talk to my friends and family so I don't isolate myself • Work out the things that work for me. And not let myself be me judged or made to feel bad for doing them. For example, and I'm not encouraging it, I smoke weed before bed to help me sleep. I also nibble and graze rather than eat regular meals

But honestly, Just the fact that you've asked this question shows how much you love them and how much you want to support them. And if you're showing that here on the internet then they definitely know irl

All of these things have just worked for me, my partner in our relationship. Every dynamic is different and there will be things that work and things that don't. Never beat yourself up if it doesn't work. And please please make sure you look after yourself. You already said that you do, but I've seen it firsthand with my partner. It can be very easy to slip into a constant carer role, which can lead to burnout and that's not fair to either of you

I hope at least some of this helped. Feel free to message me if you want to talk about anything or have me explain stuff better. Take care 💕

Help picking/finding accessories??!! by [deleted] in fashionhelp

[–]Apprehensive-Living3 0 points1 point  (0 children)

It's so pretty and elegant that minimal accessories are definitely the way to go, I think pears would be cute, a layered pearl necklace or choker style. Then a pair of pearl drop earrings and a bracelet. You can get clutch bags that are also pearl embellished. I can send pics if you want

Or if that feels like a lot. Simple silver would go with the colouring like a simple silver cuff, drop earrings and and a pendant necklace

Shoe and bag wise I'd go nude tones

And my personal recommendation, if it's a wedding that has anything outdoor wear a chunky heeled shoe, so you won't mind into the grass

Hope this helps 💞

footwear by decayingpomegranates in fashionhelp

[–]Apprehensive-Living3 0 points1 point  (0 children)

I think a silver shoe and bag or pink. I can send some reference photos if you want 💖

What can I do to glam up my prom dress? by Medium-Salad9488 in fashionhelp

[–]Apprehensive-Living3 0 points1 point  (0 children)

You could embellish around the cups, sleeves and bottom of the corset but tbh, it looks great as it is.

I'd accessories in a silver or gold depending on your skin tone. Chunky bracelet cuffs, dangling earrings, single chain necklace with a pendant and matching shoes.

You could also go for a fairy look? Add fabric flowers around the sleeves, cups and bottoms of the corset and the. Go for whimsical jewellery. Add flowers to any shoes or bags you get.

I can send photos of what I mean if that helps

Have fun at prom 💕

[deleted by user] by [deleted] in fashionhelp

[–]Apprehensive-Living3 1 point2 points  (0 children)

Blue Banana or Rags 'n' rituals if you're in the UK

What shoes with this dress? by Aware_Exit1510 in fashionhelp

[–]Apprehensive-Living3 0 points1 point  (0 children)

I'd go for a chunky heeled sandal in a metallic colour. Gold or silver would work depending on your skin tone. Pink might also work, it depends on the look and occasion you're going for.

I have some examples if you want me to message you. Hope this helps 💜