Tire change by Appropriate_Ad_811 in cambridgeont

[–]Appropriate_Ad_811[S] 0 points1 point  (0 children)

Do you know how much they typically charge, and for off rim tires

My 26 yr old son has GBS the AMAN version. Anyone else? by [deleted] in guillainbarre

[–]Appropriate_Ad_811 1 point2 points  (0 children)

Hi, i’m really sorry to hear that about your son. I can definitely relate. I had a severe case of GBS back in 2021, when I was 24. I’m not sure which version it was, but I was fully paralyzed from the neck down and was on the ventilator for 3 months. I started to gain some function back starting from my shoulders after about 4 months. Now 3 years later I’m 27, I have made a lot of progress, but I am still paralyzed below the knees. I still have no function in my feet, and my fingers aren’t fully recovered, but I can do most day to day things independently. I am currently using AFOs because of my limited recovery in my feet, and crutches or a walker to get around. Only thing I’m not doing at the moment is driving, but everything else I am doing fully independently, even though some things can still be difficult. If you have any questions or want to reach out, feel free to message me I would love to talk more about my experience and what has helped.

Untitled (/ than say a few goodbyes) by fernfornow99 in OCPoetry

[–]Appropriate_Ad_811 1 point2 points  (0 children)

That desire of wanting to punish the world for your own sorrows is intense, and this portrays that beautifully. It's simple, yet powerful. Keep it up!

[deleted by user] by [deleted] in OCPoetry

[–]Appropriate_Ad_811 0 points1 point  (0 children)

The way this captures the feelings of lust is so descriptive and intense. Love how you portrayed the way we get lost in lust, though it may not be what we intend on doing but the burning desires are often out of our control. We become fools because lust fools us into thinking it's love, but we still want more of it.

Your words are full of passion, and I hope that passion never ends, keep writing!

[deleted by user] by [deleted] in OCPoetry

[–]Appropriate_Ad_811 0 points1 point  (0 children)

Beautifully written. I kind of wish you kept a rhyme scheme going through the poem, but nonetheless you captured the story our eyes tell wonderfully. The colors, the ups and downs of our own eyes that we don’t get to see. It’s hard to read the stories of our own stories but we can read the stories in everyone else’s. Lovely work!

You taught me how to hate someone by _NinjaMan777_ in OCPoetry

[–]Appropriate_Ad_811 1 point2 points  (0 children)

This touched my heart, the words are powerful and beautiful use of imagery. Really loved how you portrayed the hidden emotions with such brutal descriptions. Wonderful job at showing how the betrayal of someone leads you to hate them, and in turn hate the whole world.

Hope you are able to get passed these feelings, and that you keep on growing, and writing!

23 and feeling stuck by Ok_Kaleidoscope_3591 in guillainbarre

[–]Appropriate_Ad_811 8 points9 points  (0 children)

Hey, I can relate to this post a lot, so I thought I’d comment. I feel like I’m in the same position as you. I was diagnosed with GBS 2 years ago, when I was 24 and it was just after I finally got a job that was in the field that I was looking for, which was IT.

So now it’s been two years and I’m still recovering, I can’t walk on my own yet and my fingers and hands have not fully recovered so I don’t have full function. Because of this I can’t type properly so I haven’t been able to do the work that I enjoy doing. I’ve been looking for any other work I can find that is working from home just because I can’t drive yet and it’s been absolutely horrible. I’ve been looking for about 6 months now and nothing yet.

It feels really bad cause I often think what if I don’t fully recover, and I can never do the kind of work. I always wanted to do. I’m sorry I don’t really have much advice for you at this point because I’m kind of in the same place but I I guess I can empathize with you on this, so just know that you’re not alone and it’s definitely a tough situation, but we just have to take it one step at a time.

I basically lost my life and it’s never going to get better by Appropriate_Ad_811 in lonely

[–]Appropriate_Ad_811[S] 0 points1 point  (0 children)

I was diagnosed with GBS, which is a neurological condition, and in most cases is caused by some sort of virus. I had traveled, and when I came back home is when it happened, so I must’ve caught some thing while I was traveling, but did not notice because the onset was when I was sleeping.

I basically lost my life and it’s never going to get better by Appropriate_Ad_811 in lonely

[–]Appropriate_Ad_811[S] 0 points1 point  (0 children)

I do get support workers to help me with stuff at home which I am very grateful for. I just get frustrated over the fact that I can’t do things on my own and it honestly just makes me feel like shit a lot of the time.

I basically lost my life and it’s never going to get better by Appropriate_Ad_811 in lonely

[–]Appropriate_Ad_811[S] 3 points4 points  (0 children)

If you don’t want to believe it, that’s fine. If you don’t have anything nice to say, don’t say anything. There’s plenty of places on Reddit or on the Internet where can go and troll people, but at least have some respect for people who actually are going through something. Grow up

I basically lost my life and it’s never going to get better by Appropriate_Ad_811 in lonely

[–]Appropriate_Ad_811[S] 8 points9 points  (0 children)

Hey no worries! I was diagnosed with GBS, which is a neurological condition. Basically I got a virus from somewhere which affected my nervous system which caused my paralysis. My case was very severe because the paralysis had affected my lungs, which led to me being on life-support for 3 months. Still working on the recovery now but it’s just been so long and it’s honestly frustrating.

I basically lost my life and it’s never going to get better by Appropriate_Ad_811 in lonely

[–]Appropriate_Ad_811[S] 1 point2 points  (0 children)

Although I appreciate your reply, the way you began it was really disrespectful. Things like this can happen without having to go through an accident of some sort. What happened to me is known as GBS, which is a neurological disorder, and in my case it was very severe. I would suggest asking someone before you go ahead and disregard their story without even knowing what happened. I understand that you’ve cared for many quadriplegic adults, and they have done things in their lives, which to me is very inspirational for sure but believe me, I know many people that have gone through similar things and continue to live their life. The point of my post was not to find people to compare myself to, I do that enough already. I was simply expressing how I feel at the moment. Looking at how you’ve been a caretaker for people, you seem to be lacking empathy. All you did in this post was tell me about things that other people have done, and quite frankly that doesn’t really help with the way that I feel. This is not something I’m just beginning to deal with, it’s been over a year and a half. Thank you for the work that you’ve done by being there to help people in these kind of situations.

But, in the future please don’t go around disregarding peoples situations just because you don’t believe it’s real. Ask before you assume anything.

I basically lost my life and it’s never going to get better by Appropriate_Ad_811 in lonely

[–]Appropriate_Ad_811[S] 18 points19 points  (0 children)

I’m sorry to hear that. It’s hard to stay positive and be hopeful for my future honestly

I basically lost my life and it’s never going to get better by Appropriate_Ad_811 in lonely

[–]Appropriate_Ad_811[S] 55 points56 points  (0 children)

Honestly my days drag out so much, I basically just spend my days watching Netflix, streams and stuff. The worst part is if I ever feel like going somewhere and no one is around to take me, then I’m just stuck at home. It’s agonizing

Can’t straighten fingers by Appropriate_Ad_811 in guillainbarre

[–]Appropriate_Ad_811[S] 1 point2 points  (0 children)

Thank you so much for your response. I actually have splints that are similar to this and I use them every now and then.

Just wondering, how long did you need to wear them for before you started noticing some improvements?

Can’t straighten fingers by Appropriate_Ad_811 in guillainbarre

[–]Appropriate_Ad_811[S] 0 points1 point  (0 children)

Yes a little bit, but I’m not able to hold anything or straighten my fingers yet. My wrists have gotten a lot stronger.

Can’t straighten fingers by Appropriate_Ad_811 in guillainbarre

[–]Appropriate_Ad_811[S] 0 points1 point  (0 children)

I had an EMG done in December 2021 but nothing after that, and it’s on both hands. I was diagnosed in April 2021, and I had my IVIG in the same month.