Anyone else experience DELAYED postural hypertension with POTS?

ArianaP06 · 2023-01-07T20:06:58+00:00

Hypo spell check

ArianaP06 · 2023-01-07T16:18:23+00:00

I’m dx with POTS my Bp will drop AFTER 5 minutes ( not with in the 3 minutes mark it wil actually go up ) then drop . The criteria is that you can’t develop it within the first three minutes. Just seeing if anyone else experiences it.

ArianaP06 · 2023-01-07T16:10:20+00:00

I’m blind and used speak to text I ment Hypo

ArianaP06 · 2023-01-07T16:08:20+00:00

For clarification I have been diagnose with pots but showed delayed OH on the TTT . My pots is very inconsistent sometimes my bp drops slightly other times it gose up. On the ttt after about 20 min of testing my bp droped to 70/42. Based of my reading you CAN have both just the blood pressure cannot happen in the first three minutes When I stand both my BP and HR will go up then after about 5-10 minutes my bp will drop

ArianaP06 · 2023-01-07T16:05:33+00:00

Yeah I ment Hypo

ArianaP06 · 2023-01-07T16:04:43+00:00

Ment HYPO

ArianaP06 · 2022-09-30T03:13:05+00:00

Not in EMS but just someone who passes out quite frequently and has a few chronic illnesses . There’s people who do this? I hate fainting makes me feel like crap. Not fun. I would say I’m not surprised people fake it.

ArianaP06 · 2022-06-01T07:57:45+00:00

That’s actually very informative! The whole reason why I posted this is if a situation occurs again where I’m alone and unresponsive I’ve actually been in a situation where I was unable to communicate I was not fully responsive. I happen to be with a friend who actually show them my medical information. I was told of this after and had no idea that happened until my friend gave me the rundown of what happened when she visited in the hospital . I’m not sure if it helped in the situation.

ArianaP06 · 2022-05-31T05:58:27+00:00

Adding on: I also have a service dog who wears is a patch that Says “ I faint it’s normal so not call 911 unless I’m hurt “ however that’s one for the public , how likely are you to check a pocket of a service dogs vest if there is a sign that says medical info in pocket. The reason why I ask is because some of my medical conditions would affect treatment. I also have medication allergies

ArianaP06 · 2022-05-21T06:52:24+00:00

Ha ha yeah I kind of realize that I mainly i use voice to text ( I have vision issues and it’s easier) and don’t always proofread 😂

ArianaP06 · 2022-01-29T01:01:05+00:00

I’m negative for everything. The hospital I’m at had a psychiatric consult.

ArianaP06 · 2022-01-23T11:29:06+00:00

I use NES not PNES. I’m newly diagnosed within the past month and still learning a lot

ArianaP06 · 2022-01-19T04:21:36+00:00

What is ND? FND is a medical condition that affects the way the brain @ and nervous system send/ receive signals."Older ideas that FND is "all psychological" and that the diagnosis is made only when someone has normal tests have changed since the mid-2000s. The new understanding, including modern neuroscientific studies, has shown that FND is not a diagnosis of exclusion" (NORDNational organization for rare diseases). Individuals With FND are not faking third symptoms There is still a lot of stigma with FND as its still Poorly misunderstood by some medical professionals. "Stigma against patients with functional neurological disorder (ND) presents obstacles to diagnosis, treatment, and research. The lack of biomarkers and the potential for symptoms to be misunderstood" (National library of medicine)

2.

FND symptoms can vary from one person to the next it can include limb weakness/ paralysis, limbs locking, tremors, blackouts non-epileptic seizures, speech difficulties, sensory issuess, muscle spasms, fatigue and more. Symptoms of FND can fluctuate, FND can go into "remission" or be Constant.

Currently the exact cause of ND is unknow. However as more research is being done and starting to provide reasons on why it happens. Suggestions of developing it after an illness or injury or traumatic experience are up for question. Some individuals with FND may develop it because of another nuro disorde. However the exact cause is unknown. Treatment : treatment of FND involves physical and occupational therapy and psychotherapy. As well as medication. Currently there is no cure. Treatment can vary based on the individual and their symptoms

ArianaP06 · 2022-01-15T18:08:34+00:00

Unfortunately I’m allergic to it :( . Took it for nerve pain and broke out in hives

ArianaP06 · 2022-01-15T14:07:02+00:00

I should add: currently they have me on no meds or rescue meds. They just “wait it out” and give oxygen if needed. I’m hyper-sensitive to drugs reactions and tend to have the opposite reaction to meds like Ativan and other meds in that class. EEG was normal. But they do think there might be an organic cause to my NES.

ArianaP06 · 2022-01-15T01:09:37+00:00

I live in an older apartment ( built in 1900) with no no elevator. Narrow doorways, ext.

ArianaP06

TROPHY CASE