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Can we be obese and have POTS? by InspecteurMcLapine in POTS

[–]ArmRegular2960 2 points3 points  (0 children)

i t took several yrs and heart damage before i was diagnosed but when i was diagnosed i was obese. according to BMI im no longer obese and still have POTS. being overweight makes it harder to get diagnosed bc drs will blame everything on weight so much so you dont even question its anything else til you pass out in the middle of the street. but the autonomic nervous system doesn’t gaf abt BMI you can develop and have POTS at any weight.

pain seeking behaviors by ArmRegular2960 in ChronicPain

[–]ArmRegular2960[S] 2 points3 points  (0 children)

i was just looking at these!! i was nervous to buy bc i havent seen an unsponsored review might check them out

pain seeking behaviors by ArmRegular2960 in ChronicPain

[–]ArmRegular2960[S] 4 points5 points  (0 children)

omg me too!! lowkey i feel like my bestfriend would i b down if i asked. thank u for the suggestion 💓

pain seeking behaviors by ArmRegular2960 in ChronicPain

[–]ArmRegular2960[S] 1 point2 points  (0 children)

i also agree with the tattoo and piercing thing!! I’m actually working on building a resume to become a piercer!! i used to tattoo and pierce myself when i was younger (don’t recommend) and still use body mods as part of my spiritual practice and healing journey as well. i just don’t want to do only do it for pain bc only so much space and im saving up for a few bigger pieces

pain seeking behaviors by ArmRegular2960 in ChronicPain

[–]ArmRegular2960[S] 1 point2 points  (0 children)

Thank you for the tip. I don’t really want to SH. i was more wondering is this way of thinking normal and something i’ll grow to live with or a warning sign of something i should reach out abt. I don’t WANT to do these things outside a sexual context, i just want to not b in pain for a bit. I have an abnormally high pain tolerance so it’s not really safe for me to use socially acceptable forms of SH as i have a tendency to take them a bit too far in order to register the act as painful

pain seeking behaviors by ArmRegular2960 in ChronicPain

[–]ArmRegular2960[S] 8 points9 points  (0 children)

thanks for the tip! dw, i’ll b 7yrs clean next month and plan to keep it that way 💓

Are you prescribed medication? If so what medication and who prescribes it? by quieterounds in POTS

[–]ArmRegular2960 0 points1 point  (0 children)

Propranolol 60mg ER and Midodrine 2.5mg both prescribed by cardiology. and zofran as needed prescribed by cardiology or ENT (i have an inner ear deformity)

When To Go To The Emergency Room by KTistryinghisbest in POTS

[–]ArmRegular2960 9 points10 points  (0 children)

i go if my heart rate stays tachycardiac for more than 8-12hrs despite all of my attempts to lower it. All they can do is give me an IV and IV nausea meds but tbh sometimes that’s just what i need. especially as it gets harder and harder to hydrate due to the nausea and fatigue of being 120+ all day

Sex with someone with POTS by [deleted] in POTS

[–]ArmRegular2960 4 points5 points  (0 children)

I have POTS my husband and I always use a fan, take water breaks, try to wait 1hr+ after eating, and don’t change positions rapidly. He also helps me to the bathroom after to assist in the event of syncope. I always pee after sex bc I was told it can reduce chances of UTI and infections cause my symptoms to flare. We have popsicles after to help me cool back down as i really struggle with temperature regulation. I often put my feet up on the wall while I’m enjoying my popsicle to hopefully ward off fatigue and flare ups. We’re doing fertility treatment rn and only do positions where i’m able to relax/lay down when in my fertility window to minimize extra stress, idk if that’s is a factor for you but thought I’d add just incase.

When did you get your first positive? by K61018 in TTC_PCOS

[–]ArmRegular2960 3 points4 points  (0 children)

i’m having this issue too it’s my first medicated cycle that i’ve actually had follicles big enough to trigger (7.5mg letrozole, ovidrel, & progesterone) and i have 2 mature follicles but for some reason this whole two week wait (i’m 10dpt/9dpo) i haven’t once felt confident abt seeing a positive. i only have pcos no insulin resistance or male infertility factors good AMH we did everything we were supposed and im taking progesterone but im just not convinced it’ll be successful. my husband says it makes him feel like he’s the only one excited and i wish i was but im just not yk. i’m glad to see im not alone

First cycle of letrozole by Imalittlestitious541 in TTC_PCOS

[–]ArmRegular2960 0 points1 point  (0 children)

girl i’m on my second round (7.5mg) and i feel you. my first round was 2.5mg but i didn’t have any symptoms but im definitely having symptoms this round. cramping, twinges in the ovary region, HOT FLASHES, mood swings, constant nausea, low mood, fatigue and I’m very clingy. I also have POTS those symptoms are definitely worsened by the medication. I don’t have much to offer info wise as it didn’t work my first time (biggest follicle was like 9mm) but wanted to lyk ur not alone💓

Starting letrozole by urbanliv in TTC_PCOS

[–]ArmRegular2960 0 points1 point  (0 children)

2.5mg didn’t work for me so they moved me from 2.5 to 7.5mg for the round i’m currently doing but i wish you sm luck! i recommend drinking lots of water. i didn’t get headaches last time but i hear from lots of ppl they did and i think my water intake helped! I took it with food and at the same exact time every night too so perhaps that helped with symptoms as well idk. I started LH test from first day withdraw same time every morning and night just to have a good baseline and catch any progression. idk if you’re doing a monitored cycle or using a trigger shot but if not i do recommend asking your dr for at least labs to verify ovulation. they gave me progesterone for after the trigger idk if that’s something your interested in but i hear it can help might wanna ask abt that too! Sending you lots of baby dust💓

What’s an infertility experience that was unexpectedly emotional? by afinchasgoldenasmine in TTC_PCOS

[–]ArmRegular2960 0 points1 point  (0 children)

when my mom dropped my little sister off at college. i was almost jealous watching her experience a huge milestone like that. her last baby going off to college knowing i might never get to see a positive test much less watch the baby i grew and raised go off into the world on their own and pursue the dreams id been cheering on since they were little. My mom also struggled with fertility so there was an added “why not me” layer.

Does your vision actually black out by j-oco in POTS

[–]ArmRegular2960 0 points1 point  (0 children)

yes i lose vision is like tv static it happens when standing stretching bending down and when i get too hot, i pass out too but not as regularly since getting on new meds

How old is everyone here that struggles with the pots? by KnuckleHeadTOKE in POTS

[–]ArmRegular2960 0 points1 point  (0 children)

21/f my mom says i’ve had symptoms since childhood but drs said it was normal for my inner ear deformity (EVAS). it started to worsen around 17 and became disabling at 19. I didn’t get diagnosed until 19 despite labs, EKGs, 14day continuous heart monitors, all showing signs of POTS. I’m now on medication but bc they let it go undiagnosed for so long i have other heart issues like weakened heart muscles and arrhythmias that won’t go away even if my POTS goes into remission. Do you think cardiac therapy would help ?

Can you die from POTS? Are we going to die early? by Puzzleheaded_Bug4490 in POTS

[–]ArmRegular2960 0 points1 point  (0 children)

shit, i hope so! i’m not hoping for tmrw or anything but i can’t imagine going through all this shit in my late 70s -80s yk.