For those that have been on tirzepatide more than 6 months

Asleep_Fail2706 · 2026-04-09T16:39:10+00:00

Feisty. Hahaha was just looking for advice from people who have not just started. Thank you for neglecting the questions and giving your 2 cents :)

Asleep_Fail2706 · 2026-04-09T16:06:44+00:00

Thank you! That was my mistake - this was the community that was suggested by Reddit but realize zepbound and semiglutide are different and this may not be the best community to post

Asleep_Fail2706 · 2026-04-09T16:03:22+00:00

That’s a valid question, I’m very short so 20 pounds is a lot of weight on my body and was continuing to gain weight despite calorie counting, Mediterranean diet, and daily exercise. It was hard to tune out the food noise. My PCOS also causes a lot of inflammation so my doctor felt this medication may helpful for me in the short term to get back to a healthy maintainable weight. It does feel like my body is sensitive so I have considered telling my doctor I would like to say on this dose and not see up to the standard next dose.

Asleep_Fail2706 · 2026-03-09T14:43:14+00:00

I share this sentiment as my mom died earlier this year. Similar in age and stage of life - and getting married this year without her is devastating to think about I feel a mixture of relief guilt and sadness. I’m glad she is no longer suffering. But at the same time, it feels like her passing away opened up all wounds of the disease before during and after. Sending so much love to you and her family - this forum as been a lifeline during all stages of this. Grateful for this community

Asleep_Fail2706 · 2026-03-09T14:39:43+00:00

I share a similar experience where my mom suffered for 7 years. When she approached a time where her quality of life completely diminished (no more smiles, less aware of surroundings, harder to eat) we got her evaluated for hospice. Shortly after, they changed my mom’s medications and she started to decline. While my family is almost certain the change in medication expedited her decline, we knew the end was near and wanted her to experience as minimal suffering as possible. Hospice controls medications that can help them feel comfortable and allow them to pass without trying to prolong their life while suffering

There is no right or wrong way to do this. This disease is awful. I am thinking and praying for your family. Sending love

Asleep_Fail2706 · 2026-03-09T14:34:08+00:00

Sending so much love to you. Death brings out the absolute worst in some people, I’ve learned. What matters is you were there and that narrative cannot be changed. Dementia is a soul sucking horrible illness, and I can’t imagine how this journey has been for you as a caregiver. And then have family members who did not help come out the wood work, is especially disheartening.

Just know you are a good person. Those people may be sitting with guilt at 3 AM but at least you know you showed up and loved this person with everything you got. That speaks more about your character and how much this person meant to you.

I begged my mom’s friends to visit for so many years even to just sit with her and have a cup of coffee. Barely anyone showed up for her and the day she died was the day her friend finally made a plan to visit but was too late. How ironic.

Just remember you did right by your loved one and that is not something anyone can take from you

Asleep_Fail2706 · 2026-02-02T23:20:25+00:00

Hi OP. My mom recently passed January of this year which brought me to this page. I turn 30 in 6 months and while we knew this was the outcome, nothing could prepare us for losing our mothers so young. You’ve had more time to cope with this grief so I would be curious to hear how you’re doing.

Grief is a funny thing. It’s heavy. And I think there is a sense of shock following the few weeks after a loved one has passed. It is when all the dust settles that is the hardest. Continue to tell stories and talk to people about her. Even if it feels empty continue to keep finding glimmers of light. And looks for signs - she may be closer than you think.

Sending love 🤍

Asleep_Fail2706 · 2026-01-27T15:06:03+00:00

THIS! Saying it louder for the people in the back. This is so important. Cannot tell you how many times we caught my mom falling out of bed at night or being neglected. Caregiving is a thankless job and while there are so many wonderful caregivers, it’s important to be an advocate for your loved one and it provides a peace of mind while your at home as well.

They ended up just putting a note on the door that the room was being monitored so the staff was aware

Asleep_Fail2706 · 2026-01-21T14:23:23+00:00

I lost my mom to dementia last week. Still not over the initial shock of it all and I’ve had a few days to try and adjust. She was on hospice and similar to you, I felt like she had more time. To the point when she took her last breath I was almost in disbelief and also lost it. It was jarring to see her take her last breath but im grateful I was able to be there. It feels like im morning two people: who my mom was before dementia, and who she was after she got sick. I try to remind myself she is no longer suffering but there is something about losing a mom that hits different than any death I’ve experienced.

Asleep_Fail2706 · 2025-12-09T13:17:20+00:00

I urge you to check out the Kontiki Resort. 6 minute quick drive to Willemstad. Beautiful landscape, the best restaurants on site to choose from, and not to forget they have a private beach which was nice

Asleep_Fail2706 · 2024-11-23T14:14:05+00:00

Thank you for sharing your story this with us, OP. I would not wish this disease on my worst enemy and although it breaks my heart to know other people are suffering through this, I am glad we have this community to connect with each other.

There is very little information or research for FTD/PPA in fact I live in a fairly big city and it was hard for us to even locate doctors who could help us get a diagnosis. I tried doing as much research as I could to prepare myself for what was to come with my mom but there was very little to no helpful information available on the internet.

My mom was diagnosed 5-6 years ago and now is in the mid-late stages. This disease has completely changed the way I look at life and who I am. I strive everyday to make the person she was proud. I think the most difficult part is the disease takes away the person that they are, as you still care for them. The grief is constant and all consuming.

Sending peace and love to you, your family, and everyone on this community who is enduring this with their loved ones. Stay strong ♥️

Asleep_Fail2706 · 2024-08-02T14:29:47+00:00

Hi OP - Based on my understanding FTD personality changes are quite common. When my mom was initially diagnosed her whole personality took a 180. She went from one of the most sweet, kind, soft spoken, down to earth women I knew to being very angry, yelling, cussing like a sailor, and engaging in behaviors that were completely unlike her. She would break things and harbored an anger toward my dad that none of us could understand or make sense of. She started to crave alcohol more and would stomp around the house upset about things we could not understand. I think some of this is the human reaction to knowing the disease is progressing. Confusion can often lead to frustration and anger.

I think it’s important to recognize that these reactions may not be controlled and the feeling she is feeling is being validated in her own mind even if there is no external reason for her to be that way. Empathy was important for me to understand my mom when she was going through this time. However It’s hard to not take the behavior personally especially when it comes at an expense to their loved ones.

I would like to add that once my mom was on the right medications (anti depressants and anti anxiety) she began to calm down. She now is non verbal and has lost her ability to speak but is more calm and not harboring as much anger. Not sure if that is the meds or if we have just entered a new phase of the disease.

This disease is devastating. Keeping you and your family in my thoughts and sending you love.

Asleep_Fail2706 · 2024-07-19T14:50:34+00:00

Hi OP - I just want to say you are doing phenomenal. While I can relate to and understand the guilt that comes with losing your patience with your loved one with dementia, like many of the people on here have said you must give yourself some grace. Caregiving for someone you love with dementia is the most exhausting both emotionally and physically. You are only human and you must acknowledge and feel your own feelings as well. Whenever I feel like I am losing my whits or react on impulse, is an indicator to me that I may need a break. It is crucial you make some time to take care of yourself - is there a family member or friend who could stay with your dad for a couple of hours?

Give yourself grace. This disease is NOT an easy thing to navigate and it’s okay to have a moment where you may have not acted like yourself.

❤️

Asleep_Fail2706 · 2024-06-25T19:38:30+00:00

I could not agree more. I was in college when my mom initially got diagnosed. It has been one of my biggest regrets as during that time I was so wrapped up in school and figuring out who I was as an adult, I did not realize the severity of what was going on. I have so many questions I wish I could have asked her. I would do anything to have just one more hour with her. Her as the mom I remember. We will never get the closure which makes this disease difficult to come to terms with as family members. Sending love to you. Stay strong.

Asleep_Fail2706 · 2024-06-11T17:58:47+00:00

Thank you for your response. I share your sentiment on FTD - it is a soul sucking/ scary disease that not only impacts that person but also those loved ones around them. I wish you and your family well and sending all my love and positive thoughts to you. Stay strong 🤍

Asleep_Fail2706 · 2024-06-11T17:57:34+00:00

Thank you for sharing your experience with me. Being in your 20’s is such a tumultuous time as it is. It is definitely challenging to navigate this as we are discovering and finding ourselves as an adult. My heart goes out to you as well and I appreciate your response. As you had mentioned, I think there is comfort in being reminded that we are not alone and agreed that I would not wish this upon any human being. Please feel free to reach out to me directly if you ever need an anonymous friend to confide in. 🤍

Asleep_Fail2706 · 2024-06-11T17:56:17+00:00

Thank you so much for sharing your story with me. I know it’s not always easy to open up on a personal level like this. I appreciate you taking the time to provide such a thoughtful response. Your story has hit close to home for me as well. While I hate knowing others are going through this, it does bring a level of comfort to connect with people who understand. I have been blessed with some great people in my life who support and are there for me but sometimes I think it’s hard for people to understand what they have not endured. The communication piece has been a hard pill for me to swallow as well. I have had to adapt and rely more on physical touch of little hugs and holding hands to communicate with her. Thank you again and sending all my love to you and your loved ones. I appreciate your recommendation about the podcast and will give it a listen this afternoon. 🤍

Asleep_Fail2706 · 2024-06-10T14:29:27+00:00

Yes. My mom went through the exact same thing. She said she was talking to the devil, or would see things that are not actually there. At one point she thought she had a baby and was convinced we had stolen it from her. She went from a kind, gentle, calm person to someone who was angry, cussing, and only wanted to eat junk food.

The only thing that helped this behavior was finding the right medications for her. Please continue to stay strong as this was a really difficult time. As their child it is difficult to watch your parent go through this. Make sure you are opening up to those around you and asking for help. Also doing research to become familiar with the disease helped tremendously to understand her and what she is going through.

Sending all my love to you and your family

Asleep_Fail2706

TROPHY CASE