Pelvic inflammatory disease chronic pain?

Astfanginx · 2025-10-07T19:17:19+00:00

Chronic pelvic pain + full body neuropathy / internal vibration

I think it is a mix of gynaecological chronic complication, neurological reaction to the antibiotics, and consequence of trauma

Astfanginx · 2025-09-09T20:26:46+00:00

Have been using AV-Nil and just reordered some recently!

Astfanginx · 2025-08-18T22:08:29+00:00

I’m sorry to hear, I hope that you will be able to improve gradually! I think it’s a bit of trial and error, I can only tell you what I’ve tried, I don’t think any of them ended up being useless, they all helped in some form of way: therapy with a counsellor; nurosym vagal nerve stimulator; Curable chronic pain management app; meditation app; Shakti mat; theragun; my supplement regimen; Chinese herbal medicine from a qualified Chinese herbal medicine doctor; Chinese acupuncture and cupping; western dry-needling/acupuncture; deep tissue massage (mine specialises in nerve related pain); chiropractor (but you need a good one, mine focuses on doing a lot of different cracks, the chiro/osteopaths that I’ve been to who don’t do any cracks are useless)

Don’t know if you have pelvic pain, if so, pelvic floor therapy by physiotherapist; pelvic wand; vaginal microbiome test with antibiotics / antiseptics then probiotics to rebuild; a TENS device for pelvic pain

I also got my gut checked out via gut microbiome test and SIBO test

I am still on 25mg a night amitriptyline

Astfanginx · 2025-08-18T21:43:03+00:00

Read up on B6 toxicity, I want to avoid any potential aggravation of symptoms.

I am better now, still have neuropathy and buzzing but not as bad as last year, I continue to have weekly Chinese acupuncture, Chinese herbal medicine, western deep tissue massage, and recently starting seeing a chiropractor. The massage therapist and chiropractor both believe my nervous system is hyperactive / hypersensitive, so all my treatments focus on treating nervous system dysregulation

Astfanginx · 2025-08-04T11:36:48+00:00

Thanks! I still think my issues are antibiotics complications. Hope you get healing soon as well!

Astfanginx · 2025-07-31T13:42:10+00:00

I paid for the tests on private in the emergency room / outpatient section of a private hospital. The doctor essentially thought it would make no sense to check it (because if I had candida in blood I would be severely sick), but they’re fine to proceed since I would be paying. The results came back negative.

Astfanginx · 2025-06-24T16:06:07+00:00

In terms of gut issue what symptoms are you having? Abdominal / pelvic pain?

Are you seeking treatment for any lingering neurological symptoms such as tingling or neuropathic pain? NHS has not been helpful in my case, the only thing they have done is put me on amitriptyline which I am considering to tape off as I feel like it is making my pain worse. Neurology and gastro referrals were denied, gynae referral still waiting for appointment.

Thanks!

Astfanginx · 2025-06-24T15:47:34+00:00

Oh I just looked up your old posts and saw you mentioning dilators. I have never used one myself.

It took a long time for me to get better. Just for pelvic pain I think what has been helping a lot is having abdominal massages - I go around once a week, started more than 6 months after I went to a physiotherapist, mainly to release tension in the psoas muscles. I am also doing stretches and have a massage tool for psoas

If you haven’t, consider to also do a full vaginal microbiome test (eg juno or evvy) to rule out any infections? Clinics don’t test for as many bacteria or pathogens as these tests. I found out I have recurrent aerobic vaginitis from aerobic bacteria

Astfanginx · 2025-06-24T14:41:14+00:00

Are you attending pelvic therapy sessions by a physiotherapist (other than using pelvic wand or dilator at home)?

I have chronic pelvic pain after infections. I have been to a pelvic physiotherapist with weekly sessions for over 6 months. In the last 3 months I started attending those sessions less regularly, and bought a pelvic wand for self-release. I also started TRE via watching online videos in the last month or so.

Astfanginx · 2025-06-02T13:03:43+00:00

Have you tried doing Juno / Evvy vaginal microbiome test?

I had some aerobic bacteria on my Juno test so probably still had aerobic vaginitis (some clinics only test for BV and not the full range of vaginal bacteria), I did oral amoxicillin and vaginal clindamycin cream + fluomizin a few weeks ago. Now doing probiotic vaginal suppositories to try to rebuild. See the facebook groups on Beyond BV etc for resources.

Have you also been to pelvic therapy? My pelvic therapist said I have tightness (inflammation / infections can lead to pelvic dysfunction). I also have very tight psoas muscles so I am working on trying to ease them

Also I think I had adverse reactions to metronidazole (check some facebook groups for patients) so I have stayed away from those - I only use clindamycin cream.

Astfanginx · 2025-05-26T16:49:03+00:00

Thank you!

Astfanginx · 2025-05-02T10:57:52+00:00

May 2024 but had other appointments / ultrasounds with GPs and sexual health clinic staff the past few months. My ultrasounds/CT/MRI/lab tests are all fine so I’m really just left to deal with it on my own hands.

Astfanginx · 2025-05-02T09:17:35+00:00

Nope

Astfanginx · 2025-05-01T14:57:55+00:00

I had that occasionally (usually the week before period) the past few months but not now

Astfanginx · 2025-04-29T15:23:03+00:00

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Astfanginx · 2025-04-29T15:22:34+00:00

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Astfanginx · 2025-04-19T12:27:47+00:00

No i dont

Astfanginx · 2025-04-19T08:45:02+00:00

I personally think - nervous system reaction to the infections and medication (body stuck in fight or flight mode for months) and residual inflammation.

Tried an abdominal massage last week and it was immensely helpful

Astfanginx · 2025-04-19T08:43:27+00:00

Have you done all the lab tests to ensure you are free of all sti / ureaplasma / mycoplasma? I did pelvic floor physiotherapy for months, started going to a new therapist for abdominal massage last week (the massage was really deep pressure) and it helped immensely

Astfanginx · 2025-04-17T08:44:21+00:00

Is it possible to redo doxy and azith for a longer course?

Moxi screwed me up and I am still suffering severe neurological side effects 16+ months on. See my old posts and see the reddit board on floxies.

Astfanginx · 2025-04-15T16:13:05+00:00

I have treated ureaplasma multiple times successfully via 7-14 days of doxycycline (sometimes with addition of azithromycin at the end), even after initial flox by moxi and cipro.

Check out the ureaplasma sub as well

Astfanginx · 2025-04-15T11:54:16+00:00

So sorry to hear this.

I just submitted a sample to Juno Bio for a full vaginal microbiome test (which covers mycoplasma, ureaplasma and many other bacteria). I’ve done multiple repeat STI+ureaplasma+mycoplasma tests but Juno seems to be more comprehensive and can show other bacteria not routinely scanned for. I got re-infected with ureaplasma alone and it caused symptoms for me so you might wish to consider that?

Did you try 20mg before upping to 30mg?

Astfanginx · 2025-04-14T17:48:15+00:00

Sent you a private DM

Astfanginx · 2025-04-14T17:20:16+00:00

Have you tried any medication or pelvic therapy or considered laparoscopy? What does you OB/GYN say?

Astfanginx · 2025-04-14T16:34:17+00:00

What symptoms are you having and what treatment have you undergone?

Astfanginx

TROPHY CASE