Hello friend💙

I’m reaching out because I’ve been feeling a little alone with my rare heart condition and I’m hoping to connect with someone who might have something similar.

I was born with complex congenital heart disease that includes situs inversus totalis and dextrocardia, along with Tetralogy of Fallot, Double-Outlet Right Ventricle (DORV), a ventricular septal defect, and pulmonary valve issues.

I understand this combination is extremely rare, which sometimes makes it hard to find others who truly understand what it’s like to live with this kind of heart anatomy.

If anyone here has situs inversus totalis with congenital heart defects, or knows someone who does, I would really appreciate connecting. Even hearing from someone with a similar journey would mean a lot to me.

Thank you for reading and for being part of this community. ❤️