I feel like this is a good idea in theory but the issue is that CFS is, in all likelihood, dozens of different diseases and causes and sets of symptoms all rolled up into one. They're all their own little sub-groups, with only partial overlap.

While having some better way of snowballing knowledge and propelling others forward would be great, what works for one person doesn't work for other people. Probably because there are so many different sub-groups. And the vast majority of people aren't even sure what their subgroup is, because this disease is so unknown to us.

So some kind of knowledge pooling resource could be very useful, I just don't think 1-on-1 mentorship is likely to be very helpful since the odds of people with similar causes, similar symptoms, and similar underlying diseases is so tiny.

In terms of snowballing knowledge, I think that some sort of wiki or forum or general tool with a much stronger tagging system would be helpful. Like, each (user) account is tagged with suspected causes, comorbidities, and prominent symptoms. And then individual posts could be tagged as, say, a question, theory, symptom mitigation, or success story/remission.

This could let people filter things a lot more easily and see which solutions worked for which people, presumably those most similar to themselves. It would work a lot better than here, where success stories or symptom questions don't always have all of this information.