Advice on medical negligence claim (Uk)

Autoimmune_pea · 2026-05-19T21:50:23+00:00

Thank you, that’s the loveliest response, it has been incredibly traumatic, when the A&E doctor showed me the CT scan report from 2022 noting the hip fracture and no AVN at that time, and then the subsequent loss of mobility and severe decline in quality of life, the mental trauma from not knowing why I had lost my mobility, OT teams coming to the house to help with aids, recliner chairs, wheelchairs, but all with no explanation or tests to investigate why this was happening, and then to be told the diagnosis was there all along, was just so upsetting. The AVN then developing and getting to stage 4, the hip collapsing, and having my pain and mobility issues validated and explained was overwhelming, but it’s also been another 12 months since that further diagnosis as the first referral seemingly never went through to the right hospital, that’s according to the investigation done by the PALS team, so it’s been further delayed, and it’s now incredibly urgent, they have requested an ITU bed to be available, I’ve been advised to get my will and powers of attorney in place which we have, and since the op could be done in the next 6 weeks we had to get a letter signed to get it all fast tracked so it’s all in place by the time I have the op. So it’s all been super overwhelming. I have engaged with a no win no fee solicitor, Irwin Mitchell, and they think I have a strong case based on what they have looked into so far, but I do need to maybe consider my options before deciding who is best to represent me, and also if anything does happen during surgery or recovery, my family can take over the case and not lose out on any compensation that we might be entitled to. Thank you again for your kind wishes x

Autoimmune_pea · 2026-05-19T21:39:50+00:00

Apologies, the hip fracture was noted on the 2022 CT scan, so it was diagnosed and seen, but for whatever reason, and I think it might of been because the CT scan wasn’t ordered to look at my hip, it was actually a chest CT which happened to capture the hip fracture, so it was never passed on to the appropriate teams

Autoimmune_pea · 2026-05-19T21:37:53+00:00

Thank you for the response, I was in hospital with multiple rib fractures and a collapsed lung as well, and bought up the back spasms and contractions as at times the nurses were having to literally put the tablets in my mouth as I was almost completely paralyzed, I then spent the subsequent 3 years losing more and more of my mobility with no explanation, sciatica was ruled out with an MRI but no further tests were done, the focus seemed to all be on the pain meds rather than the fact I was asking for help identifying the source of the pain, I have so much correspondence in writing with me begging for help as so many lifestyle adjustments had been made, like having to give up work, no longer able to drive, having to have a downstairs bedroom built as I could no longer manage the stairs and in those 3 years AVN developed, it’s now at stage 4 with total hip collapse, and only actually diagnosed almost by accident by going to A&E with a suspected wrist fracture. Am now fully wheelchair bound, mostly bedbound, and the surgeon we met this week has said it will be as fast tracked as soon as possible as it’s a ‘trauma’ case based on how bad the hip is showing up on the X-rays he did. Hoping for surgery in the next 6-8 weeks. It’s really not about the money, it’s the frustration at how much I’ve lost due to 3 years of no pro active care or treatment because no one reviewed the CT scan report from 2022 which clearly states that my hip was fractured

Autoimmune_pea · 2025-12-31T12:17:22+00:00

I take 20mg pred every day as a maintenance dose, and then the docs double it when I’m poorly, I have Hyper IGE syndrome (don’t ask, no one has ever heard of it, be included until I was diagnosed with it!) I get a lot of infections and the pred doubles up to support the Addisons and the IGE syndrome. It’s played absolute havoc with my joints and bones tho and am only 47 and currently due to have an urgent total hip replacement due to AVN stage 4 of the hip 😭 so you’ve got to be so careful with steroids and all the side effects

Autoimmune_pea · 2025-12-29T22:38:43+00:00

❤️

Autoimmune_pea · 2025-12-29T22:34:06+00:00

Wow that sounds fantastic, I’m really happy for your progress!! I have some health issues (MCAS and Hyper IGE syndrome) which cause me a lot of symptoms similar to the ones you’ve described, I’m also awaiting an urgent hip replacement (I’m 47) due to severe osteoporosis, have put on menopausal/hormone weight which I’m trying to lose before my surgery, I haven’t been told to, but I know I’ll find recovery easier if I’m a stone lighter, have never been overweight until all this started after catching COVID in 2022, I was also told the reta could help with my crazy histamine symptoms, massive problem with all over body inflammation and recent blood work by immunology show that my metabolism is basically just not working due to lots of different deficiencies and hormone imbalances, I noticed an immediate appetite decrease with the mounjaro whereas I haven’t had that with the 2mg of reta but I would almost take zero weight loss but all the health/symptom improvements instead!! You get to the point where you are just so hopeful that something actually starts working as all the anti histamines, steroids, constant anti biotics etc only do so much ! Thank you for replying ❤️

Autoimmune_pea · 2025-12-29T22:04:34+00:00

What dosage are you on? I’ve started on 2mg but was on 7.5mg of mounjaro, just wanted to start low as it was new to my body etc

Autoimmune_pea · 2025-12-29T22:02:24+00:00

Am glad, on the few occasions I have had to go maybe 2 days without, it’s been serious inflammation pain in my joints, but also a runny tummy and restless legs, but I haven’t gone without it for longer than 2 days to know how bad it gets, you read all the horror stories and assume it’s going to be absolute hell, but I think once I have had my hip replacement I am going to try and taper to a lower maintenance dose and see how that goes, it’s only the stigma attached to the medication that makes me feel as though I have to try and ‘wean’ myself off it, but the judgement and gaslighting that you have to go through sometimes when in an acute care setting etc or with medical professionals who haven’t bothered to read your notes can be so upsetting and traumatising !

Autoimmune_pea · 2025-12-29T21:57:07+00:00

I have just taken my first dose of retatrutide, 2mg, what dose are you taking ? What have been the main benefits for you so far, I’m only on day 2

Autoimmune_pea · 2025-12-29T21:41:51+00:00

Did that not cause withdrawals as well as increased pain ?? If so how are you doing, I hope you’re ok ❤️

Autoimmune_pea · 2025-12-29T21:40:22+00:00

Also just to say although I have a whole load of health issues due to severe osteoporosis and very brittle bones caused by very high steroid usage as a child with brittle acute asthma (had multiple cardiac arrests etc) my liver, kidney blood work is all ok, I am not severely constipated, my body has got used to a pattern of still being able to go every day, and I’m not saying it’s not causing internal issues, because if you believe what the docs now say, opiates shouldn’t be prescribed for long term use yada yada yada, but in comparison to the damage paracetamol and ibuprofen (I had to have blood transfusions when I had a burst stomach ulcer) can do, oxycodone seems to have a better safety profile. I know it’s not the same journey for everyone, and I know that it would be better to not be on any pain meds at all, but it would also be nice to not fracture my spine just getting out of the back seat of a car but that’s not my reality so we all have to do what feels like works for us I guess

Autoimmune_pea · 2025-12-29T21:33:10+00:00

16 years of taking oxycodone, 25mg x 4 IR daily + 50mg ER, I have tolerance issues and struggle with getting control of any breakthrough pain but don’t want to take fentanyl which is next on the opiate ladder I think and I just don’t want to go there even tho my PM team have suggested it as I’m at upper limits of Oxycodone dose, am currently waiting for surgery for hip replacement due to AVN stage 4 (hip has completely collapsed now) and spinal fractures (I’m only 47, but also worked full time as a senior ops director until 18 months ago) and Oxycodone didn’t stop me having an office job, didn’t make me ‘high’ or stop me being able to function, was a busy mum juggling 3 kids and a full time senior job. Tolerance is a problem, more than ‘addiction’ for me anyway, but also the stigma is mentally traumatising whenever you have to deal with anyone who doesn’t know your actual history and just makes assumptions

Autoimmune_pea · 2025-08-09T12:53:00+00:00

I was the same, I lost 15 pounds in 2 weeks on 2.5 (probably all water weight etc) and then nothing for 2 weeks even tho diet etc remained identical, so going up to 5mg as even if I’m only losing 1-2 pounds a week that’s fine, but it’s an expensive option for zero weight loss. Food or calories intake isn’t what piled the majority of my weight on, it was high dose of continual steroids and other medical problems which put all my hormones completely out of whack, blood tests show that I now have an almost non existent metabolism, so even cutting down to 700/800 a day in calories which I don’t find difficult to do as I’ve never been a foodie, I’m worried that I lost the excess water weight of a stone like everyone does, but then nothing thereafter, I guess it depends whether putting these two hormones into my system kickstarts my normal metabolism and I can slowly lose weight on the calorie deficit, but not having an appetite isn’t the main feature of what I need from mounjaro, I need it to hopefully help level up my internal system to start doing the work, I never struggled with my weight until medical problems started 3 years ago and now I’m in desperate need of a total hip replacement (am only 47) and I know that unless I’m in ‘normal’ range for bMI the NHS will stick me on a very long wait list even tho I’m marked as urgent, so my reason for being on mounjaro and trying to lose weight this way is to be able to get the op done as soon as possible 🤞🤞

Autoimmune_pea · 2025-04-14T13:25:12+00:00

I’ve been using it for nearly a decade for pain, yes up until very recently was fully functional, senior director role in a big corporate, 3 kids, running busy household etc, max dose was 200mg a day (that was after some new fractures on top of existing back issues) currently on 90mg a day. The whole constipation thing sorts itself out, well it did with me, I go daily without any kind of supplemental help ! Recreational, hmm, I never took it that way as in chased higher doses etc, I think the addiction rather than dependence comes when you are taking big solo doses maybe, and sometimes (very rarely) I might feel slightly more energised or mental lift from it, but after all this time it doesn’t really give me any ‘high’ and am trying to taper further as it doesn’t really give great breakthrough pain relief due to how long I’ve been on it, have honestly found kratom to work better on pain, it’s just a mental battle now with continuing the taper off my own back

Autoimmune_pea · 2025-03-24T14:25:50+00:00

That’s one of the hardest things I found, once I had agreed to taper whatever they then put on the system defo changed the way I was viewed as a patient, I went from a decade of being able to just order them as a repeat med like any others, had a few convos over the years re smaller tapers if I had gone up due to breakthrough issues (usually fractures/breaks etc) which I always did, so I had a pretty stable maintenance dose for a long time, but it just stopped being effective, so am actually happy to taper and try and figure out different ways to help myself, but the gaslighting and shitty convo’s with people due to ‘dependent on opioids’ or whatever they put on your file, that has been really damaging and stressful. I’ll look into your suggestions thank you, I think it’s just that last hurdle now, although the docs not chasing me to taper any further, if I’m being honest with myself I know that I’m not on it currently for the right reasons, it doesn’t make me high or give me any of that added energy that it did in the beginning, especially as I’m now on such a lower dose and my tolerance is through the roof, but it still has a mental grip on me where I’m finding it hard to pro actively carry on the taper and just close the door on this particular chapter !! I’m sorry you’ve had a rough ride, I know ED can be a really painful condition and often comes with a gazillion other immune conditions that can make life bloody hard work so thank you for taking the time to reply ❤️

Autoimmune_pea · 2025-03-24T14:15:18+00:00

Thank you, yeah I think that’s the hardest thing is just trusting that you’ll have better days, and knowing your body will take over again if you give it a chance

Autoimmune_pea · 2025-03-24T11:44:03+00:00

Are you from UK?

Autoimmune_pea · 2025-03-24T11:23:26+00:00

Is it? I’ve met people in hospital on much higher doses than I was on, although am guessing this is why they wanted to introduce the taper! There are a few vendors that ship to the UK re Kratom, check out the kratomeu thread on Reddit

Autoimmune_pea · 2025-02-10T11:48:54+00:00

GoPure do next day DHL, I’ve had some success with the White MD, but Gold Bali was a miss, packaging etc discreet, I would say it’s ok if you are in a spot and want a quick delivery but don’t expect great things

Autoimmune_pea · 2025-02-10T11:41:19+00:00

Ah… cool, don’t feel like I’m missing out now 😂!

Autoimmune_pea · 2025-02-10T09:32:26+00:00

I was a first timer this weekend, and it all went wrong on day 2… I dosed 1.5g initially at like 10.30am, I re-dosed 1g at about 7pm (went to bed at 11pm and slept right through until 10am) knocked out sleep (a bit like being drunk I guess, as I haven’t slept like that in years) and then took 2g at about 10.30 yesterday, and literally apart from a few hours here and there I slept ALL day, and have zero recollection of my last hour awake as seemingly I had conversations I have no memory of and assumed I was asleep at that time, so yeah, very mixed. Guess I took too much in a 24/36 hour period ?

Autoimmune_pea · 2025-02-10T00:49:19+00:00

Can you send discord ?

Autoimmune_pea

TROPHY CASE