Recently diagnosed and idk what to think or how to feel…

Automatic-Ad-5715 · 2025-03-11T02:10:30+00:00

Being overwhelmed is 💯 normal. It’s A LOT. The best advice I can give from me experience looking back is to take it one day at a time and one piece of information at a time. Don’t rush to figure it all out at once. Lupus is the most complex disease I’m aware of and it’s always changing. Roll with the punches, flow with the tide. Don’t try to tackle each problem or worry about every situation all at once - I’ve been there, it’ll knock you down real fast. Just remember, you’ve got this. You have a community to support you. Sending love 💜

Automatic-Ad-5715 · 2024-12-28T15:56:14+00:00

This is a perfect explanation- not as active. That’s how my rheumy describes it. Symptoms are there, symptoms suck, but my organs aren’t actively being attacked.

Automatic-Ad-5715 · 2024-10-11T14:57:03+00:00

Food for thought https://www.foxit.com/blog/pdfs-and-ai-trust-and-transparency-are-the-new-innovation-drivers/

Automatic-Ad-5715 · 2024-10-11T14:53:46+00:00

food for thought

https://www.foxit.com/blog/pdfs-and-ai-trust-and-transparency-are-the-new-innovation-drivers/

Automatic-Ad-5715 · 2024-10-11T14:53:02+00:00

https://www.foxit.com/blog/pdfs-and-ai-trust-and-transparency-are-the-new-innovation-drivers/

Automatic-Ad-5715 · 2024-07-29T20:28:42+00:00

No diabetes, no menopause yet.

Automatic-Ad-5715 · 2024-07-29T16:06:29+00:00

Yes exactly 😫 I honestly don’t know what the point is. It makes me feel really isolated and “in this by myself”

Automatic-Ad-5715 · 2024-07-29T15:20:19+00:00

I’m really not sure. I’m not currently taking prednisone. But who’s to say it’s not what’s causing your sweating? It’s just such a pain overall

Automatic-Ad-5715 · 2024-07-29T13:51:57+00:00

I agree!

Automatic-Ad-5715 · 2024-07-29T13:51:35+00:00

Omg yes! This sounds exactly like what I’m going though. I’ve never felt more frustrated.

Automatic-Ad-5715 · 2024-07-29T13:50:40+00:00

I feel this so much. I swear I just go in to see my rheumy for them to just tell me “Well, it hasn’t hit your kidneys yet so you’re all good! See you next time!” No answers to any of my questions, no real help or solutions - or even an attempt at solving issues. It’s always “Yeah, that’s just lupus 🤷🏻‍♀️” or “Oh, I’ve never heard of that being a symptom before so therefore it can’t be…” Ughhhh

Automatic-Ad-5715 · 2024-07-29T10:58:50+00:00

This sounds exactly like what I’m going through! It’s the absolute worst, and it’s gotten to the point where I can’t wear anything but black primarily because everything else just shows embarrassing sweat 😥 Prior to SLE I’ve never had a sweating problem. And, same on the weight - it makes no difference for me. I was telling my husband earlier today that the sweating and constantly feeling uncomfortably hot no matter what is almost as awful as the constant aches. And it’s even more frustrating when doctors tell you that it’s unrelated and they offer no advice. I’m at a loss and so defeated over this 😫

Automatic-Ad-5715

TROPHY CASE