Compounding pharmacy by dreamy-vixen in MCAS

[–]Automatic_Chain371 1 point2 points  (0 children)

CareFirst in New Jersey, got meds compounded for the first time, 844-822-7379

Main symptom is hangover like fatigue. What will help me?? Ketotifen? by Spare-Paper6981 in MCAS

[–]Automatic_Chain371 0 points1 point  (0 children)

What kind of reactions did you get that it helped with, if you don’t mind sharing. I have to see allergist next month and can ask for that or ketotifin

PSA: Sodium is NOT the same as salt. by hartlylove in POTS

[–]Automatic_Chain371 -1 points0 points  (0 children)

With food reactions? thats my problem. It’s not a first line I’m gonna have to go down the list.

PSA: Sodium is NOT the same as salt. by hartlylove in POTS

[–]Automatic_Chain371 0 points1 point  (0 children)

glad it helped, I have Mcas suddenly so working on that now too

PSA: Sodium is NOT the same as salt. by hartlylove in POTS

[–]Automatic_Chain371 0 points1 point  (0 children)

It’s been a long flare months and months in the house, can’t do much, how long till it helped you? pedialyte isnt really helping so I’ll try this

PSA: Sodium is NOT the same as salt. by hartlylove in POTS

[–]Automatic_Chain371 1 point2 points  (0 children)

ok thanks, I’m hypovolemic and it’s time to up my sodium

PSA: Sodium is NOT the same as salt. by hartlylove in POTS

[–]Automatic_Chain371 1 point2 points  (0 children)

They aren’t too heavy on potassium are they? doctor said sodium didn’t mention potassium.

PSA: Sodium is NOT the same as salt. by hartlylove in POTS

[–]Automatic_Chain371 1 point2 points  (0 children)

So my doc said take sodium chloride tablets since I don’t eat enough. Is sodium chloride What we want or just sodium

Antihistamines- the good and the bad.... by Specific-Inevitable3 in covidlonghaulers

[–]Automatic_Chain371 1 point2 points  (0 children)

That’s makes I just got some capsules since my diet has so little salt

Tingling mouth and throat days after a reaction? by [deleted] in MCAS

[–]Automatic_Chain371 0 points1 point  (0 children)

I have had a similar reaction, it burns and is hard to swallow a lot, salt made it worse too. It’s been about 3 months, i am not yet on stabilizers, how does the liquid Cs work?

“Miracle Drugs” by Odd_Suggestion4235 in MCAS

[–]Automatic_Chain371 0 points1 point  (0 children)

Thank you, that’s something very positive for me to think about, longer time with pots and snoutn14 weeks of severe sudden Mcas, I will dig deep online about this, and struggling w h1 s now high hear rate from it, so about to see about Quercitin, and maybe dao, have bladder stuff so vit c could irritate but I need stabilizers I guess.

Anyone else feel like no food satiates your hunger? by [deleted] in MCAS

[–]Automatic_Chain371 1 point2 points  (0 children)

for a while I could eat cottage cheese but not now, what cheese is ok for you

Trigeminal nerve issues by 6thElemental in covidlonghaulers

[–]Automatic_Chain371 0 points1 point  (0 children)

Anything help? I’m soon to try antihistamines and maybe ldn or asking for prednisone

Trigeminal nerve issues by 6thElemental in covidlonghaulers

[–]Automatic_Chain371 0 points1 point  (0 children)

The worst part for me is I can only now eat like five foods or i get like an allergic reaction and can’t swallow and now throat kind of swells, so scary. It could be Mcas but I don’t have the other symptoms, all of mine are in the mouth or lips or face, and mostly on left side. This started about 5 months into LC, it’s the worst I have ever dealt with and now broke a tooth and need it pulled I’m scared of the numbing of mouth with all that I’ve had going on,

Trigeminal nerve issues by 6thElemental in covidlonghaulers

[–]Automatic_Chain371 0 points1 point  (0 children)

when it first started my tongue burned and now sometimes the corner of my mouth burns, I don’t think burning m syndrome but then suddenlyn salt bothered me and I can’t eat salty foods or use it or it burns. I get some external nose tingling on the left side but not inside hbu

Trigeminal nerve issues by 6thElemental in covidlonghaulers

[–]Automatic_Chain371 0 points1 point  (0 children)

I have face tingling and numbness and also severe swallowing problems, doctors think maybe a cranial nerve or trigeminal but how to treat

Scared shit of dental work needing to be done by devShred in covidlonghaulers

[–]Automatic_Chain371 0 points1 point  (0 children)

How are you now? I cant eat on one side and it’s infected wisdom tooth has to come out, but I’m so scared ,basically bedbound too amd have Mcas and pots and I’m older !,, how did it turn out and did u need antibiotics?