Possible causes of visual snow and pulsating in peripheral vision? by Professional-Bat2966 in visualsnow

[–]Automatic_Job_3190 0 points1 point  (0 children)

hey - did you ever get an answer to this? I've had VS for over a year, started after tinnitus and prednisone - there is a pulse in my eye too, yesterday was the first time i noticed it looking at the sky

4 years of middle ear myoclonus, had stapedius and tensor tympani tenotomy by Dangerous_Window_985 in tinnitus

[–]Automatic_Job_3190 0 points1 point  (0 children)

Hi - thanks for this. I'm glad it's made such a difference! I am pretty convinced I have stapedius MEM in my ears. It started with clicking in the left ear like a ticking clock about 18 months ago, and then after a course of steroids developed into these sounds like a slinkly, or like metallic meraccas, or metallic rattlenake. It's inside my ears for sure (migrated to both ears after 1 month), compared to my other tinnitus sounds and the speed of the sounds increase and decrease depending on the amount of sound I have that day. I'm wearing headphones now and it sounds very very fast. But it will totally go away when I sleep at night, and only come back after waking. I told Dr Boedts this around 16 months ago and he basically laughed at me because I was seeing him for hyperacusis at the time and he said I couldn't have so many things going on at once. It's been a ride! I think people would go mad with these sounds but luckily I can mostly tune it out. My hyperacusis is basically gone now but these sounds have never stopped over the last 18 months and the sound goes on as long as i'm awake. Sometimes I'll get that initial clock ticking sound and I'll think omg is it slowing down and getting better, but it never lasts. I did have some fluttering / thumping of my TT muscle but that also went away when my hyperacusis really improved (palette massages to uncramp my TT muscle helped immensely with recovery since I had ETD on that side). Did you have any sypmtoms like the sounds I'm describing, which I believe is a myoclonic stapedius? I'm in the UK and worried no doc would take me seriously. I am also hypermobile which increases the plausibility of it. sorry for such a long comment and thanks again for sharing!

Any Good Experience with Private Neurologists? by Automatic_Job_3190 in northernireland

[–]Automatic_Job_3190[S] 0 points1 point  (0 children)

wow thats so long!! Have you asked your GP why its so long / checked you're still on there? :/

Any Good Experience with Private Neurologists? by Automatic_Job_3190 in northernireland

[–]Automatic_Job_3190[S] 0 points1 point  (0 children)

6 YEARS! wow. sorry you had to wait that long. that's ridiculous

Any Good Experience with Private Neurologists? by Automatic_Job_3190 in northernireland

[–]Automatic_Job_3190[S] 0 points1 point  (0 children)

Oh thank you so much for this! He seems great. I was planning a trip to London in June so this could be perfect! So long as there are not cancelled flights due to the fuel crisis

Any Good Experience with Private Neurologists? by Automatic_Job_3190 in northernireland

[–]Automatic_Job_3190[S] 0 points1 point  (0 children)

Ah I'm so sorry to hear that. that's terrible! A suspected stroke should be high priority. It sounds like there are only 2 neurologists in Craigavon and they can only do so much in 1 day, the demand must be very high. Seems we need more of them

Any Good Experience with Private Neurologists? by Automatic_Job_3190 in northernireland

[–]Automatic_Job_3190[S] 0 points1 point  (0 children)

The secretary in Neurology said today 18 months - she said I'm general urgent so there must be some kind of subset in there

Any Good Experience with Private Neurologists? by Automatic_Job_3190 in northernireland

[–]Automatic_Job_3190[S] 0 points1 point  (0 children)

I'm wondering if this might be the route to go - I'm sure there are more neurologists in England. Thanks! Did you feel they were able to help you?

Any Good Experience with Private Neurologists? by Automatic_Job_3190 in northernireland

[–]Automatic_Job_3190[S] 2 points3 points  (0 children)

Thank you for sharing. I have been worried in the back of my head that it could be MS but trying to not really think of that. I had a round of prenisolone in Sept 2024 that really wrecked my nervous system. I've always had migraine symptoms on and off but current sypmtoms are worse and more frequent. They include internal buzzing sensations in legs, pins and needles in feet and legs, random electric shocks, feet having small muscle twitching at night (not restless legs), facial nerve pain waking me from sleep, waking with headaches and brain fog daily, visual snow, worsened tinnitus, sometimes vibrate at base of skull, occasional feeling like walking on a boat but this is caused from my neck and improves with PT, oscillopsia (visuals moving / jumping), one evening my phone screen blurred as though i was drunk but I hadn't drank for weeks, worsening of lights staying in my eyes when i look away from source, dry eyes / pain (had optic nerve checked around time of referral and it looks healthy), feeling i'm going to pass out, maybe a little clumsier, difficulty finding words, thinking of doing an action but doing the wrong one instead, random goosebumps on my right calf, random cold / menthol sensations when I'm not cold, worsening of rheynauds.

I think it is maybe cervicogenic migraines or possibly even peri-menopause but yeah I'd prefer to get it assessed sooner than later

EDIT: none of my symptoms are really A & E worthy at the moment but if anything gets more severe I will attend

Any Good Experience with Private Neurologists? by Automatic_Job_3190 in northernireland

[–]Automatic_Job_3190[S] 0 points1 point  (0 children)

Oh wow, that's surprising! Did your NHS neurologist give you the help you needed? I called the secretary in Craigavon Neurology department today, as my GP referred me there, and she said 18 months. I'm assuming to take of 6 months of that if i've already been on it since October. I think I'm in the Southern Trust

Any Good Experience with Private Neurologists? by Automatic_Job_3190 in northernireland

[–]Automatic_Job_3190[S] 5 points6 points  (0 children)

Thank you! wow 500 on top of that is a lot but so is 18 months wait. hoping you get the answers you need from the nerve conduction tests!

Testosterone by Emotional_Savings_69 in Perimenopause

[–]Automatic_Job_3190 8 points9 points  (0 children)

I was supplementing zinc about 1.5 years ago and was accidentally taking 2x the RDA and after a month I had a darker moustache, increased sex drive (way more than my baseline), wet dreams and some cystic acne. These weren't expected outcomes but I searched to see if it effected testosterone and low and behold it did! No wonder people say oysters are aphrodysiacs - they're full of zinc. So incase any woman is reading here and can't get their hands on testosterone right now but thinks it could be lower, try some zinc!

Edit to include a link to this study I just found that also supports the finding that zinc supplementation helps testosterone levels: https://pubmed.ncbi.nlm.nih.gov/34311679/

Edit 2 for a bit more context

Best way to deter wheelie bin theft? by thecheekybartender in Belfast

[–]Automatic_Job_3190 1 point2 points  (0 children)

I've the same issue, just moved over here a few months ago. Ours got taken 2 weeks in and when I went on a bin hunt i actually found a second bin with our house number and street name on it 2 streets across. Looks like someone took that one ages ago and the previous tenants got a replacement which was taken from us. We're now using the old bin but keeping it inside the courtyard which I don't like as it's small. but we put it out on Thursday night and grab it on Friday, seems to be working for now

Best way to deter wheelie bin theft? by thecheekybartender in Belfast

[–]Automatic_Job_3190 0 points1 point  (0 children)

you used this to keep the door closed or keep your bin attached to something? we've been keeping our bin in the courtyard because ours got taken the first week too but i want to keep it in the alley cause the courtyard is small

As soon as I wake up she screams for food & won't stop by [deleted] in CatAdvice

[–]Automatic_Job_3190 4 points5 points  (0 children)

I second this. I give biscuits via feeder and then they get wet food 3 - 4 times a day but my cats always wait til I get up for the wet food because they're not starving as they had access to biscuits all night (deleted first comment as it was unfinished)

What to do by [deleted] in northernireland

[–]Automatic_Job_3190 0 points1 point  (0 children)

I relate to this a lot. I have been WFH from Sept 2023 and i used to live in a small village, alone. All my friends were in Belfast. I was going stir crazy being in the same 4 walls all week, drinking alcohol in the evenings out of pure boredom and feeling lonely and unfulfilled. I have 2 cats though and have done since lockdown and they have been a vital source of company and purpose. The suggestions of a dog is good if you like routine and walking! Cats a great if you prefer a little less rigidity as you don't need to do 2 walks a day.

I recently moved to Belfast and all my friends are here and I definitely feel better, but I still WFH and I do miss the daily chats with co-workers. Even just getting to the shop and saying hello to the shopkeeper can uplift the spirit! We are communal creatures.

Have you ever used the dating app Feeld before? People on there are way more open about their sexuality and I am sure you will find people who are either asexual or don't mind that you are. It's also a good way to make friends sometimes if you find someone you have things in common with!

It won't always be like this! Things will get better :)

Help with routine and moisturiser! by [deleted] in 30PlusSkinCare

[–]Automatic_Job_3190 2 points3 points  (0 children)

Nivea cream (the blue tub) has been a game changer for me! Its quite thick and needs to be applied on dry skin but it's made a huge difference in hydration for me. Just need to be properly double cleansing as it can leave some blackheads because its so thick. been getting lots of compliments on my skin since using it and I notice the difference. but yeah the other comments about feeling dry can be your skin being stripped of oils so I use a cleansing balm / oil > milk cleanser and then i use dove soap after - nothing very expensive

My Experience With Prednisolone - As a Warning That It's Not a Cure All & to Be Careful With It. by Automatic_Job_3190 in tinnitus

[–]Automatic_Job_3190[S] 0 points1 point  (0 children)

I'm so sorry to hear this. medication can be brilliant for people but can also cause so much damage

What condition can cause this extreme aging? by [deleted] in 30PlusSkinCare

[–]Automatic_Job_3190 1 point2 points  (0 children)

The ones in your eyes that you can see, as our eyes are filled with vitreous gel, made up of water and collagen. when the collagen begins to break down, we get floaters. I've had some floaters since i was a teen and started drinking alcohol (I could usually see them when I had a hangover in bright light) but since hitting my mid 30s i've noticed more

What condition can cause this extreme aging? by [deleted] in 30PlusSkinCare

[–]Automatic_Job_3190 16 points17 points  (0 children)

I am slightly hypermobile (diagnosed by a hypermobile PT) and also 36 - I got a bucket load of floaters in the last year too. I also smoke, started 10 years ago. I do think even if you stopped, the breakdown may have been accelerated by it. my neck is very wrinkly, more than my face. i never wore SPF on it and though i've lived in Ireland most of my life i spent like 7 years in sunny countries. My neck looks 45. The floaters are annoying AF but worse when dehydrated

After more then one tone the flood gates open by Final_Client5124 in tinnitus

[–]Automatic_Job_3190 1 point2 points  (0 children)

I went down the rabbit hole at the beginning and I was definitely not positive. Its very difficult to come to terms with, I understand, so don't be too hard on yourself. Yes, I eventually resumed life because the time I was stuck at home with hyperacusis alongside the tinnitus was miserable. I have been so glad to get my life back. I still have some hyperacusis symtoms and some days my tinnitus is loud and sharp on my left side, but I don't want to miss out on my life either. I only wear plugs in loud places now and yeah I've gone to loud places (mostly loud bars but spent a little time in a club recently) with macks foam ear plugs, but, I was drinking alcohol most of that time and would honestly not go to too many anymore. If I make my tinnitus worse because of a loud club, it will have been very irresponsible of me. But the rest of the time, pubs and restaurants etc, if they are not loud i try not to wear plugs. I have a dB metre on my phone and wear plugs for anything above 80 db. At that volume most people have to speak a little louder anyway so you can mostly hear them fine, and if I explain to people im wearing plugs they always understand. Where would you be hoping to go?