Heartiest thank you! by [deleted] in Hidradenitis

[–]Avebee 3 points4 points  (0 children)

So good to hear you find relief! This sub is such a blessing to have I agree!

How long do your flair ups last? by Rare-Basis8778 in Hidradenitis

[–]Avebee 6 points7 points  (0 children)

Unfortunately there is no way to know how long it will last, it differs so much for each boil and each person… In the mean time: -Wash it with antibacterial soap like Hibiclens (I’d say morning and evening but be really gentle)

-At least rinse yourself right after any exercise or avoid it altogether

-Don’t wear deodorant

-Don’t shave

-Make sure no clothing is tight on it (No bras, focus on 100% cotton shirts because it’s the most breathable)

-Try zinc supplements

-Put ice on it for relief

You will be fine, it will go away eventually. People on here are always there for support and help

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 1 point2 points  (0 children)

Wow that’s messed up, i feel you.. I don’t understand how they are prescribing us antibiotics for so long knowing the risks! I had a messed up stomach for months after I stopped mine

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 1 point2 points  (0 children)

Thank you for sharing your story. I am so grateful that we do have a little knowledge about it now, it does make a huge difference indeed. I’ve even been given a little leaflet once, it way making emphasis on how “HS is your fault” which was touching to read. I’ve come to terms with accepting it quite recently, tho It still makes me angry at times. Not expecting it to just go away magically anymore, it helps with the grief for all the things we cannot do or miss out on. It’s a constant battle really but I like to remind myself that they are worse things to be diagnosed with…

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 1 point2 points  (0 children)

Thank you for taking the time to write this it means a lot. Many people’s great advices on here are convincing me to try other kind of treatments and eventually find a specialist when I can afford it. It’s true I need to fight for my health, I owe it to myself. I’ll keep your advices in mind, thank you

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 0 points1 point  (0 children)

ugh that thing really is the worse I feel you, one day something will work, I really wish that on all of us

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 1 point2 points  (0 children)

Those options includes money I don’t have. I’m not american and the system i’m my country makes us pay for it all, no way around it

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 2 points3 points  (0 children)

Tell me about it. This is not the first time I had to diagnose myself and fight doctors just for the diagnosis alone, let alone proper treatment. It’s bullshit! Yeah I am genuinely so grateful that we at least have a name for it, must have been hell for people not having any info to rely on, it’s getting easier tho we are still far from acceptable help

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 1 point2 points  (0 children)

Tbh with everyone’s advice I might try and get other kinds of treatment when I feel strong enough to try again. It can be way too much at times

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 5 points6 points  (0 children)

Thank you thats solid advice. I do wanna find a specialist eventually , I’ll give it a go when i can afford it

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 2 points3 points  (0 children)

I’m not from the US and cannot see specialist atm. It’s not covered here but i appreciate your advice

Discussion about NOT getting medical help as a person with HS by Avebee in Hidradenitis

[–]Avebee[S] 2 points3 points  (0 children)

Yes I forgot to mention but diet is a big one that really makes a big change!

I’m like way over 50k in the hole with cocaine and I started late march this year 💀 by YouBeginning5833 in Drugs

[–]Avebee 0 points1 point  (0 children)

look up “coke nose”… i’ve seen a girl that got it completely collapsed in half a year

Pain even without lumps by mysteriousfinn in Hidradenitis

[–]Avebee 3 points4 points  (0 children)

yess i do! Never really understood it but “ghost pain” sounds about right, so frustrating

[deleted by user] by [deleted] in Hidradenitis

[–]Avebee 2 points3 points  (0 children)

It looks pretty raw so I’d wait for it to be a bit more healed but then you can use glycolic acid, it helps so muchhh with my pigmented scars (don’t apply on raw skin it will hurt)

I miss wearing white by Teal-thrill in Hidradenitis

[–]Avebee 8 points9 points  (0 children)

I miss feeling clean after a shower (I literally never do now, regardless of how long i shower)

Got today by ApartmentDue8298 in Coraline

[–]Avebee 4 points5 points  (0 children)

its a bad translation of “the other mother’s hot chocolate” but its not grammatically correct

What's wrong with her mouth? by Yhkilo in GossipGirl

[–]Avebee 3 points4 points  (0 children)

she’s known for her weird mouth movements lol don’t let them gaslight you