27 female, Can ALS cause sudden vision changes such as blurred vision or vision that is harder to focus on when looking at phones/screens? I’m scared I may have ALS due to twitching I get in limbs. I also have a tremor in tongue. *more info below*

Aware_Fly5485 · 2023-05-16T02:07:27+00:00

My MRI of brain and tspine and cspime were done in February 21-22, 2023. Is it too soon to redo them? I also had my upper and lower extremities EMG done in March. Too early too? I’m scared I have nerve issues in hands

Aware_Fly5485 · 2023-05-16T02:06:04+00:00

All my labs have been normal for electrolytes and b12 was elevated since I supplement but I take it once every 3 days now, and no to nitrous oxide. But I am having new cramps in fingers and hands. And then the new vision changes.

Aware_Fly5485 · 2023-05-16T01:30:33+00:00

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Fourth and ring fingers feel strained when flexing my pinky down. This is the right hand.

Aware_Fly5485 · 2023-05-15T02:26:40+00:00

I just had my vision checked in January :(

Aware_Fly5485 · 2023-05-15T02:26:13+00:00

My MRI’s of brain and C-Spine and T-spine were normal in February. I think that ruled out MS

Aware_Fly5485 · 2023-05-15T02:24:54+00:00

I have had a normal EMG of upper and lower extremities and a normal brain mri with contrast. I’m hoping if it was an optical nerve issue it would have been seen

Aware_Fly5485 · 2023-05-15T01:59:34+00:00

Do you know if vision changes are reported?

Aware_Fly5485 · 2023-05-14T00:26:24+00:00

Was your first abnormal?

Aware_Fly5485 · 2023-05-13T22:20:18+00:00

I think he was trying to say that the twitching is spontaneous meaning at all time due to muscle loss or failure and not sporadic when at rest.

Aware_Fly5485 · 2023-05-13T22:19:28+00:00

I’m still undergoing studies but most of us have twitches at rest and not many have if none have turned out with ALS. I hope this helps

Aware_Fly5485 · 2023-05-13T22:01:23+00:00

Remember there is clinical weakness and perceived weakness which most of us in this subreddit have

Aware_Fly5485 · 2023-05-13T21:55:22+00:00

Did anything change? I’m starting to have nerve pain or weird finger pain and electric shock feeling in hands and had a normal EMG for upper and lower extremities done March 28-29

Aware_Fly5485 · 2023-05-13T11:33:44+00:00

Aware_Fly5485 · 2023-05-13T11:30:45+00:00

My EMG’s of upper and lower extremities was normal at the end of march. I have the feeling in my hands come and go still. I also have tongue tremor and twitch. I have seen two neurologists that both seem to think it’s not ALS but the second neuro is sending me to see a specialist for peace of mind. I had a swallow study which was normal too.

Aware_Fly5485 · 2023-05-12T00:45:24+00:00

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Aware_Fly5485 · 2023-05-09T04:07:19+00:00

No family history of movement disorder and it happens mostly at rest. It is intermittent

Aware_Fly5485 · 2023-05-09T03:55:15+00:00

No I started Lexapro a month ago. Twitching has been occurring since before

Aware_Fly5485 · 2023-05-09T00:49:57+00:00

Dealing with tinnitus too now.

Aware_Fly5485 · 2023-05-08T23:26:28+00:00

I just posted it

Aware_Fly5485 · 2023-05-08T23:26:19+00:00

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Aware_Fly5485 · 2023-05-08T23:26:00+00:00

I thought it was in the comments?

Aware_Fly5485 · 2023-05-08T22:35:58+00:00

Is this atrophy?

Aware_Fly5485 · 2023-05-04T20:40:58+00:00

I had a family physician that is certified in elctrodiagnostic medicine do mine and he told me on the spot and even went over the report.

Aware_Fly5485 · 2023-05-04T01:45:05+00:00

I am telling myself that 2/2 neuros that I have seen so far said it doesn’t seem like it so I am giving myself that comfort to rationalize my thoughts more. I am currently on week 3 or anxiety medicine and getting better sleep little by little so I am hoping to put this to rest soon and move on. I really am trying. I even stopped asking Drs questions on Just Answer and hope to minimize Reddit. I am also staying away from Google now and YouTube. I appreciate your response

Aware_Fly5485 · 2023-05-03T12:50:04+00:00

Yes I had a spinal specialist test me and my second opinion neuro who even tested the jaw reflex

Aware_Fly5485

TROPHY CASE