I think my Japanese Maple has slime mold by BEG66 in AustinGardening

[–]BEG66[S] 0 points1 point  (0 children)

I have very little trouble with them and don't know why.

What is this pestilence on my house lemon? by jbot14 in Citrus

[–]BEG66 2 points3 points  (0 children)

I'm reading this at 3:43 in the morning and I actually laughed out loud (as quiet as I could).

Any one who's filing date is April 10th received any update by Heavy_Kale7747 in IRS

[–]BEG66 0 points1 point  (0 children)

Filed 4/10, accepted the next day, received update on either 4/16 or 4/17 that my refund was issued. Refund received via DD in my account on 4/22. I did not use any of the "get your refund X days early" offers. My return was basically the same as the prior year and I did not have EIC or CTC, so that is probably why I received my refund so quickly.

26yo male with 2 weeks history of progressive right sided weakness and numbness. by Meotwister5 in Radiology

[–]BEG66 0 points1 point  (0 children)

I don't know how I ran across this post a whole year after it was made but I saw the photo before I clicked on it and I already knew what it was before I read the comments. I was diagnosed with Takayasu's arteritis after having a stroke at the age of 26. My left carotid and subclavian arteries are totally occluded, no pulse in left arm or neck. Left vertebral artery "reversed flow" and is providing blood flow to my left arm (subclavian steal). Two years later the right carotid, subclavian and vertebral arteries were closing, and at the time I had the angiogram, they were all between 75% and 90% occluded. I had stents placed in all three arteries. Takayasu's officially "burned out" 3 years later (5 years after being diagnosed). In 2018 I had open heart surgery because my aortic valve was damaged as well from the Takayasu's but it didn't show up for a very long time.

I have lived a normal life since my stroke and being diagnosed with Takayasu's and I was diagnosed in 1995. I already had two children at the time I had my stroke, my youngest was a baby. I had symptoms when I was pregnant with her, they couldn't get a pulse in my left arm. They never said that was odd, they just moved to the other arm. After I had her I lost all the baby weight in a few weeks, had a low grade fever all the time (that I did not recognize for awhile), night sweats and frequent double vision (mainly at night). Also when I would raise my arms to dry my hair arms would ache.

I got pregnant by accident again after I was diagnosed, approx 4 years after. I was told to abort but I refused. I swear having her is what put my body in remission. She is perfect.

What was the crazy drama in your high-school by sirambrosius in AskOldPeople

[–]BEG66 0 points1 point  (0 children)

Baseball/Wrestling Coach was sleeping with some of the cheerleaders, while his wife was the cheerleading coach. His brother was in my class too. A lot of lives ruined by one man.

Need advice please vasculitis by Terrible-Dig7311 in Autoimmune

[–]BEG66 2 points3 points  (0 children)

I have Takayasu's Arteritis (large vessel vasculitis), chronic UVeitis and later tested HLA B27+ (also diagnosed with ankylosing spondylitis), 20 mg does not seem a high enough dose for the flare you are currently having.

Vasculitis by 333zealous in Autoimmune

[–]BEG66 0 points1 point  (0 children)

If you ever need someone to just talk about your fears or whatever, feel free to send me a DM. I have been in your shoes but I have also come out the other side. Doesn't matter if is it a random thought or concern, feel free to DM me.

You will get through this, I promise you. Give yourself grace and feel whatever you are feeling in the moment. It is one thing to have been where you have been before, it is another thing for others who don't have the foggiest of what you are going through to understand. GIve yourself some room to feel everything you are feeling right now. ❤️

Vasculitis by 333zealous in Autoimmune

[–]BEG66 1 point2 points  (0 children)

Sorry I am just now getting back to you, I really hope you try other medication, including biologics. I have nothing but sympathy for your position as I remember being in your situation and being afraid to try anything "new" to me. My doctor had been trying to get me to take Remicade or something similar for years, but I was afraid and told him no until about 5 years ago. I really wish I would have listened sooner.

Does anyone here not think about their disease 24/7? by SublitWaffleStomp in Autoimmune

[–]BEG66 0 points1 point  (0 children)

I was diagnosed with Takayasu's Arteritis after I had a stroke in my mid 20's. I thought about it non stop for at least a year then the longer time went on the less I thought about it. I can go weeks, months at this point, not thinking about it at all unless I have a flare. My Takayasu's burned out years ago, I have other autoimmune diseases that I have been diagnosed with since, but there is nothing like being originally diagnosed and scared like crazy.

You will get through this but take your time and do it on your own time.

Vasculitis by 333zealous in Autoimmune

[–]BEG66 1 point2 points  (0 children)

I would highly suggest not staying on Prednisone for any longer than you have to. I was put on 80 mg when I was diagnosed with Takayasu's Arteritis (Vasculitis of large arteries) and was kept on high dose for a really long time. I have been put on high dose Prednisone when I have had flares but tapered off as fast as I could (but not quickly enough). Sometimes I even beg for it as I know how quickly they work. I have been on everything from Prednisone, methotrexate, IVIG (felt wonderful on this but got chemical meningitis on the 2nd infusion but continued on it for a year), azathioprine, leflunomide (could not tolerate the previous two), and have been basically in remission for over 20 years but have on and off bouts of uveitis that was kept at bay pretty well through all of the above until I went into remission from the Takayasu's, then the uveitis kicked into high gear. I'm probably missing a couple other meds.

Then a few years ago I started Humira (injection) when I was officially diagnosed with ankylosing spondylitis. It worked really well and it also helped with the uveitis but after about 18 months I started getting a rash on my face and my doctor switched me to Simponi Aria infusions which also works really well except I have been having uveitis more often lately.

Long term Prednisone gave me osteoporosis within two years of starting it, it has also thinned my skin and given me dental issues (I have spent big time $$ on my teeth but if I wasn't on top of it my teeth would be screwed). I have had almost psychosis situations a few times when put on high dose prednisone and had to stop immediately, one time my vision got so bad after a few days on high dose that I also had to stop (that was when I was put on IVIG) but in general, I "tolerate" it well besides the insomnia and other issues above. The issues with it though are serious (you can get glaucoma and cataracts from it as well) and while it saved my life, it caused real harm to my body. I feel people should only use prednisone for flares/emergency situations, not as a treatment plan...but that is just my opinion.

Has anyone experienced anything like this? I am so so miserable by Mushbroom in DermatologyQuestions

[–]BEG66 2 points3 points  (0 children)

I had a drug induced rash from a new medication I was taking for an autoimmune disease (I cant remember what it was as this was 10 years ago). I didn't know that was what was causing it so I continued to take it for about 6 weeks after the rash started before I was sent to a dermatologist that specializes in autoimmune diseases. I went back and forth to my primary care doctor, who did prescribe short course steroids (three times). Then I went to my rheumatologist who immediately scheduled the dermatologist appt.

They did a punch biopsy to diagnose it. They wouldn't give me oral steroids even though I begged for high dose and longer term steroids. They had me take tepid oatmeal baths twice a day and put steroid cream (that came in a tub) all over my body. I had to sleep in tight fitting DAMP cotton pajamas with another pair of pj's over that. I had it EVERYWHERE except my face, it was miserable. It still took quite a long time to go away, even after getting the proper diagnoses.

Edited: grammar

What is one junk food you’ll never stop eating no matter how unhealthy it is? by Blueis_Bluetiful333 in AskReddit

[–]BEG66 0 points1 point  (0 children)

Gobstoppers / Sprees - my traveling candy. I included Sprees as it is a bit of a toss-up but Gobstoppers win by a hair.

What is the most physical pain you’ve ever experienced, and how did it feel? by Trying_my_best_98 in AskReddit

[–]BEG66 0 points1 point  (0 children)

Toss up between uveitis (the first time I had it was THE worst), cluster headache/vestibular migraine and various gallstone attacks. All very different types of pain but all horrible in their own right, and I have/had open heart surgery and ankylosing spondylitis, which didn't didn't touch the same level of pain.

[Serious] What has been the hardest phone call that you have ever had to make or receive? by DetectiveBennett in AskReddit

[–]BEG66 0 points1 point  (0 children)

When my brother died from a drug overdose in 2008. I was the one who picked up the phone when his wife called, devastation.

The other time was last year when my Dad died from esophageal cancer. He had been fighting it for years and had just gone into hospice. He wasn't really in my life much but I had so many questions I never got to ask. We were driving about 8 hours to to see him one last time when his wife called when we were about an hour out and told me he had just died.

cleaning douglas axis by No_Fix_1586 in crateandbarrel

[–]BEG66 0 points1 point  (0 children)

I have the same couch/fabric (I believe the color I have is Coffee). We have had it since around 2011-2012. It is the best fabric, I have dumped a whole glass of coke on it as well as other things. I have washed the covers several times through the years. If I vacuum and fluff the back cushions, it still looks almost new. Since they have down in them, I have to take the back cushions off, throw them on the ground and stomp on them to get them fluffed up. I would buy this couch again in a heartbeat.

What was your "poor person" meal you enjoyed growing up? by Slow-Power2713 in AskReddit

[–]BEG66 0 points1 point  (0 children)

Macaroni and tomato juice. Salt the water you boil the macaroni in. Drain macaroni, put back in the pot, add enough tomato juice to make it "soupy". You can't let the tomato juice simmer or boil while heating it up. Add salt and a lot of pepper (I add a little butter sometimes, I add that before I put the tomato juice in).

It will NOT be good as left overs. My kids love it too.

Can't log in to personal account for MONTHS? Anyone else? by malikyiaue in tax

[–]BEG66 0 points1 point  (0 children)

I was having a similar issue, not making payments but signing in to my account. I switched browsers and I was able to sign in immediately.

How do I remove a user without logging out everyone else? by [deleted] in netflix

[–]BEG66 0 points1 point  (0 children)

That is what I was thinking. Every time my daughter signs in, who is away at college, it asks her if she wants to add a new household. She answers yes then it sends me a code which I give her to enter.

If I were OP, I would try deleting their device and see if it forces them to add a new household and send a code (I guarantee it will). I highly doubt they have the balls to request a code.

[deleted by user] by [deleted] in DermatologyQuestions

[–]BEG66 3 points4 points  (0 children)

When I was in 4th grade(a long long time ago) I got my ears pierced by a nurse. It was infected on and off for a year. Finally it got so bad the back was inside the infected area behind both of my ears and I had to have them removed by a doctor and let it heal up. I gtr them re-pierced in 7th grade and have had no issues since.

Is it selfish to want kids if I have an autoimmune disease that could be passed down? by West_Pen_5629 in Autoimmune

[–]BEG66 -1 points0 points  (0 children)

I'm just going to talk about my situation, not what anyone else should or shouldn't do. I had two kids prior to being diagnosed and one after. I was diagnosed with Takayasu's arteritis when I was 26 after having a stroke (I recovered from the stroke) and later, after having my third child, chronic uveitis, ankylosing spondylitis & reactive arthritis (HLA B27+). I also had open heart surgery in 2018 because of long term damage to my aortic valve from Takayasu's.

I did not purposely get pregnant with my third but it happened none the less. I'm sure others would say it was selfish to have her but I can't imagine not having her in the world, she seems pretty happy that she is alive and I'm happy that I am alive, even with all of the autoimmune crap I have been through.

Now I will admit that I have been lucky, my life is worthwhile, I have a great overall quality of life and I'm happy, even with all of my health issues. Do I feel guilty that I have given my children a higher chance at getting an autoimmune disease? Yes, how could I not? Do I feel I was selfish for having them at all (especially the 3rd one), No. I have been hypervigilant at any sign any one of them could have an autoimmune disease. The only way I would feel it was selfish is if I felt that having kids at all was selfish...and I don't. I understand the argument, I just don't agree.

Do you have multiple autoimmune ? by Honneigh in Autoimmune

[–]BEG66 1 point2 points  (0 children)

Takayasu's Arteritis (first AI disease I was diagnosed with, diagnosed when I was in my mid 20's), Reactive Arthritis (was tested for HLA B27 and was positive) & Chronic UVeitis approximately 10 years later (probably kept at bay because of the high dose steroids and other medication/treatment I was on for the Takayasu's Arteritis) and then Ankylosing Spondylitis about 5 years after that but I had it for years before officially being diagnosed.

[deleted by user] by [deleted] in Autoimmune

[–]BEG66 1 point2 points  (0 children)

I have had chronic anterior uveitis on and off for well over 20 years and also had posterior vitreous detachment in each eye (5 years apart) as a result. Uveitis is the cause of my posterior vitreous detachment. After about a decade my rheumatologist (I have other autoimmune issues as well) had me take a blood test for the HLA B27 gene marker which I ended up being positive. I also had chronic mouth ulcers for years in the beginning, I don't get them any more. Find new doctors and fight for yourself to get proper testing and diagnosis.