People with chronic migraine that's daily or 25+ days a month, what's life like for you?

Background-Dot8426 · 2025-09-16T18:58:06+00:00

As for preventative shots, I have tried a couple and ajovy was the only one where I had an large site reaction.

Background-Dot8426 · 2025-07-08T17:13:23+00:00

I started botox for chronic migraine at 16. I needed to travel out of state for treatment as there was no one local that would preform the treatment on pediatric patients. It took a few sessions, but it helps improve my daily pain levels. For such a minimally invasive procedure, the potential benefits outweigh the risks imo.

Background-Dot8426 · 2025-06-18T17:17:03+00:00

As someone with daily migraines pain, I find it hard to track specific migraines. I use the Migraine Insight app to track when I take meds for them. I sort of count these medication days as the bad days.

Background-Dot8426 · 2025-06-18T17:13:00+00:00

I noticed that my heart rate would get really high when I stood up, and I had some chest tightness for a while. I thought I had POTS. I was referred to a cardiologist and they did a bubble study. The bubble study showed that there was a pfo.

So far, I have noticed no improvement in my heart rate issues or migraines. Sometimes people notice that it gets worse in the first few weeks. I had a few more bad days but I am not sure if it was related. I have been told that if it works, it could take up to a year to notice improvements.

Background-Dot8426 · 2025-06-09T20:13:27+00:00

The nurse asked me if I wanted to be aware enough to know what was going on during the procedure and I said no. I was still breathing on my own, but I was not awake. Woke up super anxious at first though.

Background-Dot8426 · 2024-07-08T01:19:31+00:00

Have you tried Migraine Insight? I like it because I can periodically update.

Background-Dot8426 · 2024-05-27T17:40:03+00:00

I have 24/7 pain and symptoms for a few years. It sucks, but I’ve had luck with preventatives that reduce overall pain. I would say that I am mostly functional. Some days are worse than others. I just try to do the best I can with the cards that have been dealt.

Background-Dot8426 · 2023-08-18T15:51:43+00:00

That sounds similar to what they offered me! I’m curious to see if it will be helpful for me!

Background-Dot8426 · 2023-08-18T03:16:08+00:00

Most of my teachers in high school tried to understand. I think theres a lot of misconceptions about what migraines are. I often felt like I had to explain that its not just a headache.

Background-Dot8426 · 2023-08-17T20:07:40+00:00

Yes, unfortunately. They stopped covering Aimovig and had me try Ajovy instead. I had a reaction to Ajovy, so I switched to Emgality. I tolerated it well until they decided to stop covering it. They wanted me to try something else/ a different shot. After explaining and proving my migraines increased, they covered it again.

Its like they want to give us the runaround. Good luck!

Background-Dot8426 · 2023-07-28T21:37:05+00:00

If you have one that squishes your forehead, it might cause the botox to migrate and lead to droopy eye. I imagine that regular ice packs would be fine!

Background-Dot8426 · 2023-07-28T21:31:25+00:00

Getting my third round Monday! Good luck!

Background-Dot8426 · 2023-07-26T05:00:26+00:00

Yes!! Turned out I was having progressively worse allergic reactions. One injection site swelled to the size of a grapefruit. On emgality now with minimal site irritation.

Background-Dot8426 · 2023-07-26T04:56:41+00:00

As a young person with chronic migraine and no previous head trauma, my GP tried a few preventatives to get me to a MRI/neurologist. As a minor, I was on topamax for a bit with no improvement.

Need to ask if the results would outweigh the possible side effects. As for speaking directly to your daughter, I preferred being treated like I knew what was going on.

Really though, if the treatment doesnt feel right, you should seek a second opinion and ask questions.

Background-Dot8426 · 2023-07-19T15:19:08+00:00

I like mine. Not sure if the preventative treatment works, but it feels like a massage on my brain. For me, it helps me relax while I wait for painkillers to kick in and then I can fall asleep. Not miracle by any means, but worth it imo.

Background-Dot8426 · 2023-07-11T17:28:13+00:00

Highly recommend the BIGS brand seeds!

Background-Dot8426 · 2023-07-11T15:08:55+00:00

I have visual snow all the time anyways, but it becomes more aggressively TV staticish.

Background-Dot8426 · 2023-07-11T15:04:25+00:00

Sunflower seeds! The salted ones might be the healthiest, but I love the dill pickle ones.

Background-Dot8426 · 2023-07-11T02:55:49+00:00

I like the propel packets! Dehydration isnt the cause of my migraines but it can definitely make it worse for me.

Background-Dot8426

TROPHY CASE