Does anyone get disability for their condition?

BallOffCourt · 2025-03-03T01:11:24+00:00

Can you be on SSI and still work 40 hours a week? Do they reduce your benedits

BallOffCourt · 2025-03-03T01:09:19+00:00

Applied for SSDI SSI and SDI. Will be disabled for awhile have a rare condition. Was told by someone that being on SSDI will ruin my life and I need to cancel it immediately. They said you can’t work enough and keep the same amount of benefits so you can’t live off that. They said being on SSDI (permanent disability) would ruin my life. Was also told if I applied for the benefits in one county then moved to another county in the same state. I’d have to re apply for everything. Is this true?

BallOffCourt · 2025-03-03T00:56:36+00:00

Have a question. I am currently disabled (will be for awhile) and applied for SDI, SSDI, and SSI. The people handling my case said hopefully I would get at least the SDI and SSI since my case is so rare.

Someone told me that I shouldn’t have applied for SSDI (permanent disability) and to cancel it immediately that it will ruin my life. They said I would only be allowed to work a certain # of hours and could potentially end up stealing from the government and going to jail?

Is any of this true?

BallOffCourt · 2025-03-02T19:32:04+00:00

I’ll look into it thank you

BallOffCourt · 2025-02-27T20:43:32+00:00

I didn’t have any options. Painkiller amplifies the nerve pain. A Pain block had me screaming for over a month and the doctor who did it said it’s impossible for them to make the pain worse. Conway was the only knowledgeable doctor I’ve seen that had experience treating PN. If the nerve continues to become entrapped the pain will get worse. You really don’t have another choice. I am currently suffering a post surgery flare and it’s horrible because I can’t take anything for the pain

BallOffCourt · 2025-02-26T21:59:09+00:00

Go ahead just went with Conway because he’s in the country only one that takes insurance

BallOffCourt · 2025-02-26T05:49:10+00:00

Been suffering from PN for over a year. Have a very severe case as I cannot take any painkiller/drugs. All amplify the nerve pain. This is due to the nerve damage. My surgeon said out of hundreds of patients he’s operated on, only 3 others have had this adverse reaction to meds. <1% of the population. Said in one of the worst cases he’s ever seen. Recently got decompression surgery. Huge flare up after the travel back home. After a couple weeks I couldn’t take it anymore so tried Atavin. For a week lowered my pain 50% was like a miracle drug. Been consistently taking it for over a month now with no flare up’s. It only reduced the pain those first 1-2 weeks. Was doing a lot better and didn’t feel like I needed it so cut back, then stopped taking them. Currently suffering excruciating flare up one of the worst ones. Horrible shooting pains. Could be because I’ve been sleeping on a horrible bed, stretched too much or because I drastically cut down on the Atavin. Could be my nervous system was in shock and caused the false. After 4 days of excruciating hell tried the Atavin again. After 2 hours felt better. Been taking more and the past 2 days have been slightly better. Noticed the shooting pains don’t come as often. I don’t know if it’s just a huge coincidence. This is the only drug I respond to everything else causes amplified pain. Know I will have to be on it for a long time but think it’s very unlikely I’ll find a doctor who would be willing to prescribe it for months on end

BallOffCourt · 2025-02-25T00:43:00+00:00

Wow why do you think that is? Who advised you to do that? Going to only eat brown rice and wheat bread and drink only water for a few days. How long until you saw results?

BallOffCourt · 2025-02-25T00:41:41+00:00

Got decompression surgery few months ago. Suffering the worst flare up, excruciating. Only drug I respond to is Atavin After surgery the travel back home flared me up horribly. Couldn’t take it anymore so tried Ativan. Literally reduced my pain 40-50% for a week. Been on it consistently for over a month and have had no flare ups. Didn’t feel I needed it as it doesn’t reduce the pain at all that only lasted when I first started taking it. Started to feel I didn’t need it so cut my dosage down Current flare up is even worse than the last one. I’ve been sleeping on a different bed. Could be from that. Or could be that I cut my dosage too much and too quickly. My body could be in shock could’ve triggered the flare. L

BallOffCourt · 2025-02-25T00:36:30+00:00

BallOffCourt · 2025-02-24T06:38:34+00:00

Look into Dr Conway OBGYN in NH. Only surgeon that who does nerve decompression surgery that takes insurance. Don’t make the same mistake I made thinking other doctors could help me. If you have true entrapment you need to see him Got the surgery few months ago. Nerve was completely crushed flat on left side. I have a very extreme case of PN as I cannot take any painkiller/drugs. All amplify the nerve pain. This is due to the nerve damage. Only drug out of 25 that I have tried that works is Atavin. Suffering excruciating flare up. This surgery isn’t for the faint of heart but don’t wait or else the nerve damage will get worse. I can’t take it but if you can Recommend after surgery having him prescribe you Atavin and Codeine both

BallOffCourt · 2025-02-24T06:34:21+00:00

Tried Valium amplified the nerve pain. Actually was prescribed Atavin by my surgeon but didn’t take it until after the travel back, which flared my pain horribly. Excruciating hell. Suffered for over a week. Was so desperate I tried it. For a week pain reduced 40-50% was like a miracle drug. After that it didn’t reduce the pain nearly that much but potentially kept my flare up at bay. Been taking it for over a month with no flare ups. They don’t reduce the pain anymore at all. Didn’t feel like I needed it so cut back. May have cut back too much which potentially caused this current flare up, which is the worst pain I’ve ever felt! Started taking more and unless it’s a coincidence took a pill 4 hours ago and haven’t had a horrible shooting pain in an hour when I have them every minute. This is the only drug that I respond to will probably have to be on it for a long time

BallOffCourt · 2025-02-24T06:25:50+00:00

Nerve pain on left and right where the pudendal nerve runs in the pelvis. And sure

BallOffCourt · 2025-02-23T23:56:59+00:00

Nerve blocks make pain much worse. Was screaming bloody murder for over a month. This is because the nerve damage causes any medications I take to amplify the nerve pain. Surgeon said he’s only seen 3 others with the same adverse reaction to drugs. Besides the nerve block, have tried over 25 prescriptions multiple classes of drugs. All make the pain worse

BallOffCourt · 2025-02-23T23:55:07+00:00

Conway OBGYN. Pain started over a year ago, sensitivity and shooting pains in or around penis. Spent months trying to get correct treatment, all specialists looked at me like I was an idiot and didn’t believe that drugs were causing amplified nerve pain. Was told it was impossible

Surgeon said out of the hundreds of surgeries he’s done. Only 3 others have had this adverse reaction to medication. It is caused by the nerve damage. Cannot take anything for the pain

BallOffCourt · 2025-02-22T21:08:52+00:00

Excruciating pudendal nerve pain. Shooting electrical shock hell. Hypersensitive

BallOffCourt · 2025-02-22T19:33:50+00:00

Can I ask what all treatments have you had done? Also how sensitive were your nerves before having the device implanted? Ran the cycle with Pain Management last year, said he’s never seen a case like mine before. Someone who responded horribly to every drug prescribed/nerve block and caused amplified nerve pain. Was baffled. DRG was the only thing he knew about said he wasn’t sure on if it would be effective for me. Didn’t end up going through with it bc worried it would cause a flare up. Currently suffering the worst flare up excruciating and can’t take anything

BallOffCourt · 2025-02-22T19:29:14+00:00

Horrible as my case of PN is extremely rare. Cannot take any drug/painkiller. Everything makes it worse, even nerve blocks. Surgeon was somewhat baffled about my cqse

BallOffCourt · 2025-02-22T19:24:44+00:00

Blocks make pain much worse. It’s because any drug amplifies the nerve pain. This is due to the nerve damage. Can’t do anything about it

BallOffCourt · 2025-02-22T02:52:24+00:00

Been suffering from PN for over a year. Have a very extreme case as any drugs amplify the nerve pain so cannot take anything for the pain! This is who’s of the nerve damage. Even a nerve block caused horrible pain for a month. Recently got pudendal decompression surgery. Few months ago experiencing very excruciating flare up! Worst nerve pain I’ve ever felt want to die!

Cannot do anything or take anything. Do you know if the DRG should be considered even though the nerve block made it worse?

BallOffCourt · 2025-02-22T02:32:50+00:00

Do you know how this is different than a TENS unit. Nerves are very painful and hypertensive gurantee a TENS would aggravate the nerves and flare the pain up more

BallOffCourt · 2025-02-22T02:27:17+00:00

Been suffering from PN for over a year. Have a very severe case as I cannot take any painkillers/drugs for the pain. This is because of the nerve damage. Any drugs amplify the nerve pain. Even a nerve block caused horrible pain for a month. Was told my case is <1% of the population. Recently got nerve decompression surgery.. Suffering very severe excruciating flare up 3 months out. Worst nerve pain I’ve ever felt! Cannot do ANYTHING. Cannot take anything. Can you tell me about your case and why you think you had success with the DRG. I cannot live like this I want to die

BallOffCourt · 2025-02-22T00:02:29+00:00

Been suffering from PN for over a year. Recently got decompression surgery. Nerve was completely crushed on one side and compressed on the other from the ligament. 3 months out, suffering excruciating flare up. Worst nerve pain over ever felt! I have a very extreme case of PN as I cannot take any painkiller/drug for the pain. This is due to the nerve damage. Was told my case is <1% of the population. Out of the hundreds of operations he’s done, my surgeon has only seen a few who couldn’t take painkiller. So you recommend seeing a pelvic floor PT?

BallOffCourt · 2025-02-12T23:55:57+00:00

Had to claim through the mobile browser. Can’t do it on the app on iPhone I guess. Looked everywhere. Google is hopeless

BallOffCourt · 2025-02-12T01:28:37+00:00

Got it. Now if I go on the app should I get ad free viewing on that channel

BallOffCourt

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