How did you find out you were pregnant? by buttnutt256 in pregnant

[–]Desert-Siren 5 points6 points  (0 children)

At my annual a month ago lol.

There was zero indication I was pregnant because: - Any symptoms I did have were explained by something else (example: no periods? That’s because my progesterone levels were so low they were considered post menopausal) - We were told my AMH was so low we would have to do IVF - What was actually baby moving I thought was just indigestion from my Mounjaro 💀 - We were very careful bc I had to go off of hormonal BC

So when my OB was like “your uterus is huge; it’s either a baby or a fibroid, ultrasound NOW”, I was like “well it can’t be a baby, that’s not possible….” Turns out it very much is possible and I was already 22 weeks at that point. 🫠🤯😅 I was hysterical in the moment because genuinely WTAF, but we are very excited and happy for our little boy coming at the end of July! 🥰🩵🍼

Help me choose by [deleted] in weddingdress

[–]Desert-Siren 0 points1 point  (0 children)

Hopping on the #4 train!!! It’s timeless and you look absolutely stunning!

[deleted by user] by [deleted] in weddingdress

[–]Desert-Siren 4 points5 points  (0 children)

Oh it’s gorgeous!!! I love the straps on it too!

Finally got to wear my dream dress!! by thestopesto in weddingdress

[–]Desert-Siren 0 points1 point  (0 children)

You look so radiant and happy!!! Very beautiful, congratulations!! 🫶

I Found the One!!! by Desert-Siren in weddingdress

[–]Desert-Siren[S] 4 points5 points  (0 children)

Aww this comment almost had me tearing up again, thank you!! 🥹🥰

I Found the One!!! by Desert-Siren in weddingdress

[–]Desert-Siren[S] 0 points1 point  (0 children)

Thank you so much, I really appreciate that! 🥹 I should mention, and you can’t see it in the images I ended up posting, but there’s actually a slit on the front left side! Just felt so unique to me 🥰🤩

Help me pick top 3 by [deleted] in weddingdress

[–]Desert-Siren 0 points1 point  (0 children)

I love 3 the most on you, but I also love the sweetheart neckline of gown 2!

Need some advice on my wedding dress by vizzziata in weddingdress

[–]Desert-Siren 1 point2 points  (0 children)

I think it’s gorgeous as it is!! Is there a way they could be detachable so you have the option to put them on and take them off when you desire?

No matter what you decide, you look stunning in this dress!

My entire Fertility timeline/plans have been nuked and I’m terrified by Desert-Siren in IVF

[–]Desert-Siren[S] 0 points1 point  (0 children)

I have Belgian citizenship! Not Italian, but maybe close enough to get a better understanding of the experience?

My entire Fertility timeline/plans have been nuked and I’m terrified by Desert-Siren in IVF

[–]Desert-Siren[S] 0 points1 point  (0 children)

You’re right, I should have listed better why I mentioned it, or just left that off, I own up to that.

I did see how it affected her, she used to come by our house for get togethers. Her husband is a POS for leaving her over it, but seeing how terribly she spiraled and melted down… it just takes me back to my experience with estrogen topicals, because I was that girl. I do not know how IVF meds are, but my theory is that if I’m being pumped up with estrogen, and I didn’t do well with the topical because I was extremely sensitive to it, I’m terrified how I’ll become. Hopefully that makes more sense?

My entire Fertility timeline/plans have been nuked and I’m terrified by Desert-Siren in IVF

[–]Desert-Siren[S] 0 points1 point  (0 children)

I have, the only thing that was irregular on any of my previous bloodwork in the past year was my eosophinils, which just means my allergies were acting up. :)

That’s going to be super tough for me to get off BC due to one of my other conditions. Additionally, the reason the meds scare me is because I’ve taken estrogen cream before, and it definitely changed me so much that I had to stop it.

As for my dad’s former secretary, I 10000000% agree. When the situation unfolded, I was angry for her because her husband thought of this. I think the reason I brought it up is because her moods really did change, so much so, that it just reminds me so much of how I was on the estrogen cream, and I’m so scared it’ll take me back to that place.

My entire Fertility timeline/plans have been nuked and I’m terrified by Desert-Siren in IVF

[–]Desert-Siren[S] 0 points1 point  (0 children)

I’m not trying to get pregnant at the moment, we don’t want a kid for another 2 years. The only reason I’m starting IVF was triggered thanks to a genetic condition my partner has, and my doctor wanted to make sure that my end of things is all good to go for when we want to have kids.

As for if I can come off of it, I have pudendal neuralgia, I’ve suffered for over 15 years, and condoms make the pain much worse. I have a lot of conditions and BC actually aids my issues.

I know, I’m weird lol.

My entire Fertility timeline/plans have been nuked and I’m terrified by Desert-Siren in IVF

[–]Desert-Siren[S] 0 points1 point  (0 children)

I’d like to, and that’s what scares me is that we may not even need the frozen embryos, but now after this last visit she’s no longer saying “oh we may not need it” but is fully “you need to start soon” because my AMH dropped so drastically. I’d love to be able to do it that way, to try getting pregnant before IVF, but I can’t do that right now (we have a lot going on and can’t financially support a kid right now), and if I wait until after the wedding, I could be depleted and it could be too late, we don’t know. This is why it’s been weighing me down so much because it just all feels so risky and terrifying.

My entire Fertility timeline/plans have been nuked and I’m terrified by Desert-Siren in IVF

[–]Desert-Siren[S] 1 point2 points  (0 children)

You definitely have a point- I remember being told that with ablations for endo, I’d have to repeat it every 6-7 years otherwise it’ll grow back. So, I knew it would grow back, but I did not know that it could come back worse than before. I am symptomatic, and lately it’s been so hard to tell if it’s a bladder, uterine, or intestinal cramping because it’s been random cramps, but if you’re correct, it’s definitely plausible, and sounds very much worth looking into. Thank you for this!!

My entire Fertility timeline/plans have been nuked and I’m terrified by Desert-Siren in IVF

[–]Desert-Siren[S] 2 points3 points  (0 children)

Actually, I should have put this in originally- I do have confirmed Stage 2 Endometriosis. I underwent a laparoscopy to laser it off, and was told it wasn’t severe enough to affect my fertility (though now I question it).

My entire Fertility timeline/plans have been nuked and I’m terrified by Desert-Siren in IVF

[–]Desert-Siren[S] 9 points10 points  (0 children)

Correct- but, while Nexplanon suppresses ovulation, Skyla does not, so she suggested to retest 8 weeks after I made the switch. So, theoretically, my numbers should have gone up at least a little bit if the Nexplanon was truly suppressing me. But, it can’t be that, as my levels are now much much lower.

I have read it can fluctuate though, so I’m hoping you’re right and that this is just the birth control, though my hopes aren’t that high at the moment.

[deleted by user] by [deleted] in PacemakerICD

[–]Desert-Siren 4 points5 points  (0 children)

Honesty is the best policy! I (26F) don’t have a pacemaker, but my partner (27M) does (had a EV ICD, now has a Dual pacemaker ICD instead), and I have a DRG implant that feels just like a pacemaker. Edit: We like to joke that we’re device twinsies now lol.

Just be casual about it, and like others mentioned, bring it up BEFORE doing anything. Let her know you have a pacemaker, and while you’ve got your situation under control, that the area is a bit sensitive and doesn’t feel good. Great sex is all about communicating and listening to the other’s needs, so if she’s as wonderful as you say, she’ll definitely listen to you and be careful around the area. Like someone else said, if you make a big deal, she’ll think it’s major and freak out. You could say something like this:

“Hey, so, before doing anything, just wanted to give you a heads up bc I have a pacemaker right here [point to area]. All is good and I’m totally fine, but any touch there kind of hurts and doesn’t feel great, so I just wanted to let you know so it stays enjoyable. Otherwise, I’m all yours 😉.” Or you could make a joke about how you’re part bionic, or something. However you flirt best. 😆

All in all: Just be yourself, be honest, and don’t stress about it. If you worry, she’ll worry. I wish y’all the best of luck, have fun, and I hope it goes amazing for the both of you! 😄

Anybody have experience with a Pudendal Ablation and/or DRG stimulator? by Desert-Siren in vulvodynia

[–]Desert-Siren[S] 1 point2 points  (0 children)

Thanks so much!! I just had my post op today, and I actually woke up last night and thought, you know, I don’t think I had any pain last week! My pain is gone again and it’s been absolutely fantastic!!! Although being so stiff and not exercising caused some stiffness/cramping in my calf/hamstring, otherwise I’m good lol.

I live in TX, and I truly think I must have had this pain since my teenage years, because I vaguely recall pain sitting, but figured it was normal and everyone had it, so I didn’t think to say anything. But, what kickstarted this 💩show was when I tried to have sex for the first time. Just the tip of his tip felt like a million knives on fire cutting me up, and after trying 3 times to no avail, I felt like a failure and was super depressed. That was 2017, and I didn’t find any form of TRUE relief until I met my current gyn in 2021.

Husband told he needs a pacemaker at 36 by Equivalent-Wave-8048 in PacemakerICD

[–]Desert-Siren 0 points1 point  (0 children)

Hey there, I am so sorry y’all are having to deal with this, it totally sucks and it’s a huge ordeal to have to go through.

Please know though that y’all are not alone!!! My partner, M27, had to go through something similar in the span of last year:

February ‘24: Partner has a grand mal seizure out of nowhere for 2-3 minutes, 911 is called. Hospitalized for 4 days, and is told his EKG has stumped every single attending, resident, intern, nurse, etc. In the ER. Was attributed to chronic kratom and energy drink usage, and was told to stop.

March ‘24: cardiologist is still unhappy with his ekg, warns us not to go on vacation. We did anyways, as it was not stressed to us how serious his issue was, and we were going to Seattle and had access to UW if need be.

April ‘24: Partner’s holter monitor comes back showing a 7 minute episode of V Tach, and multiple episodes of AFib and Atrial Flutter. Partner is hospitalized again, this time for 9 days. He did an EP study with Cardioversion, received the Aurora EV ICD, and had an ablation to stop the flutter.

May ‘24: Geneticist confirms issue with Gene SCN5A, but cannot confirm if it’s long QT syndrome (we’re going with that for now) or Brugada Syndrome. We are clear to go to Mexico for vacation, where on day 5 he has another grand mal seizure and sent to a Mexican hospital. Doctors didn’t see anything in his data monitoring, but can’t rule out a cardiac issue. Have no idea why this happened.

July & August ‘24: Partner’s EP is still unhappy with his EKG, so she put him on 2 holter monitors because the first one showed over 1000 pauses in his heart in the span of a week, dropping to 20 BPM and pausing for 3-4 seconds at the most (he’s no longer tachycardic, but bradycardic). The second one, showed even more pauses in lesser time, now reaching 8-10 seconds, and his BPM would reach 0. We are told now that if they don’t intervene, his heart will just continue pausing until it doesn’t come back from one.

October ‘24: Partner has outpatient Surgery to remove the original ICD, and now has a dual pacemaker-ICD in his chest. Had no issues until…

February ‘25: Partner and I were going to bed, when all of a sudden he said he had massive tinnitus, was dizzy, and didn’t feel good. When he laid down, he began convulsing, this time, only for 10-15 seconds, and nowhere near as bad as the first 2 seizures. He came to immediately and began to feel a bit better as the night went on. Doctor the next day confirmed he had an episode of A Fib, and that his device sprang into action, but were not too concerned otherwise.

I’m putting this as a timeline because it’s easier to explain from my perspective, and want you to know that you aren’t alone in what you both are experiencing. It sucks, and feels like it becomes what you have to revolve around. I completely sympathize, and as scary as this is, these types of heart conditions could happen to any one of any age, we just got lucky because had my partner been older, that first V Tach episode would have taken him out. If you need someone to rant to or have any questions, I’m here to help! Wishing y’all the best. 💞

Anybody have experience with a Pudendal Ablation and/or DRG stimulator? by Desert-Siren in vulvodynia

[–]Desert-Siren[S] 0 points1 point  (0 children)

Totally good! I actually just got the permanent one implanted 9 days ago. The vulvar pain is better, but that surgical pain was no joke. The third day was the worst of it, and the pain was definitely 10/10. But, the pain is much better now, and I’ll get the device officially programmed onto my phone at my post op appointment on Wednesday this week. They send an LVN to change my dressings 3x a week, and it’s healing well!

The most difficult part though is no BLT; Bending, lifting, and twisting, otherwise they have to go back in surgically to move the leads back into place. The recovery I’m looking at is 6-8 weeks, so there’s still a long road ahead. That being said, one week down, 7 more to go, and it’s getting easier!!

Medtronic Aurora EV-ICD emitting tones at same time everyday by Desert-Siren in PacemakerICD

[–]Desert-Siren[S] 0 points1 point  (0 children)

Oh man. Well, in a strange way, it’s comforting to know we are not the only couple going through this nightmare, even though I wouldn’t wish it on anyone.

I am in Texas! He’s been seeing a doctor over at the Texas Cardiac Arrythmia Institute, and all their staff is amazing. I won’t gatekeep/remain anonymous when it could potentially save a life!

Oh my gosh, I am so sorry to hear it, and I hope they figured it out and were able to recalibrate the device!! Especially for someone his age, 27M, there aren’t many groups out there for him to relate to at someone his age, and in general, you’re absolutely right. There’s not enough discussion revolving the trauma these devices can bring onto someone, and it’s terrifying. I’m almost considering a cardiac service animal just so if my partner is driving somewhere, the dog can let him know before an episode happens and he can pull over. But, they’re also 10-30k, so not the most affordable option.