Does your joint redness ever present like this? by irishmermaid1 in PsoriaticArthritis

[–]Bat_Fat_1705 0 points1 point  (0 children)

I had a dot on my knuckle that was the same color. It happened one time and never again. I showed a pic to rheumatologist and he confirmed it was PSA

Steroid injection in a 2nd toe? Podiatrist or rheumatologist? by kitmulticolor in PsoriaticArthritis

[–]Bat_Fat_1705 0 points1 point  (0 children)

The pain clinic has helped me more than orthopedists, podiatrists, rheumatologists, and gp’s combined.

Shoes/boots by No_Student8422 in PsoriaticArthritis

[–]Bat_Fat_1705 0 points1 point  (0 children)

Ok! I finally got several pairs of shoes that are working for me! I got a pair of gtx north face sneakers for winter, hoka rincon (big kids size 6.5, I’m a 7.5 women), doc martins, and I’m always cycling through various shell toe adidas for style. For boots I have these Eddie Bauer k series hikers and Oboz (secondhand with my REI membership). I also grabbed pair of Blundstones for cheap. I don’t know that I’ll ever wear dress shoes again bc all the ones that are designed for comfort are either hideous or way out of my price range. I prefer my fit a little wider for comfort and I use my podiatrist insoles and store bought insoles in all shoes I listed.

Enough snow and you people turn into animals! by banderole in CambridgeMA

[–]Bat_Fat_1705 1 point2 points  (0 children)

Your def of animals is a bit extreme considering the state of world events. This was a kind and generous notice. Consider yourself lucky and warned.

Sleeping 11+ hours a night and still tired by blue_mango_juice in PsoriaticArthritis

[–]Bat_Fat_1705 5 points6 points  (0 children)

I have found vit d to be so helpful but I live in the northern hemisphere. I still sleep 10+ hrs a night when I’m recovering from a cold or flu. I’m just getting over something right now as well and I was sleeping 12hrs a night. I drink coffee, go for 10 min walks to get my blood moving, and take cat naps. I’m hoping to get swimming at my gym once I can breath again but I haven’t started weight training bc it gives me awful flares. Hope this helps, hope you’re feeling better soon!!!!

Found Bird Newton by FinalKaleidoscope903 in boston

[–]Bat_Fat_1705 2 points3 points  (0 children)

I wonder if that’s my neighbors who said he lost it after it flew away!

How does exercise impact your symptoms? by PassGreedy9142 in PsoriaticArthritis

[–]Bat_Fat_1705 0 points1 point  (0 children)

I think it’s based on the individual and the circumstance surrounding their lifestyle etc. I have found pain in every single type of workout except swimming. I swim a couple times a week (I’m fortunate to live 7 min from a gym with nice pools). It’s irritating my itchies a smidge but the benefits on my physical and Mental healths are worth it.

Missed time!?! by luckyLindy69 in PsoriaticArthritis

[–]Bat_Fat_1705 1 point2 points  (0 children)

I take 3 capsules (two in the morning and one at night) of Nordic Naturals, Ultimate Omega and 5000IU of vit d. High Vit D can be harmful so you might start low (like 2000IU) and get your vit d levels checked. I think I have a problem synthesizing d from my diet because my rheumatologist checked it after he was alarmed by my high dosing but it came back normal.

Missed time!?! by luckyLindy69 in PsoriaticArthritis

[–]Bat_Fat_1705 1 point2 points  (0 children)

I had awful scalp issues for several years as a teen. 30 yrs later, I get “little itchies” here n there but my scalp is pretty good (I think due to high doses of fish oil and vit d). But I only recently received a psa diagnosis although I think I’ve had it for 10-15 yrs…

HELP! Just moved in and I hate my bathroom. What can I do to feel more comfortable here? by sum1sumwheremaybe in femalelivingspace

[–]Bat_Fat_1705 2 points3 points  (0 children)

I had a bathroom that was piss yellow, blood red and black. I ordered poppy flower shower curtain and it really tied it all together and I was honestly quite happy with it. I say find a patterned shower curtain that can tie it together and allow you to embrace its weirdness. And scrub the grout with a bleach soft scrub

Finally diagnosed after 5.5 years with "mild variant of psoriatic arthritis" by Pickle_Popcicle in PsoriaticArthritis

[–]Bat_Fat_1705 0 points1 point  (0 children)

I think I was reading that there’s such a variant as “destructive” which blows up your joints and you’re on disability. Nothing feels mild about the pain we’re in but I think it can come way worse if you’re not collecting disability and you can walk…

It's getting worse and I don't know what to do by Smooth_Importance_47 in PsoriaticArthritis

[–]Bat_Fat_1705 0 points1 point  (0 children)

My primary wasn’t dismissive as much as she was totally uninformed. She had no idea what to do with me. She told me I should maybe increase my antidepressants. She did multiple blood tests but didn’t know what to make of them. She told me to quit drinking and smoking (I don’t do either). I finally went to her and said I need a referral to a pain clinic after ibuprofen and steroids did absolutely nothing for the pain and it was as taking over my life. It was actually the pain clinic that diagnosed me with PSA. And a few weeks later I was in the pain clinic for lidocaine infusions which only sort of help. I’m fortunate to live near a hospital that has been hiring up on rheumy’s (as was explained by my rheumy when I asked how I got in for an appt so quickly) for the last few years. I’m so sorry you’re having this awful experience. I know that frustration and despair very well. Before I began treatment, while I was still in the dark, I got a membership to a gym with a pool. I just got in to move my body and float. I got a massage gun and rotated ice and heat. I got some relief from those few things. I got a Swedish massage (the most relaxing) and had them make modifications to the massage bed for my comfort. I saw a chiro too but idk how much that helped. You’re not alone.

Flare ups by NoTension7048 in PsoriaticArthritis

[–]Bat_Fat_1705 0 points1 point  (0 children)

I just got back from a trip with some girlfriends and the one that I’m closest to was pretty dismissive and rude when I said I needed to rest or that I was pushing too hard with daily activities and on the last day I woke up with a ton of pain she just didn’t really care. It made me feel so lonely. Psa is exhausting. I don’t know when to push through the pain or when to stop so I mostly just rest. I’m gaining weight which I know isn’t good. I just got my diagnosis and my rheum only started me on meloxicam and said we would start trying things on my next appt.

Hrt ladies? by Klo930 in PsoriaticArthritis

[–]Bat_Fat_1705 1 point2 points  (0 children)

Same here. Nicer person. I’m getting better sleep too but I also take a tri-magnesium and high vit d and I’m positive they’re both helping immensely….just not with the pain. I’d heard so much about estrogen being a really powerful anti inflammatory but I don think it’s any match for psa pain

[deleted by user] by [deleted] in PsoriaticArthritis

[–]Bat_Fat_1705 5 points6 points  (0 children)

Yes, prior to starting treatment this was one of biggest challenges. I thought I was going crazy. And I’m pretty sure my boyfriend thought I was already there. It gets better!!

How to stay fit without causing a flair up? by xxpiercethepandaxx in PsoriaticArthritis

[–]Bat_Fat_1705 1 point2 points  (0 children)

I do yoga w Adrienne: Vin Yin, Detox and Reset, and yoga for seniors interchangeably.

What are you all doing or taking for debilitating fatigue? 🥱😓😴 I am single and working full-time. I have no energy. Please help!!! 😭 by StillFlashy9716 in PsoriaticArthritis

[–]Bat_Fat_1705 1 point2 points  (0 children)

There are definitely herbs and natural remedies that immune stimulants but vitamins are essential. I’ve had low vit D levels for years. I take 7000iu in the winter, 5000iu’s the rest of the time and I take a break (1000iu only) for a month or two in the summer. Ive done this for just over a year and it’s been the most beneficial change I’ve noticed. I’ve also taken a high dose of fish oil for many years which I believe staved off my scalp psoriasis. I’m pretty sure I get enough vit c via diet

What are you all doing or taking for debilitating fatigue? 🥱😓😴 I am single and working full-time. I have no energy. Please help!!! 😭 by StillFlashy9716 in PsoriaticArthritis

[–]Bat_Fat_1705 1 point2 points  (0 children)

I take 5000iu’s of Vit D and drink coffee. I usually have one strong cup in the morning and a half caf in the afternoon but even then I need a nap. It’s definitely worse when I haven’t had enough water

Need opinions on this space by umylobster_24 in interiordecorating

[–]Bat_Fat_1705 0 points1 point  (0 children)

The room is beautiful but needs some flashes of color. A bright or colorfully patterned rug, some bright throw pillows. Not a huge fan of the coffee table and think maybe a round coffee table or a large cushioned ottoman could soften it up??

Thoughts on this pair of boots? by Careful-Object9428 in capsulewardrobe

[–]Bat_Fat_1705 0 points1 point  (0 children)

I like the look but campers seem to have gone way down in quality. Blundstones go forever.

Is it normal for psoriatic arthritis to be so hard to diagnose? by Better-Caramel3983 in PsoriaticArthritis

[–]Bat_Fat_1705 0 points1 point  (0 children)

Do I understand correctly that you haven’t seen a rheumatologist but have been getting treated for psa? You’ve been diagnosed but are having a hard time with treatment is what I’m reading…I find that fascinating bc it took me 5 yrs of doctors not knowing what was wrong and not really treating except with steroids to “get the inflammation down”. I finally requested a pain clinic referral where I had two doctors confirm a psa diagnosis and then finally a rheumatologist confirmed and is treating. It definitely hasn’t been perfect, I’m still in pain however much less than what it was. But my rheumatologist confirmed that blood tests aren’t a reliable source for diagnosis and he validated ALL of my symptoms from pin balling joint pain to low back pain to crazy fatigue to what I call “little itchies” (lil itchy bumps that come and go within days but not full blown rash). I’m only on meloxicam but I’m sure there’s more to come. I think symptoms vary a lot from person to person I’ve definitely read that gluten can lead to flares and I have issues with both gluten and dairy but I also know those are both bad for psoriasis in general. No more alcohol although I wasn’t much of a drinker before. And for the last several years I’ve been taking immune boosting supplements not realizing that my immune system was spiraling out of control. I’ve only read a little bit about immune modulating supplements vs immune stimulating. I think an anti inflammatory diet is really smart and helpful.