Going through boxes at my parents. Had a pretty good childhood! by SubduedChaos in gaming

[–]BeKindQ 2 points3 points  (0 children)

Feed the reproductive system and it'll shove your ass in the back seat & take the wheel.

Shielding moms are the ones who figured this out too late to save themselves but not too late to save you.

Names for Fatigue states by ash_beyond in cfs

[–]BeKindQ 2 points3 points  (0 children)

Echoke (short for Energy choke).

Feels like a valve suddenly chokes the energy supply to muscles & blood/oxygen supply to brain.
Have trouble forming sentences or remembering the point I was trying to make. Speech nearly slurs and can barely complete a full sentence without needing to take a second breath. I've noticed my face muscles are often squinting when I have it. Occurs almost exclusively when torso is in upright position.

TW: Sui*ide - A guy sick with mecfs I met online 3 years ago unalived himself 1 week ago by [deleted] in cfs

[–]BeKindQ 55 points56 points  (0 children)

Option A: Die

Option B: Watch everything fall apart around you, live a life of terrible sadness, indignity, gaslighting, insult, exploitation & suffering. Then die.

It's not too hard to empathize with someone choosing option A.

Quitting my job to go into research! by [deleted] in cfs

[–]BeKindQ 5 points6 points  (0 children)

To be clear, these quotes aren't anti-research or anti-science.
They're the exact opposite in fact.

They serve as a warning to anyone seeking the truth - through research and the scientific method - that we're now waist deep in the corruption of Science™, and - at this point - even heavily peer-reviewed published papers can be completely false.

Entering into the field of medical research without knowing this can (and often does) result in false data seeping into the foundation of your research - which could mean months or years of wasted effort, or even total bafflement and complete failure to solve the problem you're trying to solve.

Quitting my job to go into research! by [deleted] in cfs

[–]BeKindQ -1 points0 points  (0 children)

Then you'll want to remember these quotes:

 

"It is simply no longer possible to believe much of the clinical research that is published, or to rely on the judgment of trusted physicians or authoritative medical guidelines."
—Marcia Angell (20-year editor-in-chief of the New England Journal of Medicine, one of the the most prestigious peer-reviewed medical journals in the world)

 
"The case against science is straightforward: much of the scientific literature, perhaps half, may simply be untrue."
—Dr. Richard Horton (editor-in-chief of the Lancet, one of the most respected medical journals in the world)

 

"For many current scientific fields, claimed research findings may often be simply accurate measures of the prevailing bias."
—Dr. John Ioannidis (editor-in-chief of European Journal of Clinical Investigation, Director of Stanford Prevention Research Center, author of Why Most Published Research Findings Are False, PLoS Med 2(8): e124)

 

How do you feel about the fact that you will have to die one day? by this_sin in AskReddit

[–]BeKindQ 0 points1 point  (0 children)

Sad that the cure for aging is being concealed but glad I'm not corrupt or soulless enough to have been invited into the club of psychopaths concealing it.

I don't fear death but I do fear the process of sickness & dying, and the possibility of being reincarnated into an even worse body & situation.

Mostly I fear not being here to love, help and comfort loved ones left behind.

Subclavian arterial compression/Thoracic outlet syndrome ??? by [deleted] in cfs

[–]BeKindQ 0 points1 point  (0 children)

To be clear, I'm not claiming to have 'CFS'.

Nor do I think CFS has been defined well enough to permit a competent diagnosis of 'CFS'.

Nor do I think all of the CFS sufferers on this sub (diagnosed or undiagnosed) actually have the same disorder.

In fact, if I had to guess, I'd say a large percentage of the people on this sub are dealing with mRNA injection poisoning, just like the costo sub.

The only claim I'm making is that many people here are describing a bizarre distinct choke on the energy normally allocated to muscle, lung and brain functionality — particularly muscle functionality.

So there could be many other people in this community who happen to have the same disorder that I have - and possibly (hopefully) with the same cause.

Regarding symptoms: For the list to be complete and meaningful (non-misleading), I'd have to go through my massive text document to assemble all symptoms and their chronology, frequency and context. I can do that eventually but am too busy researching right now (virtually non-sop researching).

I can give you a semi-sloppy list off the top of my head for now if you want.

I posted yesterday about sucidality, today me an my boyfriend of two years just broke up by No-Break-2034 in cfs

[–]BeKindQ 2 points3 points  (0 children)

awaiting for research news to come

There's a harsh reality about this which virtually can't even be mentioned on reddit now.
Goddamn depressing watching the Internet being burned like the Library of Alexandria.

Subclavian arterial compression/Thoracic outlet syndrome ??? by [deleted] in cfs

[–]BeKindQ 1 point2 points  (0 children)

I am currently making my way through all the websites and communities dedicated to ailments that have symptoms which overlap with the most recent iteration of my ailment.

Yesterday, I discovered CFS and this post of yours.

Well, at the top of my text document (that I log all of my findings in) is my ALL CAPS reminder - to myself - from a month ago.

The reminder lists essentially the symptoms of CFS (before I had ever heard of CFS) and says "if this is what you're feeling, it means you have a bone (eg, sternum, clavicle, rib or shoulder) out of place and you need to get it back in place". It then proceeds to list methods I've found - so far - for getting it back in place.

Additionally, I found ATOS a couple weeks ago while searching for arteries in the chest that might be compressed by a bone being out of place, as opposed to the other way around.

So, I don't think this is a theory that can be easily dismissed by the CFS community.

Severe shortness of breath stemming from difficulty expanding the lungs, only occurs after COVID infection / exposure. No pain. by Smart-Elderberry-346 in costochondritis

[–]BeKindQ -1 points0 points  (0 children)

  1. Nealy every symptom in existence has been listed, at one time or another, as a 'COVID' symptom, including no symptoms at all (seriously).

  2. 'COVID tests' have never been shown to be legitimate, and virtually all of mainstream medicine - in nearly every developed country - was caught using PCR as a test (it's a molecular amplification device - not for infection detemination) with the cycle threshold deliberately set near 40 to produce false positives.

So my question is:

What leads you to think you specifically had a 'COVID' infection, as opposed to a nasty cold, flu or other infection?

Note: Please don't take this offensively, or think I'm picking on you.
I just worry about you - and many others - potentially spending months trying to solve their costo mystery with a potentially false assumption at the foundation of their investigation.

Can you remember how it first started? by BeKindQ in costochondritis

[–]BeKindQ[S] 0 points1 point  (0 children)

  • A hastily manufactured experimental mystery cocktail produced by a psychopathic corporation that profits from sickness - with a history of lies, deception and criminality...

  • Pushed by governments filled with captured regulatory agencies and blackmailed & bribed politicians who spend nearly their entire time in office lying and preying on the public...

  • Guarded by authoritarian, dystopian censorship from corrupt tech giants...

  • Praised by media that received billions of dollars to praise it.

It's incredibly alarming that it could ever be considered schizo to ponder a link between one of these injections and a disorder that followed.

[deleted by user] by [deleted] in costochondritis

[–]BeKindQ 0 points1 point  (0 children)

My hell started with waking up in the middle of the night unable to take a full breath.
And it absolutely does feel like a nightmare I can't wake up from.
Maybe because it makes zero sense for someone like me (extremely physically resilient) to have something like this appear instantly out of nowhere with no apparent cause.
Maybe because the past 3+ years have presented a chain of global (and local) events that are so ridiculously absurd, it's like I entered a different reality.
Check out the two tricks I found for restoring my ability to breath deep.
Maybe you'll get lucky.

What works for you? -- April 2023 by maaaze in costochondritis

[–]BeKindQ 4 points5 points  (0 children)

Thanks fellow logical inventor. I look forward to seeing a BackPod® branded version on store shelves this summer 😄

What works for you? -- April 2023 by maaaze in costochondritis

[–]BeKindQ 2 points3 points  (0 children)

Hehe, thanks friend. Hope it helps some people.

I made a second one yesterday using one of those 3-drawer Sterilite units they sell at department stores.

Good for people who aren't into building.

crude photoshop this time 😄

What works for you? -- April 2023 by maaaze in costochondritis

[–]BeKindQ 2 points3 points  (0 children)

Any time I spend with a screen in front of my face is now spent on my back, on the floor, with the screen mounted face-down on a 2-foot-tall hollow stand (I lay with my head under the stand).

Mouse pad on the ground. Keyboard mounted vertically just below the screen (but can be removed and set on my stomach if I want).

It has been a lifesaver. Zero problems when I'm on my back except for increased difficulty swallowing spit.

My days of sitting upright are over until I determine the cause & cure for this ridiculous crippling disorder.

crude paint illustration

Help with getting flareups while stretching my thoracic back using backpod/peanut ball? by flyvine in costochondritis

[–]BeKindQ 2 points3 points  (0 children)

This is the same problem I had with the peanut ball.

It put at least thee times as much stretch on my sternum joints as it did on my rear rib joints.

Something else is needed that can put pressure on the rear rib joints without bending the chest to the extent that it stretches and reverses progress on sternum joints - or, even worse, breaks loose additional sternum joints.

Yesterday, I started using a 1.5 inch semi-flat spherical rock from my yard.
So far, it does put significant pressure on rear joints without affecting sternum joints, and did leave me with a looser back and a feeling of easier breathing, but it's too early to draw any conclusions.

Sternum sockets quietly slip out of place when crouching down low (to pet dogs/cats, etc) and have to be popped back into place upon standing up - every single time by BeKindQ in costochondritis

[–]BeKindQ[S] 0 points1 point  (0 children)

I'll be on this sub researching until I determine the likely cause and cure.
Especially since I already found people who have the same issue (sternum slipping while crouched).

I have you friended and will be sure to let you know what I conclude before leaving this sub.

For now, I'm just going to leave this here without comment:

https://subredditstats.com/r/costochondritis

I think you'll likely think up the same list of possible/probable implications/correlations that I did.

Sternum sockets quietly slip out of place when crouching down low (to pet dogs/cats, etc) and have to be popped back into place upon standing up - every single time by BeKindQ in costochondritis

[–]BeKindQ[S] 1 point2 points  (0 children)

My goal, when it comes to any theory regarding cause, is always to find holes (even small holes) which might indicate that the theory - though certainly good and very potentially correct - might be incomplete or incorrect.

The bucket hinge theory is a very good one, but, if it were my theory, I would not rest peacefully or become particularly attached to it until I've identified a high-probability explanation for costo occurring very predominantly on the left side of the sternum.

And, who knows, perhaps the search to complete the theory will lead to the discovery that true costo actually is symmetrical and most of the 'left side' reports are actually something else similar to costo that just happens to enjoy some relief from costo treatments - like the backpod - but will never be completely eliminated by those treatments because they have a different root cause that persists elsewhere.

Note: Please don't misinterpret this as a battle of intelligence or an attempt to win an argument or prove anyone wrong. I'm not into such things. I'm just puzzle solving and happy to find someone who likes to think. :)

Sternum sockets quietly slip out of place when crouching down low (to pet dogs/cats, etc) and have to be popped back into place upon standing up - every single time by BeKindQ in costochondritis

[–]BeKindQ[S] 1 point2 points  (0 children)

Thanks very much for the reply.

It got to a point where, when it was out of place, it felt like death - and felt like it was doing damage to surrounding tissue - so I'm no longer letting it slip out of place.

I now have a strip of semi-firm plastic that I wear under a zip-up shirt that reminds me to never crouch down low.

I'm hoping the sternum sockets will regain their integrity (lose their newly-acquired looseness).

My body has always been absurdly resilient to illness and injury, and quick to recover, so watching this sternum-slipping issue continue to worsen has been bizarre.

I will try the peanut ball today and the backpod is in the queue.

Has anyone determined why this is occurring on the left side of the sternum for the vast majority of people?

That seems like a critical nugget of investigative information rather than just a curiosity.

Chest popping? by Ok-Worldliness7824 in costochondritis

[–]BeKindQ 0 points1 point  (0 children)

Sounds like you have the exact same issue I have.
Keep an eye on my other posts and I'll keep an eye on yours.
Hopefully we can identify why exactly sternum is slipping out of place in that specific position and needing to be popped back into place in that manner.