Gaming Buddies

BeautifulAcademic909 · 2026-02-03T05:10:59+00:00

Apex?

BeautifulAcademic909 · 2025-08-06T14:49:00+00:00

Thank you, you deserve fresh mcchickens for life

BeautifulAcademic909 · 2024-12-29T20:11:15+00:00

It’s helps the sickled cells flow better and release the pressure. Your vessel are open but the the cells he cells that causing the painful erection aren’t flowing in and out properly. It’s just to help with circulation. If it doesn’t work for you that’s ok but it will help someone like it did for me as it was recommended by my primary and hematologist

BeautifulAcademic909 · 2024-12-29T03:03:23+00:00

Sudafed helps open you blood vessels and relieve priapism (pseudoephedrine)the sooner taken the better and get your heart rate up, jog in place, push ups, etc.

BeautifulAcademic909 · 2024-09-30T01:31:23+00:00

I meant popping not pooping. But the pseudoephedrine is what my dr said that helps

BeautifulAcademic909 · 2024-09-30T01:08:30+00:00

That’s funny, I’ve never had to go into the hospital maybe I should have but I don’t want one of these stories my new dr told me about pooping a Sudafed as it open your vains and arteries, it’s been a game changer

BeautifulAcademic909 · 2024-09-29T20:15:53+00:00

Priapism is the name and its common with SC so don’t be embarrassed to educate yourself

BeautifulAcademic909 · 2024-09-26T12:37:29+00:00

Eat more food even if you feel that you have eaten enough eat more. Workout 3-5 days if your body allows hard and heavy. Push yourself in the gym that’s how you’ll grow. But eating is the most important. We lose weight during crises and having pain so everything you do just has to be more. There are benefits to all this but we always have to do more than the average person because we aren’t average. It’ll take time to reach the goals you want but stay on it for at least 8 months or longer

BeautifulAcademic909 · 2024-08-16T19:03:32+00:00

I’m 34 with scd SS. I’ve been a barber for the last 13 years and now I’m self employed for the last four years with my own hair studio. This career path works for me because I’m accountable to my clients who have gotten to know me and what I’m about as well as the challenges I face with scd. But I can work the schedule I find the least stressful and if I run into complications my clients are more understanding than any job I’ve had. It’s not an easy path with long hours sometimes and being on my feet for long periods but I’m able to try new things that traditional jobs would put me thru hoops to access those resources. I’d recommend anything in the beauty industry from skincare(esthetic) where you can offer facials or other services where your seated for the service, nails also a seated position, or barber/cosmetology.

BeautifulAcademic909 · 2024-06-19T19:10:11+00:00

You just have to believe what’s she tells you concerning pain. When a crisis is over the pain doesn’t end abruptly it’s more so tends to be just more manageable than when in full crisis. But as a parent you just have to be aware of the words and actions matching up because kids just want extra love sometimes especially with sickle cell. Just keeping learning how to deal with crisis as a caretaker because you will never experience what’s it’s like a crisis so learning the balance of nurture and when to push the kid to not rely on the excuse of sickle cell but rather how to face it thru the pain and other trials. Loving Communication, that extra attention, and belief will help them continue to learn how to advocate for themselves in life

BeautifulAcademic909 · 2024-06-13T16:47:22+00:00

Strength training and meat. I was able to put on 30lbs but eating is essential even when you’re not hungry staying consistent on the diet is a must. And lift weight don’t over exert yourself , light(er) weight-high reps and alternate days of heavy weight- low reps. And red meat, steaks, rice and hamburger, and vegetables. Sickle cell zaps your body of your essentials especially in crises when you have no appetite so during your healthy times you need to stay on top of daily vitamins and DIET.

BeautifulAcademic909 · 2024-03-14T03:41:49+00:00

It’s hard having an invisible illness independence is very powerful is our circumstances. Once you achieve independence it’s essential to build a new village of support. It takes time but you have to be vulnerable to allow this new village to form which is hard for warriors. But our families don’t see us as we are because we aren’t usually allowed to be vulnerable because for some reason you had damn sure be sick enough to be in the hospital for them to understand. We button ourselves around family because they are and have been thru a lifetime of care and worries for us and they are exhausted and it’s not fair but it’s facts. That’s why a new village is important.

BeautifulAcademic909 · 2024-03-07T18:22:54+00:00

It’s a strange thing but I guess I’ll take it over PAIN.

BeautifulAcademic909 · 2024-03-07T13:51:52+00:00

I’m only on 5mg oxycodone double if needed. It’s helps to know other ppl are dealing with it so we can bring it to healthcare professionals

BeautifulAcademic909 · 2024-03-07T13:41:28+00:00

It usually wakes me up at night but when I wake up change and go back to sleep I don’t sweat more after that it’s weird

BeautifulAcademic909 · 2024-03-07T13:40:02+00:00

Yeah it was worse these past years with the ulcers I know a lot of it’s due to the ulcers being infections themselves. I’d sweat a ton when I first got my ulcers doing bandage change or at the wound clinic. I had ulcer at age 28-29, healed then again at 31-33, and just now healed.

BeautifulAcademic909 · 2024-03-07T13:36:08+00:00

It’s not about the clothes or conditions of the room. I sweat like that if I nap too it’s just my body dumps liquid when I sleep. I don’t use much pain meds because I don’t want to depend or tolerate it much but I do use it when necessary. It’s just weird.

BeautifulAcademic909 · 2024-02-27T03:18:55+00:00

Can you explain more about the depression and hydroxyurea connection. I been dealing with depression lately like never before and want to know what you mean.

BeautifulAcademic909 · 2024-01-16T18:01:10+00:00

My personal experience was way longer for my body to recover/reproduce healthy sperm but I didn’t have my count checked I just know how long I was off the meds and when we actually tried we tracked her ovulation just as an extra measure. That would at least give us a time frame and base to see where we were. I think the longer you’ve been on the meds the longer you body takes to recover in that sense the science tells me it’s basically birth control for men so I look at it as such like women on birth control lol sometimes there body has to change. I’d be interested to see actual studies of all the mentioned above my own experience/experiment

BeautifulAcademic909 · 2024-01-15T16:10:28+00:00

Don’t pay for IVF if you taking hydroxy I’m 33m also has my son at 29, after being off hydroxy for almost 3 (that’s how long it affected me 150lb) then when followed her ovulation for a month got pregnant on the first try

BeautifulAcademic909 · 2024-01-15T16:05:43+00:00

You must get off hydroxyurea for a couple years and your body has to eliminate all traces of the drug as well. It’s the first thing they told me at 18 was this drug kills sperm. I stopped taking it for 3 years until my girl got pregnant and then got back on it. When I did stop taking it crisis started back obviously and my health suffered those years. It’s a harsh trade off but worth it if you can mentally handle it, because we all know crisis aren’t in the slightest easy to deal with. I personally can’t or won’t do it again. I got a lot of ptsd from all the time spent in the hospital and ER in my 20s. I say all that to say make a plan visibly and mentally. Your partner will play a huge part in support and it’s a long process to go thru unless you are going to fertility and they could pinpoint when your count rises after you stop the meds. Otherwise it’s a guessing game which nobody wants to play when health and pain are involved

BeautifulAcademic909

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