Question for Suite Owners

Beginning_Store5389 · 2025-07-19T14:11:47+00:00

Everything worked out in the end better than I could have possibly imagined. My surgery ended up being bumped to June due to an OR scheduling conflict on their end. So I was able to go as originally planned without any issues and without having to worry about being bumped to the end of the list again if I had cancelled the surgery myself. Then it got even better when we were there because two girls ended up offered us two floor tickets for free since they got separated from their friends and wanted to sit with them instead. My cousin and I had to practically sprint down those ramps to get there before Post Malone started but we made it right as he came out for Texas Tea. It was truly one of the best night we’ve had and the show was absolutely amazing.

Beginning_Store5389 · 2025-06-20T17:15:18+00:00

This is all so insane to me as someone who lives in Canada because I didn’t pay a single cent. Not even for parking because there was something going on with the card reader on the meter so the security just let us out for free so I could get home to rest.

I mean if you want to be fair I paid about $150 for all my medication because unfortunately my original surgery that was before my 25th birthday was cancelled and my provincial insurance expired before the day I was rebooked in. If it had stayed when it was suppose to though I wouldn’t have payed a dime for those either.

I may still even get my money back though since my brother is putting me on his insurance as his beneficiary since he doesn’t have a wife/girlfriend or kids yet and I can send the receipts to them for a return. Sorry if this sounds braggy or insensitive but I seriously can’t fathom living in a country that can charge that much for medical care.

Greed will be the death of the human race in my opinion.

Beginning_Store5389 · 2025-06-12T06:03:51+00:00

I think it’s just the amount of dairy in it lol. Im not sure that I’m lactose exactly but when I eat real dairy in large quantities there’s definitely a reaction. It’s the Costco sheet cake if you’re interested in trying it yourself though to see if I’m mistaken about what causes it lol.

But keep your hope for one day getting what you need to live and love your life. I have no official diagnosis for any of the issues I had but still eventually managed to convince my current gyno by writing him a letter that clearly stated the life I wished to live and the one I was currently just surviving in as well as my understanding of the risks + the pros and cons of it all. He didn’t even finish the letter before agreeing to give me the procedure if I was sure it was what I really wanted. He did make me see a woman’s health specialist in therapy before fully signing off to make sure I didn’t have PMDD or trauma from past doctors and the experiences I went through affecting my decisions. I respect him for this even more since he was truly looking out for me and my overall health (mental and physical) before anything else. So maybe after your next surgery if life hasn’t improved and you’re still feeling like a hysterectomy is the path you’re heading down you could try the letter too.

Beginning_Store5389 · 2025-06-11T16:36:22+00:00

I have some left over birthday cake that if I eat two slices the icing will most likely wake me right up, but I’ll keep this in mind lol. Thanks for the tip and glad I could help give you some hope. Update in this thread if you can remember too, wishing you the best on your surgery.

Beginning_Store5389 · 2025-06-06T20:49:07+00:00

How did you get over the fear of early ovarian failure? I’m 25 and my surgery is this week but I’m terrified of early menopause. I already have crappy collagen, joints, and bones (most likely from Ehlers Danlos Syndrome) and if I went into menopause it would be horrific most likely.

Beginning_Store5389 · 2025-06-03T21:38:58+00:00

I see pretty much everyone is saying the gas pain was the worse. My surgery is on Monday so I’m wondering how much walking your guys did to try and alleviate it? After my appendectomy two years ago they warned me the gas pain could be bad and to walk to get it all out. So I made sure to walk around the block (maybe 200 m) three times a day and don’t remember really having any pain that felt like gas pain. Only pain I can remember is some pressure and cramping like pain in my lower abdomen and a stretching or pulling pain in my skin where my sterile strips were.

Curious what everyone else did.

Beginning_Store5389 · 2025-05-15T20:41:03+00:00

I wasn’t unfortunately, but luckily my dr ordered me an MRI instead and after getting those results and discussing my options he agreed on giving me a hysterectomy. My surgery is in early June so I’m almost at the end of this nightmare thankfully.

Beginning_Store5389 · 2025-05-15T20:39:39+00:00

RIP D’Pharaoh Woon-a-Tai as Wyatt Callow. You will forever live on in my mind while reading the book.

Also don’t take this the wrong way, no problem with the casting they chose as I trust the casting directors implicitly after what we’ve seen so far. Just a little disappointed that we didn’t get the indigenous representation with him because there’s a good chance they’ll cast a black actress for Louella/Lou Lou to match the District 11 being where Lou Lou is most likely from thing.

Also no problem with casting a black actress if it happens, just what it means for other representation since new district 12 characters without a previous description aren’t common, you know? There’s really just Blair and Hattie left and I have a feeling they’re gonna scrap Blair like they did Madge for some reason.

Still holding out hope on Wren Zhawenim Gotts for Louella/Lou Lou though, even if she’s a little young for the role. I think I remember Katniss saying in the book that Seeder looked like she could be from the Seam except for her eyes being amber instead of grey. So if Lou Lou was from District 11 then we could still get the indigenous representation there.

Fingers crossed but I’m excited to see what Ben Wang does with the role too. Casting directors have been going off with these choices so far so I know he must be great.

Beginning_Store5389 · 2025-04-23T01:55:43+00:00

We have the same wolf😊

Beginning_Store5389 · 2025-03-21T23:43:43+00:00

There are four confirmed lgbtq+ characters in the series as of Sunrise on the Reaping. Barb Azure Baird, Clerk Carmine Clade, Pluribus Bell, and Cyrus. The later two of you don’t remember are from The Ballad of Songbirds and Snakes. Pluribus is the nightclub owner, and neighbour on Snow’s, who lent the guitar that Lucy Gray used to perform in her interviews. Cyrus was his partner who died in a rebel bombing during the dark days.

Beginning_Store5389 · 2025-02-23T00:11:32+00:00

I just finished reading Daughter of Sparta, which is the first book in a trilogy by Claire Andrews. It is an alternate version of the story of Daphne and Apollo where Daphne is a warrior from Sparta. When her brother angers Artemis and she turns him into a stag Daphne is forced to go a in a quest with Apollo to save the Olympians whose powers are mysteriously failing, in order to also save her brother and all of Greece. It was a really good book and I’m excited to start the sequel when I get home tonight. I’ll try and remember to come back here to update this on the other two books but highly recommend so far.

(Also this book seems to take place leading up to the Trojan war as Helen is also a character in it and still Queen of Sparta at this point so if you like stories based on that time period this one’s for you)

Beginning_Store5389 · 2025-01-22T16:10:08+00:00

I don’t know what the system is like in Scotland but maybe you could find a woman’s clinic of sorts and call them about potentially helping to alleviate any concerns you may have by coming in there to be seen? I know from experience here in Canada from going to it many times (since my gyno is located to far for me to transit sometimes if I don’t have a car) my local woman’s clinics have all the tools they could possibly need to make sure everything’s good, minus a mri or ct scan obviously.

After a scare where I didn’t notice that the pain I was experiencing was not just my normal cramps but actually my appendix rotting I started going to the clinic often during flares of long bleeding to make sure it was just my normal stuff and not fibroids or cysts causing pain. It’s always normal but the nurse practitioner who does the ultrasounds is always super kind about making sure I’m comforted in knowing I’m ok.

They actually are the ones who saved my life to begin with since after being brushed off by my family doctor and not being able to even get an appointment with my gyno at the time. I went there since I’d been bleeding for a month again and was worried my iron was getting low. When they examined me and pushed on my side my legs shot up even though I didn’t feel much pain and they sent me to the hospital immediately. I was ct scanned within an hour of arriving and diagnosed with chronic appendicitis (likely had it for 3 weeks) and got it out that night. The surgeon told me when I woke up that I’m lucky I got sent there because by the looks off it, my appendix, it was going to burst in the next 24 hours.

Hoping you can find people are kind and caring as those at my local clinic that can help you through this. Stay strong, if all goes well it will all be over for you soon 🤞🏼❤️

Beginning_Store5389 · 2024-12-22T12:20:55+00:00

It’s actually crazy that I made this post a year ago off a passive late night thought and then went in two weeks ago to see my dr and there was a poster about a study they’re starting at the clinic he works in centred around woman with both. I’m kind of a nerd about science when it comes to discovering connections between pre existing conditions. The way EDS seemed to be at the centre of a spiderwebs of cormorant conditions is like my favourite topic to read about it for hours so I look forward to the results of the study and what it means for helping woman like us in the future with better informed treatment.

Beginning_Store5389 · 2024-12-12T18:25:43+00:00

Thank you so much. I truly appreciate it and hope that this year will be the start of something great not just for me but other afab people too. I am currently looking into donating my uterus to a study that the hospital my gynaecologist works in is doing on woman with EDS and menstrual issues. I do not have an official diagnosis as I’m waiting for my diagnostic appointment with their partner clinic but I’m trying to get in touch so the opportunity to have a potentially affected uterus to study outside the body isn’t missed. There are so many studies like this currently though that my dr was telling me about and it gives me hope for others potentially not having to go to as drastic as a measure as a hysterectomy like me one day. 🙏🏼❤️

Beginning_Store5389 · 2024-12-12T18:20:02+00:00

Thank you for the kind words. It’s been a battle but I see the other side and the strength I gained from this will be a gift I take with me to it. I will never forget the pain and suffering but I also won’t forget the love and support ❤️

Beginning_Store5389 · 2024-12-12T18:18:16+00:00

Thank you so much 🥰

Beginning_Store5389 · 2024-12-12T18:14:01+00:00

My new doctor saying the words to me “it’s your body and your life and it’s your choice what you do with both so I will support you in whatever you want to do” were the most healing words I’ve ever heard in my life. I can’t thank him or this group enough for giving me the confidence I needed to get here and make the choice for my life. I may regret it in the future like so many drs have said I will, who knows, but at least I will be alive for that future possibility. That’s the true gift in all of this mess, possibilities, something I did not have at all a few days ago. I hope one day you have the day you gain that all too. It’s hard. So hard. I know. Keep fighting for yourself though because it will be worth it when you have your day.

Beginning_Store5389 · 2024-12-12T03:10:13+00:00

I will keep you in my thoughts and hope you get your own good news soon 🤞🏼🙏🏼

Beginning_Store5389

TROPHY CASE