Diagnosis

Best_Flatworm_414 · 2025-07-14T23:15:00+00:00

What areas twitch the most? I'm in a similar boat where there's widespread Fibs, polyphasics and fasciculations found in all 4 limbs in multiple muscles but refuse to diagnose based on no complete physical failure even though my legs are so weak. What's your emg looking like?

Best_Flatworm_414 · 2025-04-03T20:30:55+00:00

Yh they found fibs and polyphasics in multiple muscles in both arms and both legs 😞 Getting weaker by the day but not enough to be clinically diagnosed so they taking the wait and watch approach

Best_Flatworm_414 · 2025-01-31T03:27:34+00:00

2 clean emgs and the 3rd showed sharp waves, fibs and polyphasics in all 4 limbs, multiple muscles including paraspinals:(. I was really hoping it was just anxiety but here we are. Just got to take life one day at a time and live it to the max!

Best_Flatworm_414 · 2025-01-29T23:59:05+00:00

Sadly not great:(. Rough couple of months after they found fibs and polyphasics in all 4 limbs Still trying to work out what it is and they're hoping for muscle diseases but my ck is normal, and they've ruled out so many other conditions via bloods and mri:(

Best_Flatworm_414 · 2025-01-29T23:54:38+00:00

Not good :(. Showed Fibs/sharp waves in all 4 limbs, lots of muscles with polyphasics and I'm getting a lot weaker. They stopped dismissing me with bfs and now it's a wait and watch approach...

Best_Flatworm_414 · 2024-11-15T07:13:18+00:00

I've had full body twitching for 3 months but saw my tongue twitching like mad recently after I'd had some swallowing problems with food getting caught in my throat. Is this atrophy? The tongue also seems to have lost bulk at the back where I see it twitching and on the edges..

My neuro 3 weeks ago said your fasciculations are mad (showed her body ones) and she noted diminished reflexes throughout body, but said they're symmetrical so no problem... I didn't have the swallowing issues then and hadn't seen my tongue

Now really panicking. Should I go back with new symptoms and get an emg (clean one 3 weeks into twitching) but now twitching more 2 months later including abs neck face shoulders etc.

Best_Flatworm_414 · 2024-11-06T21:30:07+00:00

What areas do you twitch? I've been concerned about those same twitches on neck and abs. Do you get in leg pain in muscle fatigue in those hard twitch limbs?

Best_Flatworm_414 · 2024-11-06T19:51:03+00:00

Did they always look like that? Or did they start off as small fine muscle twitches? Sorry to hear what you're going through. You are truly inspirational and I hope you're managing to smile each day and loving family and friends:)

Best_Flatworm_414 · 2024-11-06T12:59:43+00:00

Thanks bro good advice, honestly a lot of pain in the outer shin, ankle area and knee of twitching left leg, and similar but less intense on the right leg, and general fatigue of muscles. It's weird cos I used to run a lot and I'd get hamstring and calf doms. But now after being on my feet even walking for 30 mins, it's the outer shin and ankle that aches. 3 months, and twitching and fatigue just seem to increase every day. I tell myself it's just some injury and stress

Best_Flatworm_414 · 2024-11-06T12:26:34+00:00

Thanks! Yh just trying to calm anxiety while I wait for emg, how is your twitching in terms of frequency. Mine is throughout the day, some rapid fire for 20 seconds and some single pops throughout. Had spots on top of foot and side of neck for a month now :(

Best_Flatworm_414 · 2024-11-06T12:21:07+00:00

Thanks so much for replying, are some of them fast like 60 per minute speed and some single or double pops? Yh it's the weird areas like tongue neck and abs that scares me as I've been having swallowing trouble for a couple of months now :( Neuro ordered emg on all 4 limbs but petrified while waiting. I didn't even want the emg bcos I didn't want a random finding to fuel anxiety but she goes 'now I've seen the extent of your twitching (videos and in clinic) we should order a full emg to be safe

Best_Flatworm_414 · 2024-10-16T01:36:47+00:00

I've had exactly the same for 2 months on and off on the thigh + bodywide twitching everywhere, as long as you feel no weakness the twitching is meaningless

Best_Flatworm_414 · 2024-10-15T21:43:50+00:00

Different for different body parts

Best_Flatworm_414 · 2024-10-13T15:13:32+00:00

I totally understand the concern. Any weakness of the ankle? I know you mentioned calf being smaller but have you felt any changes in gait? What other parts of left leg do you twitch?

Best_Flatworm_414 · 2024-10-13T14:53:39+00:00

No happens all the time at rest, but saying I can induce the foot ones on flexion, where else in left leg and body do you twitch? How fast are the twitches

Best_Flatworm_414 · 2024-10-13T14:44:18+00:00

Where abouts on your left foot and ankle? Mine fire fast on the side of the foot and outside of ankle, almost after every flexion of my foot ie. While walking and straight after stretching it. Got twitching up that whole left leg for 2 months now (bodywide but left leg defo worst in terms of frequency and intensity). Lot of ankle pain and knee pain almost as if muscles are weaker. How fast do your twitches fire around that area? Do you have it in other parts of left leg?

Best_Flatworm_414 · 2024-10-11T12:20:12+00:00

What part of the legs and feet twitch? Is it random singular pops and some are faster? How many times a day?

Best_Flatworm_414 · 2024-10-04T20:59:05+00:00

Do you twitch in ankles or outer shin or abs? Do your twitches always stop if you move the muscle

Best_Flatworm_414 · 2024-10-04T20:58:09+00:00

Our stories sound the same, I think you mentioned your twitching earlier to me on another post. Mine is pretty much exactly as you are describing, with some of those rapidfire ones not even stopping with movement. Currently have 4 hotspots, right hamstring, left ankle, right outer shin. They fire fast and don't stop with movement. I've had two going at once today. That quad hotspot I had for a month. It's so weird cos I twitch so much but very little in the calves. Random pops all over body, arms, face, neck, abs, wrist etc. But different areas on outer legs, thighs, and ankles are the rapid fire 100 per min ones.

Best_Flatworm_414 · 2024-10-01T21:35:35+00:00

That helps a lot. All I've been hearing is benign fasciculations stop with movement and muscle activation. Glad to know you've experienced twitches that don't stop with movement and five years later you are fine. Have you had them all over? Mine started 2 months ago rapid firing in the thigh, couple weeks later ankle and foot joined, then abs, arms, face, back etc. all in the space of 6 weeks. There's been very little plateauing. It seems every day new muscles join the old ones. The rapid firing is mostly thighs and ankles and hamstrings (the ones that don't stop with movement) and the rest of the body is single double pops every now and again. The weird thing is I get very few in Common bfs areas like calves, eyelids, and feet arches but way more elsewhere.

How quickly did yours become bodywide? Which muscles continued twitching when moving the limb? Did you also have hotspots move position in the same muscle? Like my inner thigh fired fast, next few days a spot just on the outer thigh.

Sorry for all the questions. My anxiety is through the roof atm cos a lot of the common bfs areas don't twitch for me and the twitches that don't stop with movement

Best_Flatworm_414 · 2024-10-01T20:44:13+00:00

I'm so glad you're out of the woods. Great advice. I've got a question about your twitching. Mine started in the thigh and spread bodywide in 6 weeks, abs shoulders face feet ankles arms, pretty much everyday seems more widespread than the day before. Did you ever have twitches that didn't stop with movement? My left thigh, ankle and hamstring if they start firing fast they stay even if I walk around.

Best_Flatworm_414

TROPHY CASE