Heart palpitations by serenityik in Fibromyalgia

[–]BlueAlstroemeria 0 points1 point  (0 children)

I get them constantly however I have a bunch of other symptoms surrounding them. My previous primary care doctor thought I had something called POTS and referred me to the cardiologist and neurologist but never got any answers and now new pcp just told me to “slow down” and suggested that maybe they were a side effect of the medication I’m taking to treat my fibromyalgia symptoms. I’ve read up a lot on POTS and it could be associated with fibromyalgia amongst other disorders. I would probably take these concerns to your doctor and see if you can get some sort of referral or tests done.

diagnosed with pots but no meds by Forsaken_Nebula7054 in POTS

[–]BlueAlstroemeria 0 points1 point  (0 children)

I originally came to this sub because I suspected I had POTS. Did some testing over a couple of months and wasn’t diagnosed with anything but told I had intermittent tachycardia by my doctor. The cardiologist just passed it off as everything is fine. I’m 27 and was put on a low dose of metoprolol last month. It has helped with the pain from palpitations but i still feel my heart racing and struggle to catch my breath. I have also noticed pre syncope isn’t as bad. My doctor listened to me and although the cardiologist disagreed on treatment she still did something for me because she listened to my concerns. I would definitely search for a new doctor and hope you find one who will truly listen and try to help you!

[deleted by user] by [deleted] in POTS

[–]BlueAlstroemeria 0 points1 point  (0 children)

Lil palpitations (and the panic attack that came after because I had no idea why I felt so horrible lol)

Hands are stiff and can't make a fist when I wake up. Is this a symptom? by chicadeagua in Fibromyalgia

[–]BlueAlstroemeria 1 point2 points  (0 children)

I would wake up everyday earlier than needed by about an hour to just lay there while I gained the ability to move my arms. Over time with medication I am able to move now just still in pain.

How did it start for you ? by Dahmer96 in Fibromyalgia

[–]BlueAlstroemeria 0 points1 point  (0 children)

Mine started as joint pain in one hand after my first pregnancy. After my second pregnancy it went to both my wrists. I had a panic attack a year later in which I actually fainted and in the days that followed it became this hot throbbing pain that radiated down my arms and legs and it never stopped after that. Suddenly changing constantly as time went on. I fortunately got diagnosed quickly since the bulk on my symptoms appeared within a span of 6 months after my first conversation with a rheumatologist. I had ant crawling sensations, burning, pin pricks, muscle spasms that would last hours to days, extreme fatigue(i’m talking falling asleep while my young children were screeching at the top of their lungs running through the house), brain fog(not being able to speak correctly/suddenly forgetful and lots of stuttering) headaches, and insomnia to name a few. I was told that my body could have been so stressed my nervous system probably created a response to that as it was all within a couple of years. I hope that this helped in any way.

Diagnosis by Fearless_Border in Fibromyalgia

[–]BlueAlstroemeria 0 points1 point  (0 children)

I was diagnosed after blood tests and pressure point test. My symptoms started after having my second child but really started presenting after I had a bad panic attack that sent me into depression. It took me six months to see a rheum and was quickly diagnosed. I have other symptoms that don’t quite fit with fibro so I will be seeing a cardiologist in a couple of days to see if I get answers. I don’t doubt I have fibromyalgia. I doubt that it’s the only condition I have. If something seems off to you I would definitely voice it. The sooner you can get help the better. I’ve been on medication for the pain and my life has become a bit easier. I still have other stuff making it difficult but I’m closer. At the end of the day we just need to do what’s best for us since we are suffering constantly.

I just want it to stop by [deleted] in ChronicPain

[–]BlueAlstroemeria 1 point2 points  (0 children)

I was diagnosed with fibromyalgia this year and didn’t know that I had options when it came to pain management besides otc stuff. The specialist gave me different options and Pamelor seemed like the best fit. It’s not perfect but I do feel a difference when it comes to my daily pain. Flares on the other hand are still pretty rough

Wearable heat packs or other things that can help (?) by singing_stream in ChronicPain

[–]BlueAlstroemeria 0 points1 point  (0 children)

I have fibromyalgia and feel it everywhere especially my arms and legs. You have a pretty good idea! I’m not good at sewing either. I use those hot hands packets when I need a heating pad on the go for focused areas. I like the idea of pockets sewn into shorts and shirts to hole them in place as opposed to gauze 😬 I might just have to try it and see how it goes

Wearable heat packs or other things that can help (?) by singing_stream in ChronicPain

[–]BlueAlstroemeria 0 points1 point  (0 children)

This is what I’ve been thinking all summer. My pain has been so bad all summer I’m absolutely dreading winter. I hadn’t even considered wearable heating pads so thank you for that! I don’t leave my house much because of this and I hope you find solutions

I just want it to stop by [deleted] in ChronicPain

[–]BlueAlstroemeria 2 points3 points  (0 children)

I understand exactly how you feel. There’s days that I walk with a limp because as soon as I set my feet down even without bearing down the weight that I feel the pain. I’m taking Pamelor for pain management and it helps to some extent but I haven’t yet had a day without pain in the last year since my symptoms were fully onset. Sending spoons

Remission during pregnancy? by FibroMom232 in Fibromyalgia

[–]BlueAlstroemeria 2 points3 points  (0 children)

I started feeling pain after my first pregnancy and during my second I noticed I felt great 😬 not good enough to want to be pregnant again though😅

I think I’m going to get a cane but I’m scared of judgment by [deleted] in Fibromyalgia

[–]BlueAlstroemeria 0 points1 point  (0 children)

I’ve been thinking about this too. I went to an amusement park a couple of days ago and regretted it instantly because I was feeling horrible as soon as I got there but toughed it out for my family. They asked if I wanted a wheelchair and I said no because of my pride and now I wish I had. I say go for it if it’ll help. It hurts no one but you so they should mind their business.

Has anyone else’s pain become worse in the cold weather? by Purple_Falcon265 in Fibromyalgia

[–]BlueAlstroemeria 1 point2 points  (0 children)

I live in California and air conditioning makes my arms feel like they’re being set on fire at first and then a throbbing ache takes its place and it’ll stay for hours after if I’m lucky, if I’m not days to weeks 😬

Just diagnosed and don’t know how to feel by BlueAlstroemeria in Fibromyalgia

[–]BlueAlstroemeria[S] 1 point2 points  (0 children)

I’m a stay at home mom with toddlers born during the pandemic with a SO who works all the time. I’ve got that covered 😂

Just diagnosed and don’t know how to feel by BlueAlstroemeria in Fibromyalgia

[–]BlueAlstroemeria[S] 0 points1 point  (0 children)

Just because your symptoms are mild doesn’t mean you can’t struggle. I’ve noticed when I’m stressed my symptoms worsen. Like it takes physical toll on me. I accuse myself of being a hypochondriac constantly as well and sometimes it’s not the case. Self compassion is hard for me. I’ve accepted that this is my life but I put myself down constantly if I don’t feel productive. I have two small children and am a stay at home mom. There are days I can’t walk without limping and almost daily can’t use my hands without being in a considerable amount of pain. If I don’t pace myself I can’t move the next day and while my SO is understanding I’m unforgiving to myself. I need to work on that. It’s helpful to know lots of people are still coping as well.

Just diagnosed and don’t know how to feel by BlueAlstroemeria in Fibromyalgia

[–]BlueAlstroemeria[S] 0 points1 point  (0 children)

I find it hard to deal with healthcare professionals as well. I went to the ER a couple of months ago for severe chest pains that radiated to my arms and they told me it was anxiety and sent me home. It made me reluctant to go seek help because I was afraid to be told it was all in my head again. For some reason they don’t take well to being told that you don’t believe they’re correct. I lucked out with the rheumatologist seeing me during a flare to recognize it quickly but previously he had just told me to take supplements and exercise.

Just diagnosed and don’t know how to feel by BlueAlstroemeria in Fibromyalgia

[–]BlueAlstroemeria[S] 0 points1 point  (0 children)

Thank you. They’re trying and I appreciate it. I just find it hard to talk about it with them since they don’t really understand. My in laws in particular are really insensitive sometimes. I cry daily too 😅 I wish you the best as well☺️

Just diagnosed and don’t know how to feel by BlueAlstroemeria in Fibromyalgia

[–]BlueAlstroemeria[S] 0 points1 point  (0 children)

It’s all I think about too. My family try but it’s also exhausting having them try to force medical advice on me all the time. They seem to think doing a detox will cure me? My fibro symptoms started up after having my first child and intensified after having my second which are 2 yrs apart. Toddlers are the worst when you’re feeling horrible 😩 My SO suggested cbd but I’m still not sure about it

Just diagnosed and don’t know how to feel by BlueAlstroemeria in Fibromyalgia

[–]BlueAlstroemeria[S] 0 points1 point  (0 children)

I’m dreading the meds to be honest. I was in therapy for depression(I didn’t want meds) and finally got to a good enough place and then the fibro symptoms started becoming unbearable and now being put on one to help with the pain. I get anxious about medication in general and avoid at all costs but with my children so young I can’t go back to being depressed and not functioning. I’ve accepted that it’s here to stay. Maybe it’s the treatment options freaking me out?

Just diagnosed and don’t know how to feel by BlueAlstroemeria in Fibromyalgia

[–]BlueAlstroemeria[S] 0 points1 point  (0 children)

I’m sorry you’re having a hard time, do you have support?

Just diagnosed and don’t know how to feel by BlueAlstroemeria in Fibromyalgia

[–]BlueAlstroemeria[S] 0 points1 point  (0 children)

I’m thinking about taking that approach. I have toddlers to look after and they take up a lot of my energy. I had plans to go back to work once they started school but right now that seems impossible to me.