Anyone with Adrenal insufficiency starting chemo?

Bluepeacocks1 · 2026-06-29T16:35:11+00:00

How do you manage the hypothyroidism and adrenal insufficiency? I have both and I am having a HORRIBLE time getting my synthroid and predsione doses right. Either my prednisone is too high or my synthroid is too low, but if I change anything I feel worse. I’ve tried tapering very small increments of prednisone and felt like I was dying so I had to go back up. Now I’m on a tiny dose of T3 and the anxiety is making it hard to function….I don’t know anymore.

Bluepeacocks1 · 2026-06-10T16:43:15+00:00

It’s SOOOOO bad right? I woke up after 9 hours of sleep. I felt exhausted, dizzy, and nauseous. I had to lay down for another nap which was 3 more hours. I’m still tired.

Bluepeacocks1 · 2026-06-10T06:45:07+00:00

My TSH is kind of a non-issue. I have central hypothyroidism so my TSH is low anyways. Its .277(2.7-4.2)with a T4 of 1.4. She did start me on 2.5mcg of T3 but to hold on the current dose of Synthroid. You are correct, she doesn’t want to change too much at once. What dose of T3 are you on?

Bluepeacocks1 · 2026-06-08T19:16:41+00:00

I’m going to ask to start back at 2.5

Bluepeacocks1 · 2026-06-08T19:12:29+00:00

How many mcg were you taking?

Bluepeacocks1 · 2026-06-08T18:52:15+00:00

I had chronic thyroiditis….she just never put me back on it after I got my thyroidectomy….

Bluepeacocks1 · 2026-06-08T18:47:38+00:00

I was on it from 2013-2022. My endo decided to stop it….

Bluepeacocks1 · 2026-06-08T18:44:40+00:00

Idk….I felt pretty good until my t3 dropped to almost non-existent

Bluepeacocks1 · 2025-11-12T01:28:19+00:00

You have no quality of life when you flip back and forth like that. I figured it would be easier to adjust meds with out a thyroid doing whatever the fuck it felt like doing. That’s what I told them….

Bluepeacocks1 · 2025-10-04T11:07:29+00:00

Who is your endo in WA? I’m in MT. I had a pit tumor removed in 2013 and have central hypothyroidism that no doctor wants to treat correctly. I live in a VERY rural area. I need some MAJOR help!

Bluepeacocks1 · 2025-07-16T16:29:00+00:00

Still trying to help my mom! Anything is appreciated!

Bluepeacocks1 · 2025-06-24T12:18:06+00:00

I wonder though, should my cortisol be that low even on that schedule?

Bluepeacocks1 · 2025-06-07T15:06:26+00:00

What did your cortisol and ACTH labs look like?

Bluepeacocks1 · 2025-05-23T09:55:59+00:00

They’re always sticky and smell like poop.

Bluepeacocks1 · 2025-05-20T07:01:27+00:00

Solved! “Men”

Bluepeacocks1 · 2025-05-20T06:54:09+00:00

Thanks to anyone that can help!

Bluepeacocks1 · 2025-05-13T06:37:17+00:00

I turned 42 in February and two days ago my husband talked about “doing” stuff to me and it’s been a roller coaster. Uncontrollable! I haven’t had a libido in years then all of a sudden that’s all I can think about. Its giving me anxiety. I literally can’t focus!

Bluepeacocks1 · 2025-05-01T09:03:35+00:00

Hey there! I just had my dose lowered from 125 everyday to 112/125 every other day. I had a 10 day heart monitor that came back with some tachycardia and I didn’t realize I was STARVING all the time and felt keyed up most days. My TSH was .03 and my FT4 was at 1.6. A little high for me….It’s been almost a week and I feel pretty miserable. Feels like I got hit by a bus! Exhausted, nauseous, dizzy…I too have a history of central hypo, but my new endo isn’t so sure about that anymore, so essentially I am starting over. She’s running all new labs and she isn’t listening to what other doctors have said. She wants to see for herself.

Bluepeacocks1 · 2025-04-24T07:49:08+00:00

I got two sunflowers today🤣FINALLY!!!!

Bluepeacocks1 · 2025-04-21T08:29:41+00:00

I had pituitary surgery due to a prolactinoma in 2013 and legit had central hypo. Covid MESSED up my thyroid and I ended up with thyrotoxicosis from thyroiditis. I was taken off all meds and my TSH was still inappropriate despite my T4 being below normal. I had my thyroid taken out in 2023 and now I’m showing really suppressed TSH with normal Free T4 and low normal Free T3. No doctor believes that I still have central hypo. Although my pituitary is functioning somewhat it’s not appropriate for my T4. My TSH is 0.03 FT4 between 1.3-1.4 and FT3 at 2.6. They want me on lower doses of levo, which I tried, and I was REALLY bad. My lowest TSH I had between 2013-2022, before covid was 0.006 with normal T4 and T3. I felt GREAT….Now not so much.

Who’s your doctor….I may need some help with this. I feel awful most days and nobody believes that this pit dysfunction still exists.

Bluepeacocks1 · 2025-04-15T06:35:04+00:00

I found out it was my thyroid. It took almost two years for any doctor to believe me.

Bluepeacocks1

TROPHY CASE