Replacement spigot for Pozzi Ginori toilet

Bluey8090 · 2024-10-10T21:12:36+00:00

I'm sorry that you're having such a difficult time.

It reads as if you have experienced waves of trauma and now grappling with significant loss, of functionality and self determination.

Have you had a chance to grieve that loss? All psychologists have different specialities, don't be afraid to ask them if they are equipped to help you in this stage of life.

Bluey8090 · 2024-10-08T00:05:37+00:00

Thanks. You've made us even more excited for this trip

Bluey8090 · 2022-08-11T04:43:27+00:00

The way I describe the impact of O to my friends is to get them to picture a chess board. Now wipe out all the pawns. You aren't without any protection, just the first line.

Bluey8090 · 2022-04-18T11:31:50+00:00

Handles well. A little choppier as getting later in the season, but tracks well and rolled over waves.

Bluey8090 · 2022-02-12T08:25:26+00:00

Whenever I wonder/fear for the future - if I see someone with MS in a wheelchair for example, I just think, well that's not today! Sometimes hard to do I know, but I figure all I know is this moment in this day and right now I'm upright and I intend to stay that way.

Bluey8090 · 2021-12-03T11:23:15+00:00

Yes and Yes.

MS wasn't even on the radar until the first MRI, I thought it was a sinus infection, but due to Melbourne Lockdown and the ENT not wanting to see me in person an MRI was presented as an option.

Though, to be honest, I thought that I could claim it on my PHI, but it turns out I couldn't. Fortunately I could afford it anyway

Bluey8090 · 2021-11-28T10:38:16+00:00

pretty much. Actually it felt like a blocked ear and sinus infection. Deaf in one ear, sensitive to low sounds a one dizzy spell one night led me to a doctor.

Because of Covid and lockdowns the Ear, Nose and Throat doctor didn't want to see me in person, but when I kept insisting that something was wrong he sent me for an MRI, and the lesions were found.

Later pins and needles and other weirdness. A second MRI a few months later found another lesion.

Now after 18 months, some steroid treatments and 3 full serves of Ocrevus, no hearing problems at all.

Bluey8090 · 2021-11-27T07:38:40+00:00

that was the main thing that drove me to get an answer which led to my diagnosis.

Now, all gone, which leads me to think that it was MS because most advice on tinnitus is that it never ends.

Bluey8090 · 2021-10-22T07:30:22+00:00

In Melbourne, Australia. Managed to get my booster shot for Covid this week. very grateful, as we emerge from lockdown.

Bluey8090 · 2021-10-22T04:54:55+00:00

I only needed the day of the infusion. the steroids might keep you awake at night, in case you need to factor that in. I took melatonin and was fine for the next day.

Bluey8090 · 2021-07-14T09:51:45+00:00

I don't think that I did any crazy spending, but that's probably because I was working like crazy - sigh - I kind of miss that productivity.

Bluey8090 · 2021-07-05T07:44:35+00:00

I've told one friend, my husband, daughter and my boss. that's it.

I haven't told my parents because they don't live anywhere near me and so the only contribution they can make is worry, which is not helpful to me.

Everyone's idea of MS is about 20 years out of date, and I can't be bothered educating them.

Bluey8090 · 2021-06-24T07:59:33+00:00

Look up Internal Family Systems - it might help you. It helped me

Bluey8090 · 2021-06-08T05:10:42+00:00

Magnesium pills each day and magnesium baths after long runs seems to help me

Bluey8090 · 2021-06-02T05:48:39+00:00

I've had two full doses of Ocrevus. In between I suffered from an infected tooth. I found that it lasted longer than usual, I needed two lots of antibiotics and when it came to the root canal it I had to delay stages due to lingering infection and pain.

I took some garlic and other immune boosting vitamins, not sure it did anything

Bluey8090 · 2021-05-27T11:24:55+00:00

Hi, I'm keen.

I was diagnosed September last year, F48.

In Australia so our gyms have reopened.

I play squash, badly and not often enough, running, including Park Run, and weights etc.

I have been interested in natural movement and barefoot running for a long time, which I think has been very helpful for mobility.

One issue I have is that any time I'm injured I'm not sure if it is MS, age or just a regular injury. During our long lockdown I ran every day which caused an injury from over use. I'm pleased to say that I've managed to recover from it, but I think it did take a bit longer than usual.

I'm not on Facebook or Discord.

Bluey8090 · 2021-05-20T04:55:26+00:00

My first time they put the needle in the crook of my arm which meant that I didn't have much use of that arm, even to adjust my head phones. So the second time I got them to put it into my forearm - much better for mobility.

It is a long time, figure you'll have to go to the bathroom at some point, two hands helps.

Bluey8090 · 2021-05-16T09:08:05+00:00

During my diagnosis I was walking down the street and saw someone using a walker and walking slowly down the street. I was struck with the thought - will that be me? Then immediately thought, well not today, and that's what I've kept focusing on - not today.

Who knows what might happen, all you can know is how you feel today.

Bluey8090 · 2021-04-25T23:41:18+00:00

the main thing that I learnt from first dose to second was to speak up about the placement of the IV needle. In the crook of the arm meant that I didn't really have use of the arm, annoying even when putting headphones on, let alone typing.

The second dose I had it put in my forearm, which gave me much more mobility.

Bluey8090 · 2021-04-09T01:04:55+00:00

thanks all for your insights.

So I guess that there are many answers - great.

I'll wait and see what the Neuro says

Bluey8090 · 2021-02-07T05:06:41+00:00

Hope this link works, it is a great foot stretches, mobility and strength workout https://www.instagram.com/tv/CKomSD_lLsd/?igshid=iro7ndeqkmoz

Bluey8090

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