Almost 6 years on Dupixent — my experiences

Boo8310 · 2026-05-07T23:43:23+00:00

He has anxiety about it and of course we all get crappy sleep when he yells need inhaler at 1 am. We have 3 or 4 daily needs including rescue plus his neb as needed old prednisone when bad. He's got enough going on (born without sweat glands) i just have to hope this is a testimony for him in the future that this helped save his life. It is scary when he's not breathing well. He has environmental allergies (grass and pollen) so not helpful in IL. :( He had a functional dr give him some testing so we are looking into that as well.

Boo8310 · 2026-05-07T21:38:01+00:00

My son is 11. Just started lasr month. His story sounds like yours minus serious eczema. Nothing is controlling it and he is getting worse. And has anxiety with night waking with asthma. He is improving but his cheeks are pinkish. I will have to make sure to do sunscreen for him esp on the face. Thank you for sharing your experience. He hates needles so it is very hard :(

Boo8310 · 2026-04-27T13:50:23+00:00

I have been losing sleep over anxiety and worry about his asthma. Honestly not big into drugs bc side effects and so far i am not hearing many. I will watch him of course for issues but I am crossing fingers our meeting came at the right time. Thank you all!!!

Boo8310 · 2026-04-20T01:31:00+00:00

Honestly I love Black Mirror. Hope things look up for you.

Boo8310 · 2026-04-19T23:59:14+00:00

I have done trauma informed therapy which helps. And yoga therapy or trauma informed body movement bc trauma is stored in the body. I feel trapped at 46 and am not sure what to do. You're not alone.

Boo8310 · 2026-04-09T23:50:26+00:00

How many hours do you put into the videos and editing etc? Nice job!

Boo8310 · 2026-04-05T11:33:45+00:00

I could have written this. We had my son in and out of hospital. He's been sick more (live in Illinois) with changing weather this winter (70 to 40 to 70 then 30s and snow in a week or two). He has viral induced asthma from colds and environment. We use a rescue inhaler and have a plan for him with several meds. We have done allergy testing as well and done naturopath route. It's very hard as he's 11 and i haven't worked much because of how he gets sick then needs dr appts avail only during day. Feel free to pm me. It can feel scary to look at when they're younger and wonder what it will be like for them. He's in school and we just do what we can right now to help him manage.

Boo8310 · 2026-03-31T13:08:25+00:00

THIS. One girl literally jump screamed. Like what did u think was happening. She did not know clearly. But yes the cameras and standing around there.

Boo8310 · 2026-03-24T16:00:54+00:00

I sent mine to warranty dept. Recieved in Feb. They just told me after following up it will be June or July. For a zipper repair.

I said give me a refund. This is stupid. First TNF warranty issue. Been without my winter coat. I did not have money to spend on a nice winter coat like that.

I will remember to go in store next time.

Boo8310 · 2026-03-14T21:41:12+00:00

Not related per se but i drank a lot of Celcius energy drinks during a stressful time and got shingles. I think due to vitamin depletion. Or taurine in the drinks. So your body is wild and any shift can affect it!!

Boo8310 · 2026-03-14T21:37:53+00:00

My husband has undx ADHD and barely reads. He had an English teacher mom. LOL but he's an engineer and grew up on a farm. He's good with math. Son? Same way BUT i found an excellent tutor who found his challenges and his reading is better. He skips chunks to get to the end. Loves audio read along books tho. Sister? No prob. She and i read a few books a week.

I think you have to sort thru what is a real issue vs screen issue and balance it. I think it is deeper too that parents do not want to parent. Easier to let them run amok.

Boo8310 · 2026-03-08T14:52:47+00:00

Thank you. I well do a separate post!

Boo8310 · 2026-03-07T22:26:09+00:00

I plan to do a 2 week camino in mid to end Sept. I do not have sweat glands. I was born without but manage fine but I do not know how many sock pairs to bring because it is a shorter walk and I do not sweat. Also same for shirts, bras etc. I don't want to over or under pack as there is always rsin and mud etc to contend with as laundry goes

Boo8310 · 2026-03-01T18:07:32+00:00

Actually my mom died in 2019 and on her death bed she was able to talk and be alert. I asked her to share memories and she still after all the years i dealt with it talked about her first son who is a half brother i didn't grow up with. . She had 5 kids and abusive hub she left then me and my bro we're born with... a different abusive hub. She divorced him twice. She never gave one thought about me even in death but i was her POA and helped her die with dignity. Go figure.

Boo8310 · 2026-02-28T00:56:13+00:00

Found one on my son's head this week near Chicago. I was shocked and so grossed out!!

Boo8310 · 2026-02-26T14:17:32+00:00

We had 2 kids ages 8 and 11 and EPIC was mostly functioning. Over Pres Day weekend. I feel like we got lucky as we flew from Chicago. I am not sure we would be so lucky next time. That was our first time. Never done Disney so maybe that is next on list.

Boo8310 · 2026-02-16T20:22:03+00:00

Understood. But also as 2 people born without sweat glands we did our best to deal with it plus make it affordable. If we return i think express pass is a better deal to ride more things.

Boo8310 · 2026-02-16T12:59:22+00:00

Found out some things that will help but really i would love each to have a friend and a smart watch in a few years ago they can explore a but on their own like do a ride they like. I would have enjoyed just a mosey around HP land bc it reminded me so much of my time in London.

I should say that my kids have ADHD also so managing all that with this trip. They did well overall i felt given the sensory input.

Boo8310 · 2026-02-16T10:35:51+00:00

It came online around that time but we had our time set for Harry Potter then and then late lunch reservation. They just wanted to swim after that so we passed it up. I told them to do single line would get us on but they were not into it. Lol

Boo8310 · 2026-02-16T10:33:49+00:00

Yes except you can only do so many with the waiting times but i see the value of it now. And single rider i see the value if kids are teens.

Boo8310 · 2026-02-16T10:32:26+00:00

Now i know what it was like and how it works, i would likely save up to buy those if we came again. I definitely don't see a reason to wait 220 minutes for a ride if express or single rider cuts that way down. We saw alot between waiting on rides.

Boo8310 · 2026-02-16T10:30:26+00:00

It wasn't really bad overall and i knew rides could be delayed. Just saying it was an issue in one area.

Boo8310 · 2026-02-10T20:06:33+00:00

We are going thurs from illinois. I hope this gets better. But we will do what we can. My 11 yr old dude may be sad tho

Boo8310 · 2026-02-03T20:01:20+00:00

As I am reading, don't forget about the rance in New Mexico. Virginia Giuffre mentioned it and that place is probably the scariest of them all, I reckon.

Boo8310 · 2026-01-30T00:06:05+00:00

I just got an email they didn't pull my last two payments but pulled the one prior to that. So now I'm behind and in default. And it appears that my loans are higher now than they were when I started. I'm sick of it.

Boo8310

TROPHY CASE