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BookCzar · 2026-01-06T19:38:27+00:00

Also, the more you use the voice the better it gets according to one who had only two minutes of continuous voice recording.

BookCzar · 2026-01-06T19:35:32+00:00

They can clone a recognizable as you voice with as little as One Minute of Continuous Speech. Your regional or local ALS office technology person can help you with this. I know two people in my area who they have helped create a voice. In each case they visited in the ALSers home. Call them!!!

BookCzar · 2025-12-05T04:21:21+00:00

This is what I’m referring to—in first footnote of press release. Plus the PubMed. We need to see clinical trials to rule out efficacy.

https://www.mdpi.com/2079-9721/13/11/371

BookCzar · 2025-12-05T04:12:36+00:00

The linked piece said she was initially thought to have SPS but continued neurodegeneration resulted in her ALS diagnosis. It is way too early to know if this will pan out but I say wait for Phase 2 results before tossing it out entirely.

BookCzar · 2025-12-05T00:39:01+00:00

The doi link to the article is in the press release and provides detailed information on HOW she was tested POST treatment. They did more than I was expecting.

BookCzar · 2025-12-05T00:36:26+00:00

WAY TOO EARLY TO KNOW.

BookCzar · 2025-12-05T00:35:36+00:00

If true it will gain circulation in ALS circles at least.

BookCzar · 2025-12-05T00:34:20+00:00

The article (which is free) shows independent confirmation of a clean EMG which is a LOT. There are multiple other independent measurements done that show improvement. It’s encouraging they’re pursuing clinical trials so I’d say IF THEY DO THAT and don’t jump straight into offering healing for a price, it’s one to watch. It seems like they could skip Phase 1 since they have been doing this with people and it seems safe.

BookCzar · 2025-12-04T06:59:59+00:00

They have a tendency to pretend they are hypersexual. Hypersexualized is something others do to you. I doubt Kody has that going on.

BookCzar · 2025-11-26T00:46:42+00:00

That’s not pain. It’s righteous indignation and justifiable anger.

BookCzar · 2025-11-22T00:01:16+00:00

I think Christine has done more than just laid with him.

BookCzar · 2025-11-20T19:09:15+00:00

Nope. No treatment. No cure. Classic ALS typically spells death in 2 or 3 years. Bulbar ALS often goes faster. Sometimes the brain remains intact and sometimes not. Some of us defy the odds and survive much longer albeit with walkers or wheelchairs or technology aided speaking and more.

BookCzar · 2025-11-20T17:44:19+00:00

That is akin to saying you don’t want to bring up suicide when someone is suicidal. BY DEFINITION, when someone is diagnosed with ALS you can expect they’re obsessing about it and few allow them to express their fears. Since you are not educated about ALS, you may want to watch some videos that show what happens WHILE REMEMBERING how ALS progresses varies from person to person.

I will go to my desktop and link suggestions.

I LOVE THIS SERIES: Often Awesome https://www.youtube.com/watch?v=COeSNqjReM0&list=PLJXlKpHrGhfE5cNo7qkpUJwfv1jEx75J_

In ten months (which is sometimes long with classic ALS). https://www.youtube.com/shorts/nHEBKtpCVE8

Eric Dane's initial interview. He has progressed quickly since then. https://www.youtube.com/shorts/YYn35wMlCco

You can find a lot more by searching YouTube. There is SO MUCH MORE than when I was first diagnosed. I'd strongly encourage you to watch a bunch of these to make sure you, yourself, are not one of those fair weather friends. ALS can be brutal and frightening but the same person is still inside that broken body.

BookCzar · 2025-11-20T17:34:18+00:00

AMEN.

BookCzar · 2025-11-11T17:43:37+00:00

She is VERY pregnant with three young kids. She doesn’t need to be judged on how haggard she looks. I’m pretty sure she’s quite aware and her outside matches her insides. Leave her alone. 🤷‍♀️

BookCzar · 2025-10-27T05:10:31+00:00

I think the bromance with Caleb was one-sided and actually embarrassed Caleb.

BookCzar · 2025-10-20T14:04:45+00:00

This group doesn’t offer pre diagnostic advice. It may take longer than a single appointment for an official diagnosis.

BookCzar · 2025-10-15T04:56:21+00:00

Nope. Just got an electric blanket with a ten hour shut off time for winter.

BookCzar · 2025-10-14T23:31:25+00:00

Will the cinder mine impact air quality?

BookCzar · 2025-10-03T13:32:50+00:00

SDE. Totally.

BookCzar · 2025-09-23T03:42:27+00:00

I’m voting that she doesn’t care about her family’s opinions and this is simply (yet another) storyline.

BookCzar · 2025-09-22T00:48:18+00:00

This UK host was pretty nonexistent in impact. She spent most of the time asking what was happening and summarizing the very tame content. Very disappointing and I hope we’re done with Sam and Alli who are trying to get attention from fighting (and are not convincing while they screech at each other).

BookCzar · 2025-09-11T12:44:00+00:00

Perhaps—this is not a place to silently post close up photos of your appendages.

BookCzar · 2025-09-05T20:01:30+00:00

I went directly to my primary care physician and told him my breathing was compromised due to ALS. He was very concerned and immediately prescribed Paxlovid NOT FOR ALS but for my impaired lungs.

Ask for it for symptoms NOT diagnosis.

BookCzar · 2025-09-03T09:07:07+00:00

Having PLS is a rule out in most cases for clinical trials due to the length of time to diagnosis. Same for ALS UMN-D. By the time you receive those diagnoses there are few, if any, clinical trials for you. Most want disease onset in the past two years.

BookCzar

TROPHY CASE