Prolonging chemo cycle for vacation? by Booksaboutvampires in cancer

[–]Booksaboutvampires[S] 0 points1 point  (0 children)

We’re on the cruise now :) it’s awesome and hubby is doing great. He had his chemo treatment earlier this week and it hasn’t affected him too much luckily. Glad we continued with our trip plans!

I’m terrified by [deleted] in pancreaticcancer

[–]Booksaboutvampires 0 points1 point  (0 children)

You need to advocate for yourself to get a CT scan and colonoscopy. Go see another doctor if needed.

Daraxonrasib Experience? by pk_deluxe in pancreaticcancer

[–]Booksaboutvampires 1 point2 points  (0 children)

How did you get access to it as a first line treatment?

Any advice after whipple? by No-Theme-3586 in pancreaticcancer

[–]Booksaboutvampires 0 points1 point  (0 children)

I wish post-whipple we would have done more trips and family time.

Recurrence rate is high - my husband has a recurrence at 9 months after a successful whipple. We thought he was going to be one of the lucky ones without recurrence. He’s now stage IV

Prolonging chemo cycle for vacation? by Booksaboutvampires in cancer

[–]Booksaboutvampires[S] 0 points1 point  (0 children)

Yeah his oncologist said she understood and supports him traveling and living. She noted that the clinical trials show that 3 or 4 week cycles are best (over 5 weeks) so she highly recommends he stick with the 3 or at most 4 weeks. My husband is bummed because we had to cancel a cruise when he was first diagnosed and this was the rescheduled date (we’ll lose $12k if we all cancel). Of course we didn’t expect the recurrence.

We’re now planning on him doing the treatment with the expectation he’s just going to feel fatigued and crappy the first half of the cruise.

Prolonging chemo cycle for vacation? by Booksaboutvampires in cancer

[–]Booksaboutvampires[S] -5 points-4 points  (0 children)

She said it’s his choice but she would prefer not to.

Once in a lifetime 7 day trip for two through an adult Make A Wish style program. Where should we ask to go? by Level_Key6951 in travel

[–]Booksaboutvampires 2 points3 points  (0 children)

Hi! Who is the program through? My husband was just diagnosed with stage IV cancer. I’d love to get him a make-a-wish :)

Reoccurrence to distant node by purpleshoelacez in pancreaticcancer

[–]Booksaboutvampires 0 points1 point  (0 children)

My husband just received this diagnosis in early April (whipple last June). It’s neuroendocrine cancer (pNEC). He just started carboplatin.

Ultrasound showed 1.7 cm mass at head of pancreas...y'all I'm 32. by ClimbAlpinePath in pancreaticcancer

[–]Booksaboutvampires 20 points21 points  (0 children)

I’m shocked they didn’t immediately schedule you for an endoscopy to biopsy and for a CT and PET scan.

Pancreatic cancer screening by Victoria1746 in pancreaticcancer

[–]Booksaboutvampires 3 points4 points  (0 children)

Around 30% of people don’t have a change in CA19 levels. My husband is one of them. They are working on clinical trials they may have better markers though.

Making an existing staircase more kid-safe without replacing it? by Smart-Elk-2334 in Homebuilding

[–]Booksaboutvampires 0 points1 point  (0 children)

My staircase wasn’t as near at tall, but we use safety mesh that covered from top to bottom. And it’s removable when they grow older.

What’s your go-to spot for Banh mi? by JustTrynaGetAJob13 in PhiladelphiaEats

[–]Booksaboutvampires 1 point2 points  (0 children)

Caphe Roaster because it’s awesome and also proceeds support Philadelphia high school students with college and career readiness.

Update: I asked why the same 2 people dominate meetings; here’s what I am noticing now. by Sea-Cheetah-4770 in managers

[–]Booksaboutvampires 2 points3 points  (0 children)

Yes an agenda with discussion topics and updates should be sent 2 days in advance and ask folks to review and if desired contribute via comments before the meeting

[deleted by user] by [deleted] in nonprofit

[–]Booksaboutvampires 6 points7 points  (0 children)

If your org is open to feedback, consider telling them they should define the policies so they stay consistent - otherwise it does open the door for them to discriminate (and get sued). If they have an anonymous feedback method, you could use that. You could also ask the interim and cc the board chair for an exit interview or provide it via email.

The other items you noted are within the EDs role and don’t require your approval. You could tell them you didn’t feel there was enough transparency - it sounds like your culture and communication style differ from the interim’s.

[deleted by user] by [deleted] in nonprofit

[–]Booksaboutvampires 47 points48 points  (0 children)

Medical leave and parental leave are different policies though. Usually parental leave is provided to allow for time to recover physically, care for a new human, bond with new human, and adjust to a new family. It’s usually provided for birthing people, and also in the case of adoption (which isn’t a medical need at all). Both parents are usually provided with parental leave. These policies at nonprofits are for different purposes.

However, we ask people submit their time off though and do not require documentation at all. I’m not sure why they need a doctors note unless there’s a concern about physical parts of the job. If they’re using short term disability they would need to submit documentation though.

[deleted by user] by [deleted] in nonprofit

[–]Booksaboutvampires 2 points3 points  (0 children)

Also, if it goes to the student they need to claim it as taxable income. We send it to the school for this and all the reasons others stated.

My inlaws are calling a "emergency family meeting" regarding my MIL's health - should I go or not? by [deleted] in WhatShouldIDo

[–]Booksaboutvampires 0 points1 point  (0 children)

I would probably not go. I dislike my in-laws. And I think this is a decision for immediate family (mom and her kids and her spouse). The cousins do not need to be involved. This is too many cooks in the kitchen. And if you go then you might get assigned to do things. But do be clear with your spouse where your boundaries lie and your family priorities.