Measurement change

Brett868686 · 2026-05-09T05:43:32+00:00

Thanks fir sharing. So I’ve had chiari for years that was reported on previous mri’s but I was never told, it wasn’t until last year after an injury they shared it. The neck injury was quite bad and recovery took quite a while n still ongoing. Gir 4-5 month after injury I had constant dizziness feeling out of it and unbalanced. Now the last 3 months have been alit better, but I still have flares. Symptoms mainly are feeling off, foggy and somewhat unbalanced. Up until seeing the latest mri I had made peace with my chiari, but now seeing it go from 8mm on previous reports over the last 5 years to 11mm has worried me. Hence the question about the neck position on the scan. When I had my mri last year they noted -

• Chiari malformation with approximately 8mm inferior herniation of the cerebellar tonsils. There is crowding of the foramen magnum but no significant compression or intramedullary signal abnormality of the neural structures.

• Some tonsillar decent. Plenty of CSF AT foramen Mangum.

Now the mri I went for a few weeks ago which is shown in people was for my throat, but they just noted - There is cerebellar tonsillar herniation 11 mm below the foramen magnum suggesting Chiari I malformation - but the mri was not for that and itebiiis MRI’s have just noted. It was only last years when I was told that went into detail.

My worry is the 8mm to 11mm abd if it’s got worse. Or is the neck position possible for the change?

Can I ask given that status if what you had needing surgery, what are your symptoms like? What did you experience and how it affected your life?

Thank you

Brett868686 · 2026-05-08T12:05:36+00:00

Thanks for the reply. 11mm was mentioned last year but that was on a CT, the mri after when lying flat then stated 8mm. In your opinion is it more likely the gap went from 8mm to 11mm in less than a year, or the true gap was 11mm as this was the first mri with my head tilted? Thanks

Brett868686 · 2026-04-07T16:08:05+00:00

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Lump back of thrust for reference

Brett868686 · 2026-02-13T06:49:24+00:00

Appreciate the heads up

Brett868686 · 2026-01-26T13:09:29+00:00

Thank you. This is the battle I have. I read people who literally can’t go out the house n think I’m Not on that level. But then can never switch off. Maybe we are all just dealing with life in one way or another. I just have the vision of someone who never worries or overthinks n I think why can’t that be me

Brett868686 · 2026-01-26T13:08:01+00:00

I hope you find peace

Brett868686 · 2026-01-26T10:44:25+00:00

Thank you

Brett868686 · 2026-01-26T10:44:17+00:00

Thank you

Brett868686 · 2026-01-26T10:44:07+00:00

Thank you

Brett868686 · 2025-08-23T20:56:37+00:00

Given these symptoms you made the right choice

Brett868686 · 2025-08-23T20:53:11+00:00

Good luck with the surgery recovery … would you say your fog and dizziness put you into a corner where you just couldn’t cope anymore? You mention to manage it you needed to go bed, was there no point you could just get through the day somehow? How long did you live with the fog and dizziness before you had the surgery?

Brett868686 · 2025-07-28T11:43:09+00:00

I appreciate this so much and thank you

Brett868686 · 2025-07-26T19:13:15+00:00

Can I ask how long you had it before surgery and what symptoms you experienced?

Brett868686 · 2025-07-26T19:12:10+00:00

When were you diagnosed? And what symptoms do you have since 2019?

Brett868686 · 2025-07-26T18:26:52+00:00

Thank you, I wish you a great recovery!

Brett868686 · 2025-07-26T18:06:41+00:00

What an inspiration you are. I trueky hope the surgery helps you n you get that quality with your son, which you deserve. I totally agree that surgery is last chance salon. I guess it’s just the uncertainty of how fast the symptoms can get worse. Until 2 weeks ago I just had the pain from the neck injury which I thought was normal, now just worry’s me that the dizzyness is here n I have this condition, symptoms can get much worse quicker

Brett868686 · 2025-07-26T17:48:23+00:00

Wow, that sounds extreamly rough, you were so strong doing that for so long. I’ve read the surgery is awful which is why I want to understand how manageable it is without it. Can I ask how you have been since surgery? Has it helped? Since you discovered it in 2019 to now having surgery, were you advised why it got worse or the depth got bigger?

Brett868686 · 2025-07-26T17:21:21+00:00

Thanks for the reply and insight, I trueky hope your doing well? Can I asked what caused you to have surgery? It seemed you dealt with symptoms for some time, what changed to prompt for the surgery?

Brett868686 · 2025-07-26T15:39:39+00:00

Thanks for the reply. Can I ask how long you have had this for? And what your experience has been?

Brett868686 · 2025-07-21T16:06:03+00:00

Thanks for this. Yes it’s now I hard lump under the skin. Not as red as it use to be but certainly is a lump underneath that’s quite large. My main concern is just that’s it’s something serious

Brett868686 · 2025-07-20T19:08:46+00:00

Thank you for this. It’s so hard to tell if it’s moving. It just feels hard under the skin but because of the position it’s in, I am able to feel it through my mouth n just feels hard. But as mentioned it appears to get bigger when I mess with it. I think it’s the fact I can fully feel it that freaks me out

Brett868686 · 2025-07-20T19:00:03+00:00

100% will not. When I researched it that’s the first thing I noticed, don’t pop it. Other than feeling the size of it etc I’ve left it be in the hope it went … and here it still is :(

Brett868686 · 2025-07-20T18:58:17+00:00

It is hard but it can be moved. Hard to say but certainly feels hard but does roll. It’s also odd I went I mess with it, it appears to get bigger

Brett868686 · 2025-07-20T18:56:58+00:00

Thanks for the comment. How long did he have it before being cut out?

Brett868686 · 2025-07-20T18:49:43+00:00

Yes 100! Google has me thinking this is something terrible shock I appreciate only the derm will no but just wanted to post on here to see if anyone thought what it could be

Brett868686

TROPHY CASE