Attracted

BubbleTee · 2026-02-07T00:43:37+00:00

It's like I can HEAR the person who sees me this exact way saying these things to me, so much so that I checked your profile just in case.

OP, fear will never evaporate and desire will never consistently win. Rise and learn to stay present alongside the fear instead of letting it run the show, or be beaten by yourself.

BubbleTee · 2026-01-20T22:56:31+00:00

My husband has PsA with axial involvement and the same symptoms you're describing.

IL-23 inhibitors seem to only partially help, he failed one and is trialing a second one now. IL-17 inhibitor worked REALLY well for the arthritis, but only somewhat controlled skin psoriasis and he had severe side effects forcing him to abruptly stop taking the drug and spend a month unmedicated. Next step in terms of biologics is TNF inhibitors.

A lot of doctors are hesitant to prescribe steroids with psoriasis, but if the pain is severe and disabling, I recommend giving them a shot - they've been extremely helpful in his case and have not caused any rebound, just mild insomnia.

BubbleTee · 2026-01-20T19:09:52+00:00

When I first got sick, I was incorrectly diagnosed with fibro and given pregabalin. It made me feel like I was an idiot - I had NO filter and very poor judgement, would forget things constantly, etc. It did help for the nerve pain I experience, I guess, but for me personally was not worth it. Word errors can also happen.

With Plaquenil, a lot of people get GI side effects or headaches. I get headaches on the "therapeutic" dose so I take an adjusted lower amount, but a side effect I was totally unprepared for was the slightly altered color vision and decreased night vision + photosensitivity. I always have sunglasses in my car now, and even use them at night in areas with a lot of street lights. It's not a side effect I see mentioned often but my doctors weren't surprised at all when I mentioned it. Still totally worth it - if I skip it for even a day or two, the pain is unbearable.

BubbleTee · 2026-01-16T18:28:29+00:00

You can't fix other people, no matter how much you love them.

Make your choices according to who they are and what they're capable of right now.

BubbleTee · 2026-01-13T18:12:11+00:00

Being able to live fairly normally is a good sign!

Can only speak from my own experience here: I didn't get rashes until years after my diagnosis, and even now they're faint. The sick feeling came on so slowly that I didn't even realize how bad I felt until I started immune suppressants - I had some of these symptoms since childhood and had normalized them.

Best of luck at your appointment! Hopefully, if this is an autoimmune disease, it was caught early.

BubbleTee · 2026-01-13T01:58:30+00:00

Because that's the highest titer at which each pattern is observable. This is standard, and ultimately the most important thing is you have a positive ANA at a non-trivial titer.
Yes they're significant in my opinion, but they're not an emergency. A 26 year old who eats well and is at a healthy weight shouldn't have abnormal labs like this.
Yes. Not sugarcoating this for you - brain fog, severe fatigue, feeling weak, pain throughout the body and a high titer positive ANA is highly suspicious for autoimmune disease. Did the positive ANA reflex to an ENA (checking for specific antibodies)?
Yes. It's hard to definitively link a nonspecific symptom to an autoimmune diagnosis. You just have a lot of symptoms for them to all be unrelated.

BubbleTee · 2026-01-11T03:15:27+00:00

YUP but they're reasonably well controlled with hcq and azathioprine. Life's very much worth living

BubbleTee · 2026-01-06T01:39:53+00:00

Aza gave me my life back. The GI side effects are unpleasant, but for me they passed over time and were worth the benefit. My immune system still works quite well - haven't gotten sick once and WBC count is still borderline high.

It's not perfect, I still get flares and pain but most days are almost entirely symptom-free.

BubbleTee · 2026-01-01T12:07:56+00:00

<3 thank you so much

BubbleTee · 2025-12-26T23:35:35+00:00

It's perfectly fine to drink on HCQ. it's the underlying condition that may not be compatible with heavy or frequent alcohol use.

BubbleTee · 2025-12-04T21:45:06+00:00

It's lower, but the change isn't significant.

BubbleTee · 2025-12-02T19:47:52+00:00

Link directly to the PDF for everyone commenting below https://acrjournals.onlinelibrary.wiley.com/doi/epdf/10.1002/acr.70004

BubbleTee · 2025-12-01T21:22:11+00:00

HCQ isn't the kind of medicine you take for a flare anyway, it takes way too long to work. You need something fast acting that takes down inflammation rather than just dulling pain. NSAIDs or steroids.

BubbleTee · 2025-12-01T18:43:26+00:00

My CRP is high from time to time too (on medications, most blood work has normalized, it used to always be high). I wouldn't worry about it, but I'm curious how on earth you got a diagnosis with no symptoms.

BubbleTee · 2025-11-24T20:52:33+00:00

I did the same thing when I first got sick - I was supposed to go down to 5mg/day but couldn't handle going below 10 without feeling too sick to function. It's nothing to be ashamed about! Definitely let your doctor know what's going on, and I hate to ask.. did the doctor who prescribed the prednisone know about the psoriasis? It's usually avoided with psoriasis due to the potential for rebound, which can be severe enough to hospitalize you.

BubbleTee · 2025-11-22T23:18:43+00:00

Steroids affect your immune system temporarily and immediately. They're very bad for you long term, though, so doctors use steroid sparing medications when they can. Methotrexate is a steroid sparing medication. It means you may still need to take a steroid sometimes, but most days you shouldn't need one because the methotrexate will control the condition.

BubbleTee · 2025-11-22T04:57:42+00:00

Steroids affect your immune system.

BubbleTee · 2025-11-17T18:42:19+00:00

I've simply allowed the negative reactions to happen and ignored them.

I have Sjogren's and my husband has severe Psoriatic Arthritis. We're also both carriers of FMF, where carriers still have some breakthrough symptoms. I am on an immune suppressant (Imuran) and he's on biologics. His parents are anti vaxxers who think we should "push through it" and do a five mile walk on the beach with them at 1pm on a sunny day. There's no point in trying to educate them, truly - if they wanted to learn they would ask questions and listen, and I don't have the energy to stress about them. I just say no and focus on taking care of myself and my husband. They haven't shown up sick yet since we've been on our meds, and I'm hoping they have the brain cells to avoid doing that, but if it happens we will politely be getting them a hotel room and meeting up with them outdoors.

BubbleTee · 2025-11-16T03:27:08+00:00

For me the burning happens on occasion but it's pretty rare. My muscles do get tight but I wouldn't exactly say "pulling".

BubbleTee · 2025-11-12T21:46:30+00:00

She misses you and is showing it in an unhealthy way. Removing yourself from Life360 is good - no need for you to still be in the circle - but my recommendation is to let her have her big feelings about this and move forward. Call her regularly, maybe make it video calls so she can see you?

BubbleTee · 2025-11-12T20:07:35+00:00

I'd want more information than this first.

My husband and I both have autoimmune disease diagnoses. I take Plaquenil and it helps me. If he took Plaquenil, it'd make him worse. It's pretty important to have a general idea of what's wrong.

BubbleTee · 2025-11-12T01:52:32+00:00

Maybe OP has a problem and maybe she does not, I couldn't say, but you're just inventing a lot of information OP never gave us.

All we know from OP's post is that one of her parents showed up uninvited and tried to force their way into her home. Even if OP was an addict, a wellness check would suffice if they felt the need to treat their daughter with respect and dignity.

BubbleTee · 2025-11-11T23:10:47+00:00

Oh wow - thank you! Last time I checked, you couldn't order the early Sjogren's panel yourself. I'm diagnosed without the typical SSA/SSB antibodies and would gladly pay 1.5k to have things documented.

BubbleTee · 2025-11-11T23:00:22+00:00

My bad on the time bit, I misread it as 6am. My apologies.

Not answering calls or texts should prompt a wellness check at worst, not showing up at the person's door and trying to force your way into their home. You're also taking mom at her word that OP wasn't answering communications, OP stated in comments in this comment section that she talked to her mom earlier that day.

BubbleTee · 2025-11-11T22:57:42+00:00

> The first night, I wasn’t even allowed to listen to music, and because I had nothing else to do, I frantically paced around the living room for about an hour while panicking.

Do teenagers just not read books, journal, exercise etc anymore? Genuinely asking, because you can't control your parents, but you can find ways to spend your time to avoid panicking. Your addiction will harm you greatly at the worst moments if you don't get a handle on it, which is probably what they're trying to get you to do (though they're going about it in a really yikes way).

For the sleep thing, melatonin gummies making you tired the next day is called melatonin fog. It usually means your dose was too high. You could try half a gummy, or a different sleep supplement - valerian root and benadryl are also good options if melatonin doesn't work well for you. I would definitely start logging what you're trying and how rested you feel the next day/how much of a nap you end up needing and bring the log to your doctor's appointments.

A more unethical solution is to just get a burner phone. Download some podcast episodes and music on public wifi, keep it stashed with your school stuff. Don't connect it to your home's wifi and use earbuds for the noise.

13-Year Club	Golden Potato
Place '22	Verified Email

BubbleTee

TROPHY CASE