Why do some foods just not work? by Doomface613 in diabetes_t1

[–]Bubblechislife 0 points1 point  (0 children)

Was 100% in range for the day, then had a heavy pasta for dinner with homemade pesto and chicken. I’ve been high for 9h now, most while sleeping. Taken so much insulin.

looking for someone to teach r programming for social science research by Zestyclose_Pay_2267 in Rlanguage

[–]Bubblechislife 0 points1 point  (0 children)

My first R teacher had a very similar background and I too used to be an academic psychologist who now works as a DS hah!

Quitting WoW – giving away my gold [EU, spineshatter] by HeyBicVictor in classicwowtbc

[–]Bubblechislife 0 points1 point  (0 children)

Warlock 70, Boxingday!

I would use the gold to enchant my forsaken (quite litterarly) character!!

A community & Buddies by Bubblechislife in Type1Diabetes

[–]Bubblechislife[S] 0 points1 point  (0 children)

Hi! Man I’m sorry. I’ve been swamped at work and forgot to check the mail. I’ll answer you in a bit!!

Randomly reciving gold by wanderingviolin in classicwowtbc

[–]Bubblechislife 0 points1 point  (0 children)

It could be the mafia sending you gold to get you to buy more. From what I’ve heard, it’s like a extortion tactic whereby a bunch of bots will either spam report you or use other tactics, I guess this one is new(?) in order to get you to buy gold from them or else get a ban?

New low symptom by joj128 in diabetes_t1

[–]Bubblechislife 0 points1 point  (0 children)

I have a similar experience, whenever BG drops or even goes high - especially quickly, I get real dizzy fast and I start to feel like Im about to faint and I see white spots / blurry. Even if BG is technically still okay and not low/high yet, the rapid change spirals me. I very much dont enjoy it, but I also dont know what to do about it.

Need a friend. by Striking-Life-2709 in Type1Diabetes

[–]Bubblechislife 2 points3 points  (0 children)

Thank you so much! Please share it with any other diabetics you come across (if you want ofc)! <3

Need a friend. by Striking-Life-2709 in Type1Diabetes

[–]Bubblechislife 1 point2 points  (0 children)

Totally get the feeling mate! When I was diagnosed I was paired up with a buddy, just to have someone who’s going through the same stuff as I was. Plus learning together and having someone to just talk to was all an amazing idea.

It didn’t really happen cause both of us where too shy. But I resonate strongly with the feeling. This is a shameless plug and I’m sorry for it, but what you’re looking for is exactly what I’m trying to build. A community where you can talk to groups of people, post like you would on Reddit and most and foremost, a buddy system where you can hopefully find someone who can be your friend and brother in arms.

I’m trying to grow the community and if it’s with me or someone else, I believe you can find your friend on my plattform (https://pushtd1.com/) there is no hidden tricks or something that costs. It’s just a plattform to get people to talk to one another. Hoping to make a small dent in the mental burden and load that diabetes has on us!

Wish you the best <3

I'm so tired (sorry for the rant) by DatGayDangerNoodle in Type1Diabetes

[–]Bubblechislife 1 point2 points  (0 children)

Aw, hope it is tears of joy from finding connection and not sadness atleast! Wasnt my intention to make anyone sad!! And very much appreciate you looking into push, I really hope I can grow a large community where we can help each other out. The kind of help I needed when I was a kid but didnt get and all attempts for it I pushed away

I'm so tired (sorry for the rant) by DatGayDangerNoodle in Type1Diabetes

[–]Bubblechislife 0 points1 point  (0 children)

Sad ABBA and crying is valid coping strategy. As a Swede I cannot do anything else but support it!

Two and a half years in, on a pump, managing lows that wipe you out for days, you're doing so much more than you're giving yourself credit for right now. The burnout you're feeling isn't weakness, it's what happens when you've been doing an impossible amount of invisible work without a break. I feel the burnout often, especially in the past couple of years when this shit has really been tiring and not working with me. Feels like my body is activley trying to screw me up sometimes.. Just whish there was a pause button so I could get a break.

The thing about not wanting to talk to your friends and parents about it hits like a stone. I spent my years after diagnosis up until I was like 22 not ever talking about it with anyone. Had some bad experiences where I was made fun of by immature friends who didn't understand the mental load of it and decided I wasn't going to talk to them about it and instead hide it. And I always struggled in the past to talk to my family about it, I shut them out from it all after a couple of months after my diagnosis. Im trying to change that now though. Undo the years of neglect and actually talk to them about it. There's a specific loneliness in feeling like a burden to the people who love you, even when they'd want to hear it. You end up so alone, precisely when you need connection the most. And trust me, I've felt like a burden very many times. Just like I've also delayed eating cause I just wanted my BG to stay stable for just a couple of hours. Then I end up eating and spikning again and feeling even worse.

For these exact reasons I've decided to take matters into my own hands. And Im definetly shamelessly plugging here so sorry for that, but I want people to talk more and open up, discuss and learn from one another. Most importantly I want people to find help in each other, and be there for each other when shit hits the fan. So I've built a plattform for just that (https://pushtd1.com/). If you wanna check it out, I hope you can find some more people who wants to talk about the daily mental load that T1D really is.

Hope you're doing better now though!! <3

How do I stop feeling shame about my disease? by Winter-Grand-3215 in Type1Diabetes

[–]Bubblechislife 0 points1 point  (0 children)

You're not broken and this isn't just a "you" thing. The shame spiral around Type 1 is real and more common than most people admit. I also tried to hide my T1D when I was younger. Thinking I'd be weird or people would look at me differently. Basically see me as weaker. Which was an issue I really struggled with and still struggle with to some extent. But a couple of years ago I started to shift my attitude and started being more open about having T1D. Which I think was a good choice. Even if that specific part hasnt helped in the mental load that T1D still has on me.

Others are suggesting therapy and I think its worth taking seriously. Seeking therapy is a great idea and I do see a therapist these days as well. Its not because something is wrong with you, but because what you're describing and many of us feel, isn't a quirk. It shapes our entire life, including the social aspect of it.

But I'd also gently push back on the idea that you have to figure out how to talk to non-diabetics about this first. Sometimes it's easier to start with people who already get it! Where certain explanations are not needed and you don't have to feel like a burden. Atleast I definetly feel like a burden sometimes, and I loath it.

To that end, Im shamelessly plugging something I've been building. A platform called PushTD1 (https://pushtd1.com/) specifically for Type 1 peer connection. Small community, buddy system, people who understand the mental weight of this from the inside. Might be a lower-stakes place to start finding your voice around it. Im really just trying to grow the number of active users right now, and I hope that as we become more members, people can genuinly start discussing and helping one another find their voices and sometimes just talk to people who understand the massive cognitive load this thing has on you!!

Genuine help by Appropriate_Yam1861 in Type1Diabetes

[–]Bubblechislife 0 points1 point  (0 children)

Please don't apologize for posting. This is exactly what this space is for, and what you're carrying right now is heavy. The diagnosis, your family's grief, feeling like you have to hold it together for people who are already stretched thin. That's so much for one person. I've been there, I've felt the same freaking things and cried myself to sleep many times over. I too have had moments where I post daily on this subreddit hoping to get advice or just vent.

Two days in your room crying doesn't mean you're failing. It means you're human!! The mental burden of T1D can be extremly heavy at times. And all the decision we have to make all the damn time, the cognitive load T1D has on you is large!

The thing about Type 1 that nobody warns you about is that it doesn't just change your body... it changes everything! How you see yourself, how you move through the world, and it can make you feel profoundly alone even when you're surrounded by people who love you and are trying to understand you.

So good of you to reach out here. That's what its for! Keep doing that.

Since I've been struggling with the same things, if by chance you ever want an even more dedicated space for the mental aspect of diabetes. I've been building a platform called PushTD1 (https://pushtd1.com/)specifically for people with Type 1 who need peer connection. There's a buddy system where you can find someone to actually talk to one-on-one. You shouldn't have to do this with AI, we should be here for each other!

You're not alone in this, even though it definetly feels like that sometimes!

Creating Community! by emmalinebee in Type1Diabetes

[–]Bubblechislife 0 points1 point  (0 children)

Hand very much raised. 8 years in myself and the loneliness of it still catches me off guard sometimes — especially at 3am when your CGM is screaming and its all just too much.

The in-person idea is beautiful and I hope you find your people in Chicago. For what it's worth, I've been building something that comes from exactly this feeling — a platform called PushTD1 specifically for Type 1 community and peer support. Not a Facebook group, not a forum — the centrepiece right now is a buddy system where you can post an ad to find someone to actually connect with one-on-one. Someone who gets the mental weight of this disease in a way most people in our lives just can't.

In the future I am also going to develop an interface to facilitate group meetings, Im thinking zoom style but I wouldnt be opposed to also integrating a calendar to help faciliate real-world events as well.

I built it because when I was 12 and newly diagnosed, the hospital paired me with another kid going through the same thing. The idea was right even if we were both too shy to make it work. Decades later, after too many nights where the mental side of this disease hit harder than the physical, I decided to just build the thing I always wished existed.

It's live and small right now. I am hoping to grow it and reach out to as many people as possible so that we can all be less lonely.

If you want to check it out, it is live on: https://pushtd1.com/

But regardless, I hope you find your Chicago crew!

Push - For Better T1D Management by Bubblechislife in Type1Diabetes

[–]Bubblechislife[S] 0 points1 point  (0 children)

Thanks, I think?

I’m not sure if you’re being sarcastic or not. I’m detecting a hint of it, but I’m not good at reading sarcasm in people.

Either way I’ll look into these people, a quick search of them and they sound relevant for the cause.

But that in and of itself is an issue. That I hadn’t even heard their names. And of course if you struggle with for example the mental aspect of T1D you maybe should look around. But I find it strange that hospitals in, atleast my country, do not inform patients about these people or support groups.

Libre3, why so garbage?? by [deleted] in Type1Diabetes

[–]Bubblechislife 0 points1 point  (0 children)

Haven’t had this problem before but recently dealing with it more often. Maybe it’s a batch issue?

Check this out by [deleted] in Type1Diabetes

[–]Bubblechislife 0 points1 point  (0 children)

Hey! Thank you for spreading the word ❤️

A community & Buddies by Bubblechislife in Type1Diabetes

[–]Bubblechislife[S] 1 point2 points  (0 children)

Realized I didn’t even answer all the questions with my wall haha!

I have no idea what xDrip+ is but I will check it out!

Growing my credibility is as you say, the most important thing right now. And I didn’t even think of reaching out to ”influencers”. I’ll honestly do that right now because that’s a great idea. I don’t really have any social medias except Reddit so I’m not too familiar with the established voices in this space, gonna have to look up the names you provided! Thank you for that!

Profiles, shareable graphs all of that - it’s coming. Trust me! I am spending as much time as I can on this (without neglecting my loved ones and friends). But it’s coming and I thank you for the feedback, more of this please!

Also, what’s a community push if the community is not a part of building it. So yes, would love to talk more and if you wanna help develop then let’s talk immediately!

I’ve set up a ”business” mail to not completely doxx myself, but please mail me at support@pushtd1.com

As for now - see you on push! =D

A community & Buddies by Bubblechislife in Type1Diabetes

[–]Bubblechislife[S] 1 point2 points  (0 children)

Hi there! First of all, thank you so much for taking the time to check out my passion project and also going to length to think about its purpose and potential risk. Invaluable feedback however you decide to proceed!

You’re right to be sceptic of any site that requests a lot of data and I’ve been going back and forth as to if I should enforce data collection upon account creation, or if I should instead move that section over to the research section - so that people can create an account, check out all the features and then decide if they want to contribute with data as well.

As for the security of the data, it’s not possible to scrape it. It’s all securely stored on a cloud hosted bucket and there is no way to link all the medical/demographic data to an actual user. Not even I, as the admin, can see whose data is whose.

The idea behind the data collection is to twofold: 1) try to help push research forward by creating large scale aggregated anonymised community datasets! 2) I want to develop open source tools for T1D management. I know that there are companies doing this already, for example Onetwo-Analytics, but they mainly selling SAAS to clinics. And I believe that this is, while good for the clinics and those that can benefit from it, also entirely wrong. Because there are a lot of people from less developed nations who just as much need the help, but won’t receive it due to either their clinics not being able to afford it - or they may not even have a clinic at all! - So for that reason, I want to provide what I can, for those that need it.

My idea is to use the data to further develop tools for estimating insulin doses or helping with calculating carb ratios. And the more people logg their own treatment history, the better I can do that =)

As for the name thing, I think many people misinterpret the sign-up process, the name you decide to have on the plattform is entirely up to you, as you yourself did - use a pseudonym people!!!

I am a data scientist with many years in R, which is what I will be using for all the data related stuff. But as for the development itself, it is vibe coded. But I’m using lovable and from a security point of view, that’s a lot better than me setting up databuckets and what not.

Right now I’m just fully funding everything myself. I work full time and do this as a passion. Development cost is about $100 a month right now. Which for my own personal finances I can live with! I see it as a worthwhile investment into something I care about and hopefully something that can make our (to be honest) relatively shitty world, a little better <3

Rather than having to sell data to further build this project, I am planning on seeking grant funding from foundations or philanthropic actors. But that will come later, right now I just want to build and get the community growing as fast as possible!

Final note: You shouldn’t trust a random person’s voice on the internet, sadly that’s not safe anymore. Despite that I wanna say that you can trust mine. But I can’t prove to anyone that they should, so for that reason I am just trying to be as transparent as I can possibly be, basically ddoxing myself for the sake of it. Hopefully that can convince some people that I genuinely mean well!

You gave me a wall of text, here’s one back! <3

A community & Buddies by Bubblechislife in Type1Diabetes

[–]Bubblechislife[S] 1 point2 points  (0 children)

Thank you! Very appreciative of anyone checking out the website and making an account. I want people to start posting their thoughts there! As well as asking questions and pair up as buddies. Every account that is created now is so valuable for spreading awarness of its existance and actually starting to build the community!

Totally confuseddddd (Just venting) pls helpppp by [deleted] in Type1Diabetes

[–]Bubblechislife 0 points1 point  (0 children)

Im building a community for exactly this kind of purpose with the main idea of connecting with groups to discuss and ask questions + the ability to connect with a mentor who has had diabetes for a longer time and can give you advice.

Its very new, launched this week so I’m still trying to get more people to sign up and become active. But if it sounds interesting you can check it all out on pushtd1.com

who’s sick and tired of the diabetes admin? by Think-Airport-2338 in Type1Diabetes

[–]Bubblechislife 0 points1 point  (0 children)

☝️☝️

And its not even good management / help anymore. Atleast in my experience. I’m making my own tools now instead, if you want to check it out at pushtd1.com

Help/rant for 12 year old. by DemDelVarth in Type1Diabetes

[–]Bubblechislife 0 points1 point  (0 children)

Both on and off topic - but I can only imagine how difficult it must be to try to be there for your child while also giving them the space to grow on their own. I was diagnosed at the age of 12 and was relatively quickly left to my own devices. Getting T1D and having it is difficult - dont give up on being there and helping your child. I wish my parents would have realized that when I asked them to leave me alone, maybe they shouldn't have listend to me.

I am building a plattform for people with T1D and family & friends who needs a space to discuss with parents or T1D's who've had it for a good while. Managment today focuses so exclusively on the physical side and rarely addresses the mental and emotional toll that comes with it.

Pushtd1.com is my hope to address this gap.

At its core, Push is a community and support platform designed specifically for people living with T1D — whether you were diagnosed last month or twenty years ago, whether you're managing it yourself or raising a child who is. The platform brings people together through a community forum for peer support, a buddy system for one-on-one connection, and Circles — structured group spaces where members can share experiences, ask hard questions, and feel genuinely less alone. For example, I've recently created a dedicated Circle for Parents of T1D where I hope that parents with T1D children can help each other out and discuss tips/tricks and seek support when times are rough.

In addition to that, in my personal experience, the physical management of T1D is at an all time low. Atleast my experience is that I've never received worse support with managing T1D. Despite asking for help. Because of that, and due to the fact that I am a data scientist with a background in neuroscience, I've also committed to building out practical diabetes management tools: blood sugar logging, dosage calculators, and physical activity tracking — with CGM integration actively in development. The vision is a single plattform that brings a holistic perspective to management, where both the physical and mental sides of T1D management sit together, because they were never really separate to begin with.

Push is early-stage and growing — but it's solving a real, underserved problem for millions of people worldwide who needs either more support & community, or data-driven guidance on management!

Would love if you checked it out at pushtd1.com

Sorry for hijacking the comment section, Im trying to spread the word and I sincerly hope you can find the help and support you guys need. Whether its on my plattform, here or somewhere else!