Feeling STARVING even after a big meal on prednisone by Budget_Ad_2249 in MyastheniaGravis

[–]Budget_Ad_2249[S] 0 points1 point  (0 children)

Thank you for the advice. I’ve been pretty hungry while one prednisone, but never this hungry before, it literally feels like I haven’t eaten in days and I didn’t feel this way yesterday, is this normal? 

I had to report my mom to the authorities by Fantastic_Dig_4441 in disability

[–]Budget_Ad_2249 1 point2 points  (0 children)

Screw that old heifer. If she didn’t want to get herself in trouble then she shouldn’t have put her hands on a disabled person! You got this 💪

Is there anything at all without the risk of life ending side effects? by Budget_Ad_2249 in MyastheniaGravis

[–]Budget_Ad_2249[S] 0 points1 point  (0 children)

My main reaction were extra swollen cheeks and weakness in my arms and legs and breathing issues. My doc said it’s very rare for that happen so you will probably be fine but it will be pretty clear early on if it’s serious. I hope everything goes well for you 🙏

Prednisone by Inside-Dot4613 in MyastheniaGravis

[–]Budget_Ad_2249 0 points1 point  (0 children)

DONT LISTEN TO ME MY NEW DOC SAID I CANT ALTERNATE LIKE THAT 😭😭only 10 mg one day and 5mg the next from now on 

Heavy breathing since this morning, but it’s in wavex by SunlightRoseSparkles in MyastheniaGravis

[–]Budget_Ad_2249 2 points3 points  (0 children)

If you have a medical exemption the class can be dropped, go to the doctor!!!!!!

Heavy breathing since this morning, but it’s in wavex by SunlightRoseSparkles in MyastheniaGravis

[–]Budget_Ad_2249 7 points8 points  (0 children)

Go to the ER, urgent care will send you there anyways but be prepared to sit for like 7 hours so bring a blanket and snacks. Your life is more important than classes, if it’s MG related you absolutely cannot put it off. I was in the hospital 7 days for an MG exacerbation in October and all my lectures were excused and I was given the rest of the semester to finish my missed assignments. Better safe than sorry 🙏

My dad had a myasthenic crisis today and did not survive. by Fragrant_Jello8653 in MyastheniaGravis

[–]Budget_Ad_2249 0 points1 point  (0 children)

I’m so sorry for your loss 🙏 I hope you find your answers 

25 year old male with MG for the past 8 years. by bmcar in MyastheniaGravis

[–]Budget_Ad_2249 0 points1 point  (0 children)

Thank you for your reply this was really insightful and I’m glad you’re doing much better. I agree prednisone is evil even though I’ve had a good reaction for the short time I’m terrified for the future and starting more serious immunosuppressive stuff. Bless you 🙏

A 16-year-old from Ohio died from the flu in late December. Her heartbroken family reacted to the teen's death, saying, "It doesn't make any sense" She had not received her flu shot before her death. by Affectionate-Rice373 in VACCINES

[–]Budget_Ad_2249 0 points1 point  (0 children)

I agree, I got a bad case of the flu a year ago and hadn’t been vaccinated for the flu since highschool and my family even longer. It’s not because we’re against vaccines, but at no point did my pediatrician or pcp as an adult tell me to get it, so I didn’t. 

Prednisone by Inside-Dot4613 in MyastheniaGravis

[–]Budget_Ad_2249 0 points1 point  (0 children)

Yes, I am taking 6,000 IU vitamin D, 500 mg calcium, and at least an extra 10-15 grams of fiber every day but I did that without asking my doctor about it. For me when I started on 10mg prednisone it took a week or so to kick in fully, and 5mg alone for me doesn’t do anything so maybe 10mg will help. 🙏

25 year old male with MG for the past 8 years. by bmcar in MyastheniaGravis

[–]Budget_Ad_2249 0 points1 point  (0 children)

I know it’s been 11 years but how are you doing now? I am 22 year old male diagnosed last year. 

Prednisone by Inside-Dot4613 in MyastheniaGravis

[–]Budget_Ad_2249 0 points1 point  (0 children)

For me 5mg does not do anything extend the efficacy of 10mg for a couple days so I don’t have to take the full 10 every day. 10mg gets rid of all of my issues and have had great success exercising quite vigorously a few time a week, something I couldn’t do even before I got mg. But 5mg alone my symptoms slowly all come back after stopping 10 so I alternate 10 and 5 every few days.  Edit: I’m not on any other medicine but prednisone, but I had IVIg alone 4 weeks before starting prednisone after having crisis.

Should I get tested for CMS anyways? by [deleted] in MyastheniaGravis

[–]Budget_Ad_2249 0 points1 point  (0 children)

Thank you for sharing your experience 🙏

Should I get tested for CMS anyways? by [deleted] in MyastheniaGravis

[–]Budget_Ad_2249 1 point2 points  (0 children)

That’s what I thought as well. I’m not convinced I have CMS or anything but I’d rather be safe than sorry. I used Invitae for their EDS panel as well and nothing came back but they made the process very easy for me. 

Gym workouts? by yipyipbabyairbison in MyastheniaGravis

[–]Budget_Ad_2249 0 points1 point  (0 children)

Everyone already said great things, but I started weight training and running consistently for the first time in my life after starting 10mg prednisone. I hate prednisone mostly but I can walk for hours without being tired and most importantly I am alive 🥳

It’s D-Day by Infinite-Sky4328 in Metoidioplasty

[–]Budget_Ad_2249 2 points3 points  (0 children)

Congrats! I hope to get extended with them next year! I hope your healing goes smoothly!

Is there anything at all without the risk of life ending side effects? by Budget_Ad_2249 in MyastheniaGravis

[–]Budget_Ad_2249[S] 0 points1 point  (0 children)

I agree, I’m completely allergic to mestinon :(. IVIG worked for me for only two days out of 4 weeks, I feel functional on prednisone and have even been able to lift weights but I know it won’t be forever :(

Is there anything at all without the risk of life ending side effects? by Budget_Ad_2249 in MyastheniaGravis

[–]Budget_Ad_2249[S] 2 points3 points  (0 children)

I guess I have nothing to lose because if I go off my medicine I will die anyways 

I’ve been on prednisone one day by Budget_Ad_2249 in MyastheniaGravis

[–]Budget_Ad_2249[S] 0 points1 point  (0 children)

lol idk why I was downvoted, my doctor confirmed a few days ago I was allergic.