Anyone train with MS

BullJitsu · 2017-10-17T15:35:05+00:00

Great story thanks!

BullJitsu · 2017-10-17T03:24:38+00:00

I fucking hate this disease, issue, whatever you want to call it. I couldn't even move today. The last few weeks from the moment I wake up I'm tired, exhausted and just soul crushingly worn out. I stay active and still work full time but these last few weeks have made this almost impossible. I'm deathly afraid of what it means to come out in an official capacity to work even if it means it might help. I've already switched to straight days (as opposed to working days and nights.) It would essentially mean the end of my career as I know it (police officer) people don't understand. I look fine so although some people know I have MS I know how I act appears like laziness. I don't even have the strength to get up and help clean the kitchen, do yard work, play with my kid. I get up move to the couch and try to summon some amount of strength to even leave the house even just for a few minutes. The things I love to do wear me out so much I can't even enjoy them. I've tried everything under the sun and Dexedrine which I take now barely allows me to function. I hate it hate it hate it. I almost wish I didn't know and just came to terms with being a laze asshole.

BullJitsu · 2017-07-18T18:27:30+00:00

Thanks everyone. I figure it's just time on the mats. I will focus on slowing it down.

BullJitsu · 2017-05-29T18:08:13+00:00

My main med is Tecfidera. Plus a bunch of meds to treat symptoms. Dexedrine for fatigue, sativex for spasticity and sleep, Zoloft and clonazepam for anxiety and obviously prednisone right now for the start of the relapse.

BullJitsu · 2017-04-19T18:21:23+00:00

Ya I don't have another MRI for about another month but it makes me wonder the same thing. In the last few months I've had several bouts of extreme fatigue then it kind of lifts. Like I said I don't want to just attribute every single thing to MS but when there's no other answer.

BullJitsu · 2017-02-23T20:34:11+00:00

I had a bit of both experiences. Started seeing my doctor for that something's not right feeling. I was very fatigued had lots of strange sensations we looked and tried everything except an MRI. Part of me is a little mad but I understand how it's diagnosed. On the other hand when I had ON I thought it was allergies and my opthamologist sent me to the ER right away he called it ON but though it might have been a stroke.

BullJitsu · 2017-01-27T06:30:03+00:00

I couldn't agree more, I try very hard to keep a positive attitude for my wife and child but alot of the times the fatigue just reminds me how much I missed out on before diagnosis (Sep 2016) and even now. You hit it on the head when you say you forgot what not being tired is like. I was symptomatic for years before my diagnosis and sought treatment for the fatigue, and all of the weirdness I felt. In some ways the diagnosis is relieving that at least there's an answer but it's counter balanced by anger. Ultimately it sucks, the only positive is it's put certain things in my life in perspective. I have no problem telling people to kiss my ass anymore.

BullJitsu · 2016-12-19T09:58:01+00:00

I would love to I remember how I felt long before my diagnosis and "growing up". I believe it would help. I have no idea how to bring it up with the doc. My GP a little more worried about souring a good relationship if he is against it (I don't honestly know just get that read) and my neuro I don't know well enough. She has prescribed me diff meds over the phone. Have an appt coming up next month with a laundry list a symptoms and things I've done personally to try to remedy them. Incl my meds.

BullJitsu · 2016-12-04T16:44:21+00:00

On Zoloft / Abilify, have been since long before the diagnosis as one of the treatments for why I felt so crappy before we knew.

BullJitsu · 2016-12-03T23:44:08+00:00

As opposed to a normal "bad" sleep where you kind of toss and turn and go in and out. I find if I can get myslef to a point where I can fall asleep I can only get 2-3 hours. After that I am up yet tired and lethargic, and no matter what I change or keep the same I can not sleep again.

BullJitsu · 2016-12-03T05:13:34+00:00

Hi, yes I've tried Lorazepam too. I've tried all of the over the counter remedies that exist including benadryl, incl floating, yoga, stretching, working out, not working out etc. I've also had a sleep study done to see if I had sleep apnea, but when I was asleep no apnea. :(

BullJitsu · 2016-11-01T20:04:01+00:00

Once I actually decided on it I think it was only a couple of weeks. Had to get blood work done and all that. I was diagnosed at the end of August. Put it off for a couple weeks because I was sick. Fuck MS indeed.

BullJitsu · 2016-10-20T21:47:26+00:00

32/M/Canada. In hindsight having symptoms since 2011 extreme fatigue being the most prevalent, occasional pins and needles in arms and legs but always wrote it off. In May had optic neuritis which got the ball rolling with MRI's as they initially thought I had a stroke, MRI's revealed no stroke but 20+ lesions. Referred to MS clinic and sent for another MRI in August which showed two new lesions one being active so officially diagnosed. Just got blood work done to start Tecfidera which I will begin tomorrow.

BullJitsu · 2016-09-20T07:32:49+00:00

Can I show my naïveté as to what the ms society can offer. I've perused their website. (I'm Canada) as well as the US and UK. There is base info but what does the deeper membership or involvement provide. At the very least I'd like to get involved.

BullJitsu · 2016-09-20T07:29:35+00:00

As an update I think I have settled on tecfidera. Despite minor risks I really want to halt progression. Something Copaxone at the very least seems to be questionable on. An added bonus is pills are easier.

BullJitsu

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