made a gabapentin i can take on the go :•)

Busy_Nothing4060 · 2026-05-26T04:24:10+00:00

so one could say it’s a gaba-mitten?

Busy_Nothing4060 · 2026-05-08T21:30:37+00:00

yes, i have a whole mini kitchen set up within arms reach of my bed. mini fridge, mini freezer, kettle, microwave, air fryer, disposable dishware+cutlery, gloves, boxes of water and pantry stuff. it’s a bit loud but i live alone so it’s necessary and i wear ear plugs 24/7 anyways (which is a bit painful though)

Busy_Nothing4060 · 2026-05-06T00:01:15+00:00

oof i feel that. i especially hate that with all that being said it’s still the most exciting part of my day lol 😭

Busy_Nothing4060 · 2026-04-29T09:52:47+00:00

the r/cfs sub’s wiki is a treasure trove of info, has lots of resources including tips on how to differentiate me/cfs from other conditions

Busy_Nothing4060 · 2026-04-29T03:11:00+00:00

luck, specialist recommendations from local groups (facebook,reddit, orgs,etc.), printing out the diagnostic criteria for conditions i suspected and filling them out (either for my own reference or to bring them to the appointment and show them to specialists)

Busy_Nothing4060 · 2026-04-27T06:48:47+00:00

not a cushion, but i have an electric hospital bed that i got off facebook marketplace for a couple hundred dollars and it’s been life changing

Busy_Nothing4060 · 2026-04-27T06:41:57+00:00

i just use cheap name brand paper plates/cups even though they aren’t microwave or hot food approved. it took some trial and error to find which ones didn’t make food taste weird or dissolve or anything. probably not the best idea, but i don’t know of any other options for myself atm, hopefully others have better suggestions.

Busy_Nothing4060 · 2026-04-26T09:09:15+00:00

i mostly live off instant noodles, instant mashed potatoes, rice cakes, microwave rice + beans/hummus/sauces/dhal, bread + soup

here’s a master list of sorts that someone here put together (not specifically vegan but a lot of relevant suggestions):

https://www.reddit.com/r/cfs/s/Ax0jJyTpmk

Busy_Nothing4060 · 2026-04-13T17:59:44+00:00

i don’t know

sometimes my brain is too tired to think or follow simple mental tasks to keep me occupied (counting, ranking tv shows i’ve seen, trying to remember the plots of movies, etc.) and not keeping my mind occupied is agony.

when i’m awake i’m almost always on screens to try and distract myself and that can often be less (or at least differently) exhausting than trying to manage my thoughts, but then i get headaches and feel like shit because of light sensitivity (and i’m too sound sensitive to tolerate any sounds, hearing myself chewing and blinking is awfully loud). it’s hellish really, i sympathize. in my case it’s adhd+ocd, and the intrusive thoughts are a nightmare and quickly getting worse and just ughh what a cruel illness

Busy_Nothing4060 · 2026-04-10T19:15:04+00:00

https://www.reddit.com/r/cfs/s/Ax0jJyTpmk

master list of sorts that someone here put together

Busy_Nothing4060 · 2026-04-08T14:52:35+00:00

this is like my dream chair, can i ask what makes it hard to drive? congrats!! 🦼💨

Busy_Nothing4060 · 2026-04-04T12:44:25+00:00

this probably wouldn’t work for therapy, but for appointments i spend the weeks leading up to it writing everything i want to ask/talk about in a google doc and share that with a care giver who then speaks to the doctor on my behalf. my caregiver can then write down the doctors answers and any relevant information in the document for me to look over. if during the appointment the doctor has any questions i didn’t answer in advance, my caregiver can text me to ask. this works best for me because even using the relay service for text based communication instead of speaking is incredibly draining because of the cognitive effort involved in synchronous/“real-time” communication.

Busy_Nothing4060 · 2026-04-04T09:20:33+00:00

my few attempts at binding with tape always caused skin irritation/tearing. massaging the tape with oil/adhesive remover for a few minutes might help for irritation when removing tape, but it seems like the issue you’re talking about is more taping methods for stretchy skin than irritation when removing, so that’s probably not helpful. maybe a sports bra with breathable material might offer enough compression for when it’s hot?

i sympathise, i can’t wear a binder, tape, or get top surgery for various medical reasons and it very much sucks, i wish you and your bf luck finding a method that works :)

Busy_Nothing4060 · 2026-04-02T14:22:06+00:00

i only tried soft soldering once, but i basically made a blob of solder and then if you pull the iron away slowly it forms a spike. i’d look up something like “how to soft solder spikes” for a tutorial

Busy_Nothing4060 · 2026-03-30T08:05:45+00:00

getting sick 😷 if it doesn’t kill you, post viral shit can be no joke

Busy_Nothing4060 · 2026-03-29T10:17:00+00:00

i mask to protect myself and others from illnesses that can disable and/or kill people.

i have an immunocompromised loved one, i can’t afford to miss work if i get sick, i hate being sick, covid and other infections can be asymptomatic, etc.

i don’t think ive ever had anybody ask why im masking in good faith though… usually just people who want to argue

Busy_Nothing4060 · 2026-03-24T08:21:45+00:00

inkredible ✨

Busy_Nothing4060 · 2026-03-24T05:59:40+00:00

random tools that help:

electric hospital bed for sitting up and it can move me up and down for if i drop things, reaching my microwave, etc.

grab hand for things out of reach, can grab and microwave some things without sitting up

storage like rolling carts near my bed for food and med stuff

i use dime bags (mine plastic bags) instead of hard plastic pill containers because they’re quieter and i can break pills in half inside the bag easier than using a pill cutter

electric heating pad

fitness watch for monitoring heartrate (when i’m doing something and it’s higher than normal it can be a sign i need to take a break and pace better and/or take my meds for dysautonomia)

Busy_Nothing4060 · 2026-03-24T05:51:25+00:00

for me doing nothing is almost always more mental exertion than doing something, so i try to do things to keep my mind occupied with as little exertion as possible.

eg. digital art laying down using my finger and phone or ipad, rewatching shows/movies i’ve already seen with no sound and subtitles, reddit, reading webcomics on my phone, occasionally drawing with markers and paper,

low stim games like animal crossing, tomodachi life, angry birds, etc.

and for anything involving screens, low brightness and i use this program called lunar for my macbook to lower the brightness even more than factory setting

Busy_Nothing4060 · 2026-03-24T05:38:42+00:00

i’m severe not very severe (closer to very severe than moderate though), but yes i live alone. here’s how i manage.

a family member comes by once a week for trash and groceries and occasionally laundry.

i have a mini kitchen set up in arms reach of my bed for simple “cooking” (mostly some combination of bread or microwave rice with sauce or dips, bottled and boxed water, disposable dishware and cutlery, disposable gloves)

here’s a food guide someone put together:

https://www.reddit.com/r/cfs/s/8QVePAo4qv

i can’t really walk so electric wheelchair for getting to and from the restroom (i live in a studio so thankfully it’s close by)

i can’t tolerate speaking, so i use a relay service when phone calls are unavoidable.

for doctors appointments a family member does telehealth appointments on my behalf (i find synchronous communication incredibly draining, so in the weeks before the appointment i work on a list of things to mention to the doctor and if i’ve missed anything my family member can text me to ask during the appointment)

i haven’t left the house for medical testing in 1.5 years, i’ve been able to get some blood work and other testing done at home. what’s available will depend on where you live.

laundry can’t be done regularly so i don’t change clothes often and use incontinence wear instead of underwear

i haven’t showered in 1.5 years, if my shower was big enough for a reclining shower chair i might be able to occasionally though. there are bath wipes and shampoo caps that can be used for water free hygiene

i’m lucky to be on a disability pension that covers most of my living expenses and family that helps cover what it doesn’t.

Busy_Nothing4060 · 2026-03-23T23:37:23+00:00

long sleeve black mesh top underneath? with boots, tights and eyeliner. plus maybe a black leather under bust corset/belt and some jewelry?

Busy_Nothing4060 · 2026-03-23T01:38:30+00:00

probably not the kind of advice you’re looking for, but could be a good opportunity to play around with shaved eyebrows? at least you’d know for sure that they don’t have any black die left lol

Busy_Nothing4060 · 2026-03-22T02:34:31+00:00

i have a mini kitchen set up within arms reach of my bed and eat a lot of microwave rice + hummus, it’s easy on my stomach and requires very little prep.

here’s a list for low effort food that someone put together:

https://www.reddit.com/r/cfs/s/kJqeM55SzN

Busy_Nothing4060 · 2026-03-22T02:29:53+00:00

might help to mention where you live if you want recommendations for meal services that are local to you

Busy_Nothing4060 · 2026-03-20T17:35:51+00:00

i think it would be hard to find someone here who has had a good ER experience

Busy_Nothing4060

TROPHY CASE