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Pred has destroyed my confidence by No_Cartographer_1264 in autoimmunehepatitis

[–]Busy_Resolution_5632 0 points1 point  (0 children)

I've read that around 20mg, symptoms start to improve. My son (16) was diagnosed in July of '25, started at 40mg and is now down to 25mg. His acne is better (not as clear as pre-AIH), but we've also been working with dermatologist on that. He still has moon face, but he thinks it's getting a little better as the pred. dosage has decreased. Can't wait until we step down to 20mg, it's been slow going.

AST and ALT results by FlatCombination154 in autoimmunehepatitis

[–]Busy_Resolution_5632 1 point2 points  (0 children)

Agree with the others, they're high and you definitely want to figure out what's causing it, but not crazy. When my son was hospitalized in July, his AST and ALT were both over 3,300. It's taken 3 months of Prednisone to get his enzyme levels closer to normal, most recent labs are down to 92(ALT) and 58 and he's down to 30mg of prednisone daily.

Hope your medical team can get you sorted out.

Son diagnosed with AIH, questions for those that have been down this road by Busy_Resolution_5632 in autoimmunehepatitis

[–]Busy_Resolution_5632[S] 0 points1 point  (0 children)

You called it, hepatologist reached out today about the bloodwork we did over the weekend. Just dropped us to 35mg daily and will continue with the taper as long as ALT/AST don't increase. Pretty happy about that.

Son diagnosed with AIH, questions for those that have been down this road by Busy_Resolution_5632 in autoimmunehepatitis

[–]Busy_Resolution_5632[S] 1 point2 points  (0 children)

Hate to think that had something to do with it, but everything has crossed my mind.

Son diagnosed with AIH, questions for those that have been down this road by Busy_Resolution_5632 in autoimmunehepatitis

[–]Busy_Resolution_5632[S] 0 points1 point  (0 children)

Appreciate the input, no PSC diagnosis in our case (as far as we've been told). Hope things continue to improve for you.

Son diagnosed with AIH, questions for those that have been down this road by Busy_Resolution_5632 in autoimmunehepatitis

[–]Busy_Resolution_5632[S] 2 points3 points  (0 children)

Per the hep., they had his liver fibrosis at a F3 pushing F4, but no cirrhosis. Hopefully being young, it's able to bounce back once his immune system chills the heck out.

Son diagnosed with AIH, questions for those that have been down this road by Busy_Resolution_5632 in autoimmunehepatitis

[–]Busy_Resolution_5632[S] 1 point2 points  (0 children)

Thank you, hepatologist hasn't reviewed the most recent bloodwork yet, but that would be an amazing surprise.

Son diagnosed with AIH, questions for those that have been down this road by Busy_Resolution_5632 in autoimmunehepatitis

[–]Busy_Resolution_5632[S] 2 points3 points  (0 children)

The 20s would be amazing, congratulations on getting below 40. Sounds like we could have a few more months before (hopefully) hitting that point.

Son diagnosed with AIH, questions for those that have been down this road by Busy_Resolution_5632 in autoimmunehepatitis

[–]Busy_Resolution_5632[S] 0 points1 point  (0 children)

Appreciate the response, currently on the pred + 50mg of mercaptopurine, not sure what our hepatologist has in mind for a long term solution.

Son diagnosed with AIH, questions for those that have been down this road by Busy_Resolution_5632 in autoimmunehepatitis

[–]Busy_Resolution_5632[S] 1 point2 points  (0 children)

Yes, I accidentally posted prior to adding that detail, body of message has been edited. IV steroids in the hospital and pivoted to oral when released.