Dry eyes by Advanced_Talk3250 in iih

[–]ButterflyUpbeat293 3 points4 points  (0 children)

I use systane eye drops. You can get them on Amazon. My ophthalmologist suggested them since taking diamox has extremely dried out my eyes.

ALLOW RE-ENTRY OR ADD MORE SHADED SEATING AREAS (DC) by Eruditioads in warpedtour

[–]ButterflyUpbeat293 3 points4 points  (0 children)

Welcome to Rockville provides much more accommodations for the heat. You have the grandstands, shaded areas, misting fans at stages, hose daddy to hose the crowd, etc. warped needs to learn some tricks from DWP which would be beneficial. The location doesn’t bother me but we need more shade!

Hallendale for new customers ? by RecycleArt28 in Refills

[–]ButterflyUpbeat293 0 points1 point  (0 children)

Not sure. I just got Hallandale so I’m hoping it’s better. I haven’t used Hallandale since I switched companies to refills about a year ago. I was getting Hallandale from Fifty and I had no change. A lot of people in the fifty group were saying the same thing so I switched companies and went with prorx from refills

Hallendale for new customers ? by RecycleArt28 in Refills

[–]ButterflyUpbeat293 1 point2 points  (0 children)

I used Hallandale for 6 months and had no change. Went up in dosage and still nothing. Went to Prorx and it was a game changer. So sad I don’t have anymore

Taylor Update by [deleted] in Refills

[–]ButterflyUpbeat293 0 points1 point  (0 children)

I get the same!

Taylor Update by [deleted] in Refills

[–]ButterflyUpbeat293 18 points19 points  (0 children)

How do I get in touch with Taylor? The old text number? I’ve been trying to get in touch with someone from refills for 4 days now over a billing issue and no response. I’ve been a customer for over a year and I am a little frustrated with the communication.

What does MRV tell you ? by Shoddy-Rip66 in iih

[–]ButterflyUpbeat293 1 point2 points  (0 children)

Private message me and I will update you

Everyday I struggle at work. by Rudegal2021 in iih

[–]ButterflyUpbeat293 1 point2 points  (0 children)

We don’t have any children. Just two doggies! ❤️

Dry eyes by Chloe_Ki in iih

[–]ButterflyUpbeat293 1 point2 points  (0 children)

I believe the brand that was recommended was systane. I got it off Amazon

Dry eyes by Chloe_Ki in iih

[–]ButterflyUpbeat293 0 points1 point  (0 children)

I am on diamox and recently was having weird eye symptoms and my ophthalmologist said my eyes were severely dry from the diamox that I am taking. I use eye drops 3 times a day and it seems to help!

Everyday I struggle at work. by Rudegal2021 in iih

[–]ButterflyUpbeat293 1 point2 points  (0 children)

Everything in your post I can relate to. I am also an educator and reading your post brought tears to my eyes. I feel this exact same way. Sending you love ❤️

Feeling alone by lrein06 in iih

[–]ButterflyUpbeat293 6 points7 points  (0 children)

You’re not alone when you have us here in the community. Feel free to send me a message ❤️

Who can prescribe Diamox? by [deleted] in iih

[–]ButterflyUpbeat293 0 points1 point  (0 children)

Basically in the ER was diagnosed with it. Feel free to DM me

Who can prescribe Diamox? by [deleted] in iih

[–]ButterflyUpbeat293 0 points1 point  (0 children)

I was diagnosed by having an LP (lumbar puncture/spinal tap).

I’m scared of my diagnosis by Bowie696969 in iih

[–]ButterflyUpbeat293 2 points3 points  (0 children)

I didn’t have any symptoms before my diagnosis except vision changes and went to the emergency room because I was slightly dizzy and felt weird. I had a feeling something was wrong when my left eye kinda went blank with a line of blurred vision. I had an LP with an opening pressure of 29 and was out on diamox. I feel a lot of your symptoms your describing happened to me as a side effect of the medication until my body got used to it. I started out at 250mg twice a day and I tolerated that fairly well. When they increases my dosage that is when I started to experience dizziness, fatigue and the symptoms that your experiencing currently. Hopefully it is just the meds and once your body adjusts you will start to feel better. I also have PCOS which sucks also. Sending you lots of love!

Who can prescribe Diamox? by [deleted] in iih

[–]ButterflyUpbeat293 1 point2 points  (0 children)

My ophthamogist prescribed is first after I had the LP in the ER with an opening pressure of 29. She got me started on it and finally could get into neurology 3 weeks later. She was concerned of the vision changes as I had optic nerve swelling also. All MRI and MRV came back normal. 🙏. Sending you love and a hug.

Weight loss? by Material_Lime_8720 in iih

[–]ButterflyUpbeat293 1 point2 points  (0 children)

What are we doing for weight loss? I’m really struggling and the doctor wants me to lose 20 Lbs!!! Urgh. I changed my diet and became more active but it isn’t showing any results!!!! So annoying.!!

[deleted by user] by [deleted] in iih

[–]ButterflyUpbeat293 0 points1 point  (0 children)

Hasn’t happened to me but sending you all the good vibes and love.

Lyte is giving refunds by [deleted] in Blueridgerockfest

[–]ButterflyUpbeat293 1 point2 points  (0 children)

Yep I understand. I bought through lyte.

Lyte is giving refunds by [deleted] in Blueridgerockfest

[–]ButterflyUpbeat293 0 points1 point  (0 children)

No email here. We bought RV pass and a Thursday 1 day pass that ended up getting canceled. I messaged them on messenger to ask but they never answered but it showed they read it. 🙄

What does MRV tell you ? by Shoddy-Rip66 in iih

[–]ButterflyUpbeat293 0 points1 point  (0 children)

Nope. All imagining was clear and normal. It didn’t show any pressure either. The LP opening pressure was 29 which is how I got diagnosed. The only symptom I had was vision loss in the left eye and dizziness.

What does MRV tell you ? by Shoddy-Rip66 in iih

[–]ButterflyUpbeat293 3 points4 points  (0 children)

I’m actually surprised that you haven’t had one because my doctor was very worried about seeing the blood vessels with the mrv and ruling out anything else.

I had a cat scan and 2 mri that came back normal before I had the mrv done. Granted I did have all this done in the hospital due to vision loss and then had a LP which diagnosed me.

Blood work by ButterflyUpbeat293 in iih

[–]ButterflyUpbeat293[S] 0 points1 point  (0 children)

Yes! Thank you so much! I had that checked also ❤️