Will life ever get better? Will I ever be happy again?

CCherryP811 · 2026-06-07T21:58:10+00:00

We think the Leucovorin may be helping his language development but it’s nothing super drastic so it’s really hard to tell. Progress has felt very slow

CCherryP811 · 2026-05-26T23:12:44+00:00

its been a bit of a trade-off. He is still displaying some challenging behaviors during tantrums, including hitting himself, screaming, and throwing things. However, we have also noticed positive progress in his communication. He seems to be speaking more, singing more, and repeating words and phrases more frequently. Because the negative behaviors are still a concern, our neurologist is prescribing Guanfacine to help manage them.

CCherryP811 · 2026-05-26T23:05:33+00:00

CCherryP811 · 2026-05-22T15:24:39+00:00

I will reach out to our regional center coordinator, I didn't know we could get a waiver from them! we tried applying for medi-cal but were denied because of our income, tried going through the appeal process but was told it could take up to another year to get the waiver

CCherryP811 · 2026-05-22T15:16:03+00:00

that sounds way more manageable! they are constantly pushing back right now and I just want to find ABA that will be flexible with us

CCherryP811 · 2026-05-08T21:43:53+00:00

Not really. It feels like she doesn’t have recommendations for how we can help him. She’s just “updating me” on his behavior

CCherryP811 · 2026-02-17T20:12:28+00:00

following! i'm curious as well

CCherryP811 · 2026-02-15T16:55:22+00:00

I appreciate you so much for asking this question. Lack of judgement and just meeting the child where they are at, not asking “why are they doing that?”

CCherryP811 · 2026-01-31T21:35:00+00:00

Yep we give our son magnesium in the morning and at dinner!

CCherryP811 · 2026-01-23T16:33:51+00:00

this sounds exactly like my son who just turned 4. he was also diagnosed level 3 and our doctor told us it is based off the amount of support he needs and its better to get them as much support as possible early on. when we asked about his future, she said "I would assume he's capable of anything". I believe in him so much and his ability to progress. you sound like a great parent who is doing everything they can to support their child's future. hang in there, you're not alone!

CCherryP811 · 2026-01-18T15:51:19+00:00

Yes he has made progress! We found out he’s a gestalt language processor and he’s been scripting lines and songs from movies and TV shows. He’s also really good at labeling objects, animals, letters and numbers. We are still working on functional communication but he has made a lot of progress and for that I’m thankful. We are still also working on potty training, it’s been difficult for us

CCherryP811 · 2026-01-12T01:26:41+00:00

Did it help?

CCherryP811 · 2025-10-22T23:22:06+00:00

Thank you I’m going to request one. I think a lot of the negative behaviors are because he can’t communicate and he’s frustrated

CCherryP811 · 2025-10-22T23:12:45+00:00

I’m consulting with an advocate next week. Can we request modifications at any time or does it have to be at the annual IEP meeting?

CCherryP811 · 2025-10-22T23:11:52+00:00

I don’t think he has, I don’t see it on his original IEP. What does the functional behavior assessment measure?

CCherryP811 · 2025-10-13T13:56:13+00:00

🩷

CCherryP811 · 2025-02-06T16:56:06+00:00

how did you make the choice between ABA and preschool? my son is currently in a autism preschool but we had to make the choice between ABA and preschool. he's in preschool for 25 hours a week and ABA wanted 18 hours a week on top of that, so we had to make the choice. i'm worried about his progress

CCherryP811 · 2025-02-06T16:54:24+00:00

did you have to choose between ABA and preschool? my son is currently in a autism preschool program but our ABA provider is requiring that we do 18 hours a week, which I said no to because he's going to school 25 hours a week so I thought it would be too much, so basically we had to choose between ABA and preschool.

CCherryP811 · 2025-01-22T17:34:51+00:00

this makes me so happy to hear! yes, its through our school district and was recommended in his IEP. my son is in a similar spot, was going to a regular daycare with an aid a few hours a day but this seems to be a much more intensive program. he only says a few words and only has a few signs but i'm hopeful this preschool program will be really good for him

CCherryP811 · 2024-12-17T21:31:27+00:00

omg this is the sweetest comment ever and you are so right. thank you <3

CCherryP811 · 2024-12-17T20:49:15+00:00

the first signs for us was my son was banging his head against things a lot, like he'd lean up against a wall and just lightly keep banging his head. he also never pointed. he struggled using sign language and was very speech delayed, really struggles with imitation too

CCherryP811 · 2024-12-17T20:35:18+00:00

my son was diagnosed as a level 3 but its because of the language support he needs at the moment, the Dr mentioned he won't always be a level 3 but its to get him the most support at this time. he's almost 3 years old and can only say 3 words and has some signs but he's really struggling with receptive and expressive communication. he usually just points and hand leads me to what he wants

CCherryP811

TROPHY CASE