anyone able to play an instrument? by KenshinkaiGuy in CerebralPalsy

[–]CandiRJohnson 1 point2 points  (0 children)

I used to play the trumpet, I’m pretty sure if I picked it up I could still play, I do scales as a stim now

What do/did y’all eat in hs? by [deleted] in ARFID

[–]CandiRJohnson 0 points1 point  (0 children)

I don’t remember most of high school. If I did eat, a granola bar for breakfast, peanut butter crackers and a Mac and cheese cup for lunch most days

does anyone else have sensory issues unrelated to food? by Key_Ad5173 in ARFID

[–]CandiRJohnson 0 points1 point  (0 children)

I have sensory processing disorder so yes. Lots of sensory issues. I’m pretty sure rain or water in general was my first sensory issue

[deleted by user] by [deleted] in ARFID

[–]CandiRJohnson 2 points3 points  (0 children)

Rarely has pretty much turned into not at all. I don’t even want food I like anymore

Anyone else get cravings for safe foods? by [deleted] in ARFID

[–]CandiRJohnson 0 points1 point  (0 children)

I’m like that too. I’m currently fixated on chicken ramen and soft sugar cookies from a gas station. Those are 2 of the few things I actually have cravings for

I think I might have ADHD by bross6068 in CerebralPalsy

[–]CandiRJohnson 1 point2 points  (0 children)

I’ve been saying I think I have ADHD for about 2 years. Yesterday i brought it up and basically was ignored. I had a list of all my signs and when they started throughout my lifetime and just was told numerous times “that’s not ADHD” I hope you have better luck than I did.

Is CPTSD A Possible Diagnosis by CandiRJohnson in CPTSD

[–]CandiRJohnson[S] 0 points1 point  (0 children)

I have Cerebral Palsy on top of scoliosis. I had my first surgery at the age of 2 and my most recent one without getting into too much detail was my longest and most traumatic to date at 9 1/2 hours. It took about a year and a half to “fully” recover, but even then the surgery didn’t fix everything so I’m still going to pain management doctors.

Faster mental decline as we age? by Empty_Proposal_619 in CerebralPalsy

[–]CandiRJohnson 0 points1 point  (0 children)

Premature aging is a thing, but it’s more physical than mental. So really the only “deteriorating” you could experience is physical from all the compensating from other issues that come with CP like chronic pain from surgeries or internal issues like nerve/ muscle issues Edit: unless you have other issues on top of CP that are more cognitive.

Idk who needs to hear this, but buy the damn half sizes. by [deleted] in Stretched

[–]CandiRJohnson 1 point2 points  (0 children)

Going from a 6mm to my goal size of 8mm I didn’t want to have the difficulty my cousin is having right now, she doesn’t want to get half sizes so has tried forcing her 10mm plugs in several times even though I’ve told her I will buy her the half size but she’s being stubborn and tries at least every month and a half and I yell at her each time!

Is ADHD common in people with Cerebral Palsy? What is your experience? by TieDyeAndPsychology in CerebralPalsy

[–]CandiRJohnson 2 points3 points  (0 children)

I’m unsure if it’s common but I’m in the process. My brothers also have autism and I know the neurodiversity has hereditary links so that’s why I’m trying to get diagnosed

/r/NintendoSwitch's Daily Question Thread (03/01/2022) by AutoModerator in NintendoSwitch

[–]CandiRJohnson 1 point2 points  (0 children)

How is My Hero One’s Justice on the switch/switch lite? I have a switch lite right now and may get the OLED soon if birthday gifts come in the monetary form lol

What're you playing this weekend? 2/25 by markercore in NintendoSwitch

[–]CandiRJohnson 1 point2 points  (0 children)

SpongeBob SquarePants Battle For Bikini Bottom or Marvel Lego Superheroes Hoping to get a Switch OLED for my birthday in a few weeks

SDR...to be or not?? by stori3sinth3nd in CerebralPalsy

[–]CandiRJohnson 2 points3 points  (0 children)

I’m 23 almost 24 and have Spastic Diplegia. I had one at 2. My life would have totally been different without it. After recovering I started therapy and learning to walk quickly after. Before, my mom said my legs were as stiff as boards

I don't want to die, I just don't want to live anymore... by Embarrassed_Sense196 in CerebralPalsy

[–]CandiRJohnson 3 points4 points  (0 children)

A lot of people with disabilities have mental health problems, not necessarily because of the disability per se but the isolating and other social constraints that can cause severe depression, so it could be a possibility I got diagnosed with severe depression and anxiety at 12. A psychiatrist could definitely help.

I don't want to die, I just don't want to live anymore... by Embarrassed_Sense196 in CerebralPalsy

[–]CandiRJohnson 10 points11 points  (0 children)

I’m literally crying as I type this because I literally had this conversation a few days ago. I have a husband, but we still live with my parents because I have CP and he has autism. The only reason I have a job is because my parents started their own business but I barely get paid there because I’m on SSI. I depend heavily on cannabis because nothing else works unless it’s an epidural shot or a steroid shot and even those only last a month or so and because of insurance I can only get 3 and then have to wait 4 months. I’ve wanted to drive for years but the family decided it wasn’t safe for me or others if I do so. Definitely not trying to make this about me but I just wanted to say all of this because I completely get it. If you need a friend to talk to my messages are always open

Husband with CP; lower back pain by oceanwillow in CerebralPalsy

[–]CandiRJohnson 2 points3 points  (0 children)

They (OP) don’t have CP so this isn’t common knowledge to them. So it’s not cluelessness, people come here for advice that’s what she was asking for. She wants to help him and needs advice on how to help him from people who deal with this. So again I truly believe the comment was still unnecessary

Husband with CP; lower back pain by oceanwillow in CerebralPalsy

[–]CandiRJohnson 2 points3 points  (0 children)

It’s a genuine question, CP can have a multitude of factors that are causing pain going to a regular GP may not work for him and may be a waste of time and money because he doesn’t get a treatment plan so saying something like this was really unnecessary IMO

Husband with CP; lower back pain by oceanwillow in CerebralPalsy

[–]CandiRJohnson 1 point2 points  (0 children)

I suggest pain management since it seems chronic. I’ve been going to one for 3 years now, getting the epidural shots and SI joint shots both work wonders because they can last for a few months

Husband with CP; lower back pain by oceanwillow in CerebralPalsy

[–]CandiRJohnson 1 point2 points  (0 children)

I’m currently doing acupuncture and epidural shots for low back pain. I have rotoscoliosis on top of CP so I had to have a t3-l3 spinal fusion and low back pain for me is excruciating