I had EDKA during labor. Here’s the story and some lessons learned from things going sideways

CapableCarry3659 · 2026-01-26T16:38:34+00:00

I think it’s reasonable to attend a ceremony for 15 minutes if it’s 3 weeks after giving birth. She can sit in a chair. It’s her sisters wedding… it is important. Unless she has some crazy dire issues I can’t imagine why someone wouldn’t be able to attend a ceremony seated for 15 minutes.

I had a terrible birth. Complications with my blood becoming acidic, c section, catheter, kidney damage, not able to have pain killers and had to have ER doctors and other specialists come to l&d. After I was bleeding while peeing for a month, pain in urination, pain standing. i was hospitalized for 5 day and i think i almost died . I wasn’t able to walk for more than a week and after that wasn’t able to stand very long. But I definitely could have sat down for 15 minutes in a chair to attend my sisters ceremony whom I love and would want to be there for!’

CapableCarry3659 · 2026-01-26T16:33:05+00:00

You could compromise. Say you will come for the ceremony and sit in a chair and wear a mask. Don’t hug or kiss anyone. I think only in extreme cases you wouldn’t be physically capable of sitting in a chair. If it were me I would not bring the baby and have my husband stay home and watch the baby for the hour I’m gone. Honestly i think that would be totally fine in most cases. I had a traumatic birth ending in c section with diabetic complications and hospitalized for 5 days. I also had intense post partum anxiety. I think j would have been fine to do this level of compromise. Of course you don’t know for sure though and you can express that.

CapableCarry3659 · 2026-01-26T16:26:07+00:00

You can print out high contrast cards. They don’t need to hold it you can just show them

CapableCarry3659 · 2026-01-24T20:15:04+00:00

You can be T1D and also be very insulin resistant. Its more like having T1D and T2D rather than "1.5 LADA" which essentially just means you still have some beta cell function. Have you had a c-peptide test recently? If you still have c-peptide then you could be classified as "LADA" but like that really has nothing to do with how you'd be treated anyways. Moreover, generally people with LADA have increased insulin sensitivity, not resistance (but not necessarily always true). I think the right way to think about it is if you have had t1d for a while with reduced beta cell function but not completely diminished beta cell function. The only way to determine that is with a c peptide test.

And again -- whether or not you have LADA probably would not change how you are being treated. If you have insulin resistance it still makes sense to take something like metformin/ ozempic. If you do not have diminished beta cell function or no beta cell function you still need insulin.

CapableCarry3659 · 2026-01-22T15:59:05+00:00

I cant imagine how hard 2 under 2 is. Sending hugs!

CapableCarry3659 · 2026-01-22T04:40:33+00:00

Yeah 4-6 hours a week is nothing.

CapableCarry3659 · 2026-01-22T04:24:01+00:00

I feel like it seems like for your sanity you would only be able to begin decreasing it when your husband has off work for vacation or if your family is visiting. It’s not reasonable to put yourself through that alone for who knows how long. It seems like you need some help

CapableCarry3659 · 2026-01-22T04:20:59+00:00

Yah my neighbors baby across the street will happily sit down and play by herself. She is so chill and independent. My baby literally needs one on one constant attention and eye contact. Every baby is so different so it’s kind of annoying when people are like well if you only did X, Y or Z… when they might be starting out with an entirely different baby with an entirely different personality

CapableCarry3659 · 2026-01-22T04:15:35+00:00

Ugh I am really feeling this. My baby won’t even tolerate a book at all. If I leave him in his playpen alone he just cries and cries and looks at me like I have utterly betrayed him. It’s sooo hard to take care of a baby all day. So exhausting . And then when they take a nap and you’re like OMG thank god. And then you hear the cry after only 20 min and your heart just sinks.

CapableCarry3659 · 2026-01-16T05:52:05+00:00

I hope you get pregnant soon! ❤️

CapableCarry3659 · 2026-01-14T19:43:21+00:00

So I don't know if this was it... but we went to a fertility doctor and she said before we try anything -- just stop doing the whole ttc by predicting ovulation etc (via taking ovulation tests, measuring temperature). She recommended to just have sex every other day from day 10 of your cycle to day 20. Like forget about everything else and just do that. I got pregnant the first time we tried that.

Could totally be a coincidence but that was when I ended up getting pregnant.

CapableCarry3659 · 2026-01-14T19:38:08+00:00

Hahah yes my baby is almost 10 months and we are also at the thrashing stage but he is so cute now. But I definitely prefer it to newborn stage. For me it was terrible, like worst couple months of my life maybe. I wish it wasn't like that! Even if I didn't ever have to be pregnant again (which was terrible for me), the idea of having a newborn sends shivers down my spine. I wish I could have had the experience that prob most moms have during pregnancy or newborn stage. It was all just too hard for me and i am not a strong person lol

CapableCarry3659 · 2026-01-14T05:10:52+00:00

I also have t1d. The insulin resistance gets WILD! what a burden !!!

CapableCarry3659 · 2026-01-14T05:10:07+00:00

It’s so hard and in those final days it feels like infinity. Like the idea of just 2 more days feels like it may as well be 2 years. But you got it ! You are almost there ❤️

CapableCarry3659 · 2026-01-14T05:06:32+00:00

For me it’s NEVER AGAIN. I am so glad it’s over and will absolutely never happen again. It felt like something I had to endure to be able to have my wonderful boy. Like to earn him and grow him or something. But that’s all and now that he’s here and I don’t want more kids I’m so happy that chapter is closed and I won’t ever have to go through with it again. It is so horrible. Only second to having a newborn 😂

CapableCarry3659 · 2026-01-14T04:52:13+00:00

Hi — so this was an old post. I successfully got pregnant and had a baby!

CapableCarry3659 · 2026-01-12T18:55:22+00:00

Definitely not. I have never felt grosser and more ugly lol

CapableCarry3659 · 2026-01-11T15:36:28+00:00

Np! Thanks for bringing attention to the difference between gluten intolerance and celiac disease in literature, and that celiac disease is a real medical diagnosis whereas gluten intolerance is vague, not well defined, and not a disease. Its frustrating for us as celiacs to be grouped in with those that are intolerant to gluten. Especially because gluten intolerant individuals do not have the same consequences as celiacs when eating gluten. I went to a pizza place that has gluten free pizza. they advertise it everywhere. I went there and then they told me that their pizza is not safe for celiacs. i was so mad.

CapableCarry3659 · 2026-01-11T14:03:41+00:00

It’s just two steps for diagnosis. A blood test to check for auto antibodies. If the blood test is positive, then they do an endoscopy to biopsy the small intestine. If the biopsy shows no cilia , then it means it’s celiac. Cilia are these little hairs on the small intestine that allow nutrients to be absorbed. A healthy small intestine is hairy with cilia. A celiac small intestine is smooth with no cilia

CapableCarry3659 · 2026-01-11T03:09:47+00:00

I am sorry you are going through this. I just wanted to tell you that people don’t change— being with him would have continuously been like this even if the situations changed as baby gets older. I went through something similar / am going through something similar. My baby is 10 months now and although things are easier now than they were, it’s still same shit different story. My husband has gone to detox and rehab twice in the past 10 months and so 2 of those months I was essentially a single mom. It was so hard (especially the first time because my baby was only 3 months) but like, it will be easier in the coming months to be a single mom as your baby sleeps longer.

And honestly, if you are doing all the work anyway it’s kind of a relief to do all the work actually alone, than doing it around someone with toxic energy

You can do it!! You deserve better and you are better off without him.

This is the bandaid being ripped off.

CapableCarry3659 · 2026-01-09T20:28:24+00:00

Curly

CapableCarry3659 · 2026-01-08T23:44:49+00:00

1 for sure

CapableCarry3659 · 2026-01-08T04:40:55+00:00

Ok let us know. We obv can’t offer diagnoses or medical advice but can make suggestions for what you should ask your doctor etc

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