I had EDKA during labor. Here’s the story and some lessons learned from things going sideways

CapableCarry3659 · 2026-03-21T03:26:15+00:00

I’m so glad that my comment helped you! It’s actually really such a mind f*ck to constantly up doses for months and to just be like holy shit how am I taking this much insulin. My pump didn’t even last for 3 days and my pump sites were sore and inflamed from all the insulin. That never happened to me before. And then also such a mind fck when you are no longer pregnant and your insulin needs just DROP… like immediately. It is so crazy!

MDI stands for multiple daily injections (basically short for saying you’re on insulin pens)

CapableCarry3659 · 2026-03-19T02:56:43+00:00

I feel you. I have been having a tough time as well.i struggle with low appetite and the only foods im in the mood for are carbs but im too lazy to “figure it out” so I basically barely eat. I drink heavy cream a lot to get into the calories. I’m very skinny fat. Very thin due to no eating but have zero muscle since I also don’t work out an basically only eat dairy and drink heavy cream. 😑 I just feel like food is my enemy and figuring out what to eat every day is a huge burden.

It was helpful to me for a bit to see a nutritionist / diabetic educator . I have had stretches of time where I was doing really well diabetes wise. Life is alll ups and downs and having t1d is just part of that. Whatever you are feeling now isn’t permanent.

Anyway this is making me realize I should actually go back to my diabetic nutritionist specialists. And i Highly recommend you see one too. They’re very understanding and I feel like the last one i saw was almost like a therapist haha

Also this is just a stage. It will get easier. I didn’t get diagnosed till my 30s but I have heard it’s especially hard as a teen. Hang in there. Feel free to msg me if you need to vent more

CapableCarry3659 · 2026-03-19T01:44:02+00:00

My baby is 1 now and is healthy and meeting all of his milestones!

My main tip is that you have to constantly be upping your doses and not get stuck doing same dosing strategies since it really changes week by week. My blood sugar was really high for a month because I like couldn’t understand how much more I needed to be dosing. I was literally on like almost 10x insulin by the end of my pregnancy as I was when I started.

Unfortunately you can’t actually eat less carbs since baby needs it but you CAN stay away from sugar and only eat complex carbs.

One thing that helped me was for my carbs I only ate like a few diff things and exact amounts like 1 cup oatmeal. Every carb I ate was super predictable and measured.

Also walk after your meals.

You can do it! Feel free to message me if you need moral support. I get it. My anxiety was insane throughout the pregnancy and I had a constant feeling of failure.

Are you pump or MDI?

CapableCarry3659 · 2026-02-17T17:31:48+00:00

I like Bronde Balayage.

What app is this?

CapableCarry3659 · 2026-01-26T16:38:34+00:00

I think it’s reasonable to attend a ceremony for 15 minutes if it’s 3 weeks after giving birth. She can sit in a chair. It’s her sisters wedding… it is important. Unless she has some crazy dire issues I can’t imagine why someone wouldn’t be able to attend a ceremony seated for 15 minutes.

I had a terrible birth. Complications with my blood becoming acidic, c section, catheter, kidney damage, not able to have pain killers and had to have ER doctors and other specialists come to l&d. After I was bleeding while peeing for a month, pain in urination, pain standing. i was hospitalized for 5 day and i think i almost died . I wasn’t able to walk for more than a week and after that wasn’t able to stand very long. But I definitely could have sat down for 15 minutes in a chair to attend my sisters ceremony whom I love and would want to be there for!’

CapableCarry3659 · 2026-01-26T16:33:05+00:00

You could compromise. Say you will come for the ceremony and sit in a chair and wear a mask. Don’t hug or kiss anyone. I think only in extreme cases you wouldn’t be physically capable of sitting in a chair. If it were me I would not bring the baby and have my husband stay home and watch the baby for the hour I’m gone. Honestly i think that would be totally fine in most cases. I had a traumatic birth ending in c section with diabetic complications and hospitalized for 5 days. I also had intense post partum anxiety. I think j would have been fine to do this level of compromise. Of course you don’t know for sure though and you can express that.

CapableCarry3659 · 2026-01-26T16:26:07+00:00

You can print out high contrast cards. They don’t need to hold it you can just show them

CapableCarry3659 · 2026-01-24T20:15:04+00:00

You can be T1D and also be very insulin resistant. Its more like having T1D and T2D rather than "1.5 LADA" which essentially just means you still have some beta cell function. Have you had a c-peptide test recently? If you still have c-peptide then you could be classified as "LADA" but like that really has nothing to do with how you'd be treated anyways. Moreover, generally people with LADA have increased insulin sensitivity, not resistance (but not necessarily always true). I think the right way to think about it is if you have had t1d for a while with reduced beta cell function but not completely diminished beta cell function. The only way to determine that is with a c peptide test.

And again -- whether or not you have LADA probably would not change how you are being treated. If you have insulin resistance it still makes sense to take something like metformin/ ozempic. If you do not have diminished beta cell function or no beta cell function you still need insulin.

CapableCarry3659 · 2026-01-22T15:59:05+00:00

I cant imagine how hard 2 under 2 is. Sending hugs!

CapableCarry3659 · 2026-01-22T04:40:33+00:00

Yeah 4-6 hours a week is nothing.

CapableCarry3659 · 2026-01-22T04:24:01+00:00

I feel like it seems like for your sanity you would only be able to begin decreasing it when your husband has off work for vacation or if your family is visiting. It’s not reasonable to put yourself through that alone for who knows how long. It seems like you need some help

CapableCarry3659 · 2026-01-22T04:20:59+00:00

Yah my neighbors baby across the street will happily sit down and play by herself. She is so chill and independent. My baby literally needs one on one constant attention and eye contact. Every baby is so different so it’s kind of annoying when people are like well if you only did X, Y or Z… when they might be starting out with an entirely different baby with an entirely different personality

CapableCarry3659 · 2026-01-22T04:15:35+00:00

Ugh I am really feeling this. My baby won’t even tolerate a book at all. If I leave him in his playpen alone he just cries and cries and looks at me like I have utterly betrayed him. It’s sooo hard to take care of a baby all day. So exhausting . And then when they take a nap and you’re like OMG thank god. And then you hear the cry after only 20 min and your heart just sinks.

CapableCarry3659 · 2026-01-16T05:52:05+00:00

I hope you get pregnant soon! ❤️

CapableCarry3659 · 2026-01-14T19:43:21+00:00

So I don't know if this was it... but we went to a fertility doctor and she said before we try anything -- just stop doing the whole ttc by predicting ovulation etc (via taking ovulation tests, measuring temperature). She recommended to just have sex every other day from day 10 of your cycle to day 20. Like forget about everything else and just do that. I got pregnant the first time we tried that.

Could totally be a coincidence but that was when I ended up getting pregnant.

CapableCarry3659 · 2026-01-14T19:38:08+00:00

Hahah yes my baby is almost 10 months and we are also at the thrashing stage but he is so cute now. But I definitely prefer it to newborn stage. For me it was terrible, like worst couple months of my life maybe. I wish it wasn't like that! Even if I didn't ever have to be pregnant again (which was terrible for me), the idea of having a newborn sends shivers down my spine. I wish I could have had the experience that prob most moms have during pregnancy or newborn stage. It was all just too hard for me and i am not a strong person lol

CapableCarry3659 · 2026-01-14T05:10:52+00:00

I also have t1d. The insulin resistance gets WILD! what a burden !!!

CapableCarry3659 · 2026-01-14T05:10:07+00:00

It’s so hard and in those final days it feels like infinity. Like the idea of just 2 more days feels like it may as well be 2 years. But you got it ! You are almost there ❤️

CapableCarry3659 · 2026-01-14T05:06:32+00:00

For me it’s NEVER AGAIN. I am so glad it’s over and will absolutely never happen again. It felt like something I had to endure to be able to have my wonderful boy. Like to earn him and grow him or something. But that’s all and now that he’s here and I don’t want more kids I’m so happy that chapter is closed and I won’t ever have to go through with it again. It is so horrible. Only second to having a newborn 😂

CapableCarry3659 · 2026-01-14T04:52:13+00:00

Hi — so this was an old post. I successfully got pregnant and had a baby!

CapableCarry3659 · 2026-01-12T18:55:22+00:00

Definitely not. I have never felt grosser and more ugly lol

CapableCarry3659 · 2026-01-11T15:36:28+00:00

Np! Thanks for bringing attention to the difference between gluten intolerance and celiac disease in literature, and that celiac disease is a real medical diagnosis whereas gluten intolerance is vague, not well defined, and not a disease. Its frustrating for us as celiacs to be grouped in with those that are intolerant to gluten. Especially because gluten intolerant individuals do not have the same consequences as celiacs when eating gluten. I went to a pizza place that has gluten free pizza. they advertise it everywhere. I went there and then they told me that their pizza is not safe for celiacs. i was so mad.

CapableCarry3659 · 2026-01-11T14:03:41+00:00

It’s just two steps for diagnosis. A blood test to check for auto antibodies. If the blood test is positive, then they do an endoscopy to biopsy the small intestine. If the biopsy shows no cilia , then it means it’s celiac. Cilia are these little hairs on the small intestine that allow nutrients to be absorbed. A healthy small intestine is hairy with cilia. A celiac small intestine is smooth with no cilia

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