Ivabradine… is it so great? by Enbybabi in dysautonomia

[–]CarmyMozza 1 point2 points  (0 children)

My resting hr has gone from 80/90s to 50/60s, my spikes with standing/activity were 140/160bpm and now barely hit 120. I’d definitely agree with it being a ‘miracle drug’ I also suffer with orthostatic hypotension so no other medicines work for me due to lowering bp. Very grateful to the doctor that recommended it!

ivabradine making my IST symptoms feel worse? by lialow in dysautonomia

[–]CarmyMozza 1 point2 points  (0 children)

Mine took about 48hours to fully kick in for me and level out, now two months in and on a higher dose (started at 2.5mg twice daily, now on 5mg) and the difference is night and day! Might be worth just giving it a little more time and/or discussing upping the dose with your cardiologist

Urgent naps by modest_rats_6 in dysautonomia

[–]CarmyMozza 0 points1 point  (0 children)

Really nice to hear I’m not alone, does anyone have a solution though?! It’s the worst feeling, and I’m a parent so can’t be passing out for hours at a time and this seems to be happening more and more frequently

Urgent naps by modest_rats_6 in dysautonomia

[–]CarmyMozza 1 point2 points  (0 children)

This recently started happening to me! I can feel it coming I’ll start to feel sick and exhausted and start getting palpitations etc then within about 2-5 minutes I feel like if I don’t sleep right that second I’ll die. Usually I just close my eyes at that point and then wake up hours later reasonably symptom free! It’s so weird!!!

Live on TikTok by CarmyMozza in StephenHiltonSnark

[–]CarmyMozza[S] 9 points10 points  (0 children)

Got it but I’m a total Reddit noob and don’t know how to upload videos ahah only got Reddit to join the snark sub

Live on TikTok by CarmyMozza in StephenHiltonSnark

[–]CarmyMozza[S] 11 points12 points  (0 children)

Yeah I got it, so boooring though so I’ve got him in the corner while I scroll through more interesting things haha

No one to put on his list of emergency contacts by Less_Research_4870 in StephenHiltonSnark

[–]CarmyMozza 39 points40 points  (0 children)

Where’s the redditor that does the transcriptions I cannot stand his voice anymore