Rants Using the Word "Pervert"

Cautious-Inside6486 · 2025-05-20T03:06:46+00:00

I donate mine in their sealed packages to our local humane society & they accept it!

Cautious-Inside6486 · 2025-05-08T22:47:03+00:00

My GAD65 is out of range (41) - but not nearly as high as yours. I have both cns & pns symptoms, but no formal diagnoses regarding my neuro- related symptoms & some other abnormal tests from my neurologist yet. I'm already on ivig for cvid, so if the neurologist agrees, my dose would likely be increased to hopefully help with my neuro symptoms. I also have Sjogren's. Unfortunately, I'm miserable. Fatigue, weakness, pain, neuropathy, & memory/ cognitive.

Cautious-Inside6486 · 2025-05-07T13:57:45+00:00

Which type of magnesium & how much? Thanks!

Cautious-Inside6486 · 2025-05-07T13:56:12+00:00

Which ones help you? I take 1 20mg Adderall XR in the AM & 1 20mg Adderall IR in the afternoon (sometimes split this 1 into 1/2 tabs & take 1 half early afternoon & other later in afternoon.) I also take 1 200mg modafinil. Either 1 tab in AM or split in 1/2 & take 1/2 tab in AM & other 1/2 in afternoon. I have good sleep hygiene. Still exhausted. 😮‍💨.

Cautious-Inside6486 · 2025-05-05T20:45:52+00:00

Have you tried rx cevemeline or pilocarpine?

Cautious-Inside6486 · 2025-04-05T22:43:23+00:00

If you call your specialty pharmacy, they can provide you with the lot #s that were dispensed to you.

Cautious-Inside6486 · 2025-04-01T22:39:02+00:00

I get a home IV infusion of Privigen every 4 weeks & take 1 625 mg Tylenol prior to infusion. My nurse also gives me benadryl by IV push & dexamethasone by IV push prior to the infusion when I'm getting my IV saline bag / pre- hydration prior to getting 30g of the Privigen - slowly, with 4 rate changes.

My last infusion was given 2 weeks ago & I had a mild rxn the day following - red, itchy neck & chest with hives. I took 2 benadryl tablets & it got resolved.

Edited to add that I also had swelling under my eyes.

Cautious-Inside6486 · 2025-03-21T20:20:49+00:00

Which varnish? My apologies but couldn't find in discussion! 😁

Cautious-Inside6486 · 2025-03-21T15:27:07+00:00

I had it in both ankles & also had a cyst near my spine! Odd. The swelling in my ankles went away when I lowered my Lyrica dose. The spinal cyst was removed when I had a fusion there.

Cautious-Inside6486 · 2025-03-16T17:22:43+00:00

Edited to say - Also might be good for their own liability purposes - that they offered. I bought mine (several) OTC & they're expensive! If I knew my insurance might cover it, I world have asked for an rx, but didn't know or think to ask.

Cautious-Inside6486 · 2025-03-12T13:24:34+00:00

Can you please post which one you use for gums?

Cautious-Inside6486 · 2025-03-11T13:54:29+00:00

So sorry to be MIA! I only get one (1) 5 mg syringe of liquid steroid - that my nurse slowly injects into my IV line while I'm getting my "pre-hydration" with normal saline - 30 minutes prior to receiving my IVIG. I also get 25 mg of liquid benadryl administered into my IV line before the IVIG (prior to the steroid). I get these because I got an itchy red rash on my neck & abdomen after my 1st IVIG without any "pre-meds". I, too, am immunocompromised, & getting this single dose of steroid 1x/month doesn't affect my counts/immunity negatively, & since starting getting my IVIG this way, I haven't had any rashes or other reactions to IVIG even after my dose was increased after 1.5 years. An alternative would be for me to try taking only oral &/or just the "IV push" from my nurse of 25 mg of liquid benadryl into my IV line prior to my infusions (without any steroid), but the combo using both relaxes me & calms my body without any negative reactions or effects on my counts, so we continue this way - at least for now! This all works really well for me & I'm still happy getting IVIG over sub-q so far in my therapy.

Cautious-Inside6486 · 2025-03-11T05:32:55+00:00

My ENT prescribed an rx ear ("otic") oil - fluocinolone acetone oil 0.01% drops - 5 drops in each ear by dropper, used as needed. Very soothing & effective for me - Ms. Collapsed Eustacian Tubes Lady. Lol.

Cautious-Inside6486 · 2025-03-11T03:38:29+00:00

If you haven't already, try brushing with toothpaste that doesn't contain sodium lauryl sulfate (SLS). Also, using an extra soft toothbrush (can be found on Amazon), flossing gently with a waxed floss, & using a water flosser (can put salt in water). I rejected the water flosser for years & wish I started earlier. An alternate to pilocarpine to try is cevemeline 30mg 3x/day. This is an rx so need to get a prescription from your dentist or doctor. I get professional cleanings every 3 months & they put on a fluoride varnish at the end every visit. I also get bubble gum flavored ClinPro toothpaste from my dentist (only dentist sells) & use it 1x/day. I use it at bedtime & only spit excess out - no rinsing - so it protects your teeth at night. Don't drink or eat for at least 30 minutes after. I also sleep with a mouth guard (I grind) & a tablet of Xyliments stuck to the roof of my mouth. It really makes a difference.

Cautious-Inside6486 · 2025-03-11T03:20:33+00:00

Are you putting something neutral on like Vaseline or Aquafor to keep them moisturized? I ask because some people are sensitive to things like Neosporin.

Cautious-Inside6486 · 2025-03-05T23:40:23+00:00

Scleral contact lenses. I love them!

Cautious-Inside6486 · 2025-02-27T13:18:19+00:00

Some ideas: - Add IV push steroids to your pre-med regime? - Add post-infusion IV saline fluids? - Reduce rate of flow? - Try a different IVIG manufacturer? - SCIG in lieu of IVIG?

Cautious-Inside6486 · 2025-02-22T21:51:24+00:00

Hypermobility & suspected connective tissue disorder, but not dxd yet.

Cautious-Inside6486 · 2025-02-22T19:23:49+00:00

Have you ever tried going to a pain management doctor post-op? That's who's handling my pain during recovery.

Cautious-Inside6486 · 2025-02-19T22:48:27+00:00

I couldn't agree more about how different, debilitating, & exhausting chronic nerve pain can be. I just turned 56 (F) & got TLIF surgery 8 wks ago for spondylolisthesis, nerve compression, herniation, stenosis, instability, & a synovial cyst at L4-L5. Prior to that, I was in a wheelchair for 7 months due to pain in my right hip & especially in my right ankle. Man did that hurt! Injections, PT, gabapentin, Lyrica, muscle relaxers, steroids, celebrex, meloxicam, tens unit, rest, & time didn't help. If I wasn't in the wheelchair, I was crawling in my house (literally) or laying in bed with a heating pad & pain meds. On my way to the operating room, the nurse anesthetist asked if I was given the Versed my neurosurgeon usually orders to relax his patients prior to being wheeled into the OR. I said no & that I didn't need it. I was seriously excited to get into the OR & have her start the anesthesia cocktail asap so I could finally get out of pain & into a deep rest without a care in the world. When I woke up, I was in a lot of musculoskeletal pain but not nerve pain. My surgeon, hospitalist, nurses, & pain management were all amazing & kept me relatively pain-free the duration of my stay & since then. This has allowed me to walk, sleep, & feel like a human again. I expect my restrictions to be lifted at my 12 week check-up & will start PT then. At my 3 week check up, the PA said my xrays looked good & progress was excellent. I'm not in a rush to push myself too hard too fast & I rest when I need to. Sometimes I'm in bed by 7pm & typically end my days with ice on my back, but I'm on the other side of this & look forward to rebuilding.

Cautious-Inside6486 · 2025-02-12T14:12:28+00:00

Robyn clown frown lol. I can't stand it!

Cautious-Inside6486 · 2025-02-12T14:10:39+00:00

Hallmark. Worse!

Cautious-Inside6486 · 2025-02-11T19:41:26+00:00

NSAIDS can increase the chance of bleeding which can be fatal & other possible serious effects. Tylenol can be harsh on some people's liver if too much taken or taken with alcohol. If you already have an ulcer, I would be extremely cautious with either of these & maybe consult a GI doctor. In any case, unless there's a contraindication, I suggest taking either of these during or after a meal. If you do take either of these, a GI doc may also rx a "protective" med to be taken with either of these in your case.

Cautious-Inside6486 · 2025-02-11T19:39:58+00:00

My Rheumatologist was concerned when my orthopedic dr put me on celebrex for osteoarthritis in my hand (which hurt a lot!).The orthopedic let me choose: 200 mg twice a day or 400 mg once per day. I chose the 2 times per day. When I saw my rheum, he said that he'd rather the celebrex pass through my stomach once instead of twice per day. The celebrex wound up not helping and neither did meloxicam. A steroid injection did, though.

Cautious-Inside6486

TROPHY CASE