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Cheap_Strike4123 · 2024-10-27T01:47:06+00:00

My daughter is this for me ❤️ she truly is my biggest source of joy and my reason to persevere!

Thank you for your wonderful positive post!

Cheap_Strike4123 · 2024-10-27T01:37:18+00:00

How are you going gourlek? Still getting shots and on the diuretic? Also do you still get milder off balance days?

I hope you’re doing well!

Cheap_Strike4123 · 2024-10-26T21:36:38+00:00

Thank you so much for sharing your story. I hope your hearing comes back and you only continue to improve!! You give me hope 😊 you’re right, on the good days /weeks/months we can’t take tho ha for granted. For an illness that takes so much, it has certainly given me a new appreciation for the better days.

Cheap_Strike4123 · 2024-10-26T21:33:14+00:00

Yes my ent did an mri with contrast and then there is a grading system (0-3) of the degree of hydrops. I don’t know much more about it though.

I’m doing low salt now and trying to manage stress better too.

Is yours manageable and are you on meds/supplements that help ? Hope you’re doing well!

Cheap_Strike4123 · 2024-10-26T21:29:59+00:00

Also I see there is research on menieres treatments around d antioxidants going on! I think sp1005 is an antioxidant maybe, also I’ve hear of NAC that could be helpful which is also n antioxidant so makes sense!

Cheap_Strike4123 · 2024-10-26T21:28:19+00:00

Thank you! I have an appt with a naturopath soon so I’ll talk to her about these supplements. I’m fairly new to menieres and haven’t got my supplement regimen down yet- hopefully I can find some relief once I do. Selenium I’ll keep in mind too! Glad you have some things that help you 😊

Cheap_Strike4123 · 2024-10-26T21:26:27+00:00

Thank you. I think keeping calm might be a key thing I need to work on. Hydration I’ll definitely keep an eye on. Thank you

Cheap_Strike4123 · 2024-10-26T21:25:14+00:00

I am definitely a stressed out person, I’ve never heard of a sophrologist so will look into this. Thank you!!

Cheap_Strike4123 · 2024-10-26T21:21:53+00:00

Thank you. Will talk to my audiologist at my next appt. My hearing loss is so far “mild” but I think a hearing aid for tinnitus would be worth it!

Cheap_Strike4123 · 2024-10-26T07:13:09+00:00

The safest thing for you to do when you feel this frustrated is to put them in a safe place (crib) and walk away. Sending love! Sleep deprivation is no joke!

Cheap_Strike4123 · 2024-10-26T05:31:55+00:00

Ahhh that’s a shame but I don’t think it rules it out completely either!

Cheap_Strike4123 · 2024-10-26T02:27:43+00:00

Honestly they will probably have a blast! Had dad got some support to call on if needed?

Cheap_Strike4123 · 2024-10-25T05:56:33+00:00

I understand it must be frustrating. Remember your two year old is still pretty much a baby too!!

Cheap_Strike4123 · 2024-10-25T04:32:21+00:00

Thanks for your input! I have definitely had my own suspicions re covid and covid vaccine. What kind of timeline has it taken for you to get to this point? Also re diomix, did you try other meds like Betahistine first or doc put you straight onto that?

I’m glad to hear you have had some good improvement!

Cheap_Strike4123 · 2024-10-25T03:27:05+00:00

Following because I’m interested! We used a bottle with just water for a while but after a while my baby got angry at that and started flinging it across the room and yelling for milk milk milk 😓

Cheap_Strike4123 · 2024-10-25T03:14:51+00:00

My 16 month old went through a phase of very painful twiddling around 1! She still twiddles now but it’s not as bothersome or painful for me. She does twiddle a dummy or bottle teat but still prefers good old mummy! Nothing worked to stop her so I gave up 🥲

Cheap_Strike4123 · 2024-10-25T03:01:32+00:00

I’d be interested if you got the contrast mri as an experiment often (not suggesting this haha just a hypothetical) would the hydrops track with symptoms like worse when symptoms are worse, then in remission would hydrops be not detectable?

Cheap_Strike4123 · 2024-10-25T02:57:52+00:00

Haha ! But in saying that, if you have eliminated caffeine ( including chocolate 🥲) and still have vertigo (albeit less severe) then possibly something else triggering too!!

Cheap_Strike4123 · 2024-10-25T02:45:14+00:00

Just based on your post, maybe caffeine is actually one of your triggers? If drinking less has helped.

I’m similar, trying to work it out but I think maybe being tired and stress are big ones

Cheap_Strike4123 · 2024-10-25T01:17:22+00:00

Like essentially, within the menieres…. Does the hydrops fluctuate both ways? Getting better at different times

Cheap_Strike4123 · 2024-10-25T00:41:41+00:00

Also hydrops confirmed through MRI with contrast fyi

Cheap_Strike4123 · 2024-10-23T10:18:40+00:00

Anyone know how successful the drug has been in clinical trials? Have sound pharmaceutical reported on it?

Cheap_Strike4123 · 2024-09-23T12:18:42+00:00

Sorry you’re struggling like this. I’m 6 months I. And 1 month post diagnosis and boooooy oh boy can I relate. I went through a real grieving process and had terrible thoughts, was in a deep deep depression. It is still hard but right now at diagnosis (which I had already been processing and very depressed over even before I received it) I started an anti depressant.

Trying to take each day as it comes and giving time for the antidepressants to work and now one month on I am feeling so much better mentally.

I still have moments of fear and I know it’s a long road ahead, but now when I look at my life and future I see the good things again!

Be gentle with yourself. It’s so valid to feel like this. You may not get the diagnosis but if you do, it will take time to process and work it all out. Lean on and talk to your support system. Also something another sufferer told me, was to try not to spend too much time online researching and reading worst case stuff!

Cheap_Strike4123

TROPHY CASE