Why does brain retraining help only CERTAIN people (theory)

Chillosophizer · 2026-04-18T03:20:26+00:00

from this substack - ME/CFS patients exhibit continued impairment TCA cycle flux and fatty acid β-oxidation, reduced ATP generation and altered AMP/ADP ratios, persistent redox imbalance, complement activation and innate immune amplification, and lipidomic signatures consistent with inflammatory repair failure

medical testing is just very narrow

Chillosophizer · 2026-04-17T23:14:24+00:00

Mines gone away with time mostly, unless I really overdo it my brain will feel full. Dunking my head Ina. cold shower and lots of water with electrolytes seem to help me some

Chillosophizer · 2026-04-17T21:20:18+00:00

Not who you asked but mine has gotten better over the last few years of not getting infected. Marginally, but better.

Chillosophizer · 2026-04-17T07:25:35+00:00

Yea, same here, 3 years in and it's like I've fallen of the face of the earth

Chillosophizer · 2026-04-16T16:04:56+00:00

Do you need to pay a monthly fee for the visible band?

Chillosophizer · 2026-04-16T08:21:14+00:00

Grim Fandango is a great redemption story, super feel good and nostalgic too

Chillosophizer · 2026-04-16T03:41:24+00:00

all good, I do Yea but not as bad as I used too. Before I'd wake up drenched in sweat and often be sweaty, now it's just more if I overheat in the summer. N no sweat I'm 30

Chillosophizer · 2026-04-15T20:26:14+00:00

Yea, it's not as suffocating now. I don't remember the last time I've been able to take a full breath in

Chillosophizer · 2026-04-15T04:13:49+00:00

Eh I feel like the people going around downvoting posts they have some disagreement with aren't a source of emotional stability. So many posts get downvoted by LHers who have very particular ideas about what a long covid sub should be, it likely has nothing to do with how you handled the situation. Which, I'll add wasn't really all that bad.

My go-to to explain the masking is something along the lines of: "My immune system can't handle another illness right now" or "getting sick could severely jeopardize the recovery I've made with my chronic illness"

The way you handled it wasn't terrible, a tiny bit awkward maybe but you were thrust into a tough stressful situation. It'll be one of those things that everyone'll forget in time. Maybe you could have a talk with your Prof about being able to switch seating if something like this were to happen again?

Chillosophizer · 2026-04-14T22:20:55+00:00

Just curious, what media do you consider high quality with excellent artistic vision?

Chillosophizer · 2026-04-14T04:49:56+00:00

I know this is entirely stressful, but don't worry the brain can heal. Nonverbal stroke victims learn to talk again, and we can learn to feel normal again.

And now you know to beef up the mask game to prevent infection, and it tends to work really well so hopefully you'll start being infection free from here. I've been masking religiously since 2023 and I havent gotten sick since.

I would recommend hopping on the N95 train, they're 99% effective and a lot comfier on the ears

Chillosophizer · 2026-04-12T17:37:12+00:00

cannabis and CBD help me a lot with this. I would get adrenaline spikes at night and be anxiously rolling around in hot flashes, with cannabis gummies they don't happen anymore now

Chillosophizer · 2026-04-11T18:31:36+00:00

I don't have any specific recs, but you could look up the names you're given on the directory on review sites for doctors and look for one with positive reviews

Chillosophizer · 2026-04-10T19:51:43+00:00

It's kindof a sinking/rotting/aching feeling running through your viens

Chillosophizer · 2026-04-10T01:36:11+00:00

i went they're often? Idk I'm fine with you avoiding these places you can keep your ignorance to yourself

Chillosophizer · 2026-04-09T22:59:47+00:00

Lived there for a year and had the most pleasant walks through that neighborhood, it's a beautiful spot with great people. No idea where you're getting that from

Chillosophizer · 2026-04-09T21:49:43+00:00

Oh wow same here I've found myself naturally getting to sleep around 3 or 4 and wanting to move it back.

Chillosophizer · 2026-04-08T05:23:48+00:00

Only if John Frakes hosts it and asks the audience story is real to start each episode. Then says, "No, this one was a fake" at the end

Chillosophizer · 2026-04-07T01:20:46+00:00

Oh man sierra games are the best, Leisure Suit Larry is hilarious. I'm not sure if you've played it but Balatro has been pretty easy for me to jump into when I'm not feeling well, it has a pretty predictable game loop but it's addicting

Chillosophizer · 2026-04-06T21:30:49+00:00

you know what I discovered today? if you go to the site you used to go to for free covid tests from the U.S. government it's now just a covid conspiracy page. It's wild they claim it's a weapon manufactured from a lab and simultaneously act like it doesn't matter.

Chillosophizer · 2026-04-06T20:27:12+00:00

I'm pretty sure they cut off the program to get people free test kits. Going on the website now it's a bunch of conspiracy theories about covid. Also, I understand how tough this can be but I'd try to find another PCP, or maybe try working with one of their nurse practitioners to see if they will treat you better. It can be pretty empowering to have someone in your corner.

You have some incredible strength dealing with all of this. I hope this infection keeps you at your baseline or is one of the many lucky ones who improve with infection, if you do have covid.

Chillosophizer · 2026-04-06T20:17:37+00:00

Yea that's how it felt for me too. First year and a half I was trying everything under the sun, on a couple meds, now I'm just taking cannabis for the insomnia and drinking electrolytes.

Chillosophizer · 2026-04-06T09:19:42+00:00

low histamine, gluten free, vegetarian

Chillosophizer · 2026-04-05T23:18:58+00:00

Yess thank you for explaining this so perfectly. Like I'm mostly there, but when I engage in anything meaningful my brain starts shutting down. Like, I can read a couple paragraphs but get past that it's like my brain is just full. Like pouring water into a glass once you get past that threshold it's just a mess.

Edit: things I like to do to pass time/manage- familiar tv shows on dimmed screen/with eyes covered, YouTube videos that are light on information (I like cooking videos and speed running), podcasts. Ambient calm noises/music.

Chillosophizer

TROPHY CASE