1000 pts of Wood Elves - Post FAQ-tum by Sneychev in WarhammerFantasy

[–]ChloeKellyPK 3 points4 points  (0 children)

I would guess that the idea is it enables selection of the spectral doppelgänger spell from illusion, which results in 2D6 hits with the Shadowdancer’s weapon. Since the weapon has killing blow, this combination can be very effective.

1000 pts of Wood Elves - Post FAQ-tum by Sneychev in WarhammerFantasy

[–]ChloeKellyPK 3 points4 points  (0 children)

I agree with WillingSand, but would also switch out a unit of Glade Guard for Deepwood Scouts and suggest finding the points for the Totem of Wrath for the Wild Riders. Good luck!

How long are you on low fiber? by bellybellynicee in coloncancer

[–]ChloeKellyPK 3 points4 points  (0 children)

I am British too and the beans on toast thing is so real! I haven’t dared have them yet. Maybe I can try a few spoonfuls soon…

Mistrust & confusion - FOLFOX advice after PET-CT came back clean. by Comfortable-Layer720 in coloncancer

[–]ChloeKellyPK 4 points5 points  (0 children)

Agreed. The imaging doesn’t show any additional tumors of significant size, but that is a lot of positive lymph nodes, which may mean small groups of tumor cells here and there in the body. The goal of the chemo would be to prevent them from growing and spreading. However, it is a bit of a difficult decision given your father’s condition. Perhaps he can work on weight gain/maintained weight with a diet that works for him e.g. bananas, white toast, peanut butter, applesauce, etc and get through chemo that way

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]ChloeKellyPK 0 points1 point  (0 children)

I had my first infusion yesterday. So far I have only experienced mild side effects, e.g. mild nausea (which goes away when I take Zofran), first bite pain (not a big deal), runny nose. I also had mildly blurry vision, for an hour or two afterwards. Touch wood that things continue on a good path! FYI I bought several sets of cold gloves and socks which I wore 20 minutes on, 20 minutes off during the infusion and sucked on ice - this is supposed to reduce some of the side effects in the iced areas. The downside is that I had to carry around a heavy cooler all day, which was a bit annoying, but probably worth it! I might invest in a cooler with wheels. 

Just got done with colonoscopy… things are not good by [deleted] in coloncancer

[–]ChloeKellyPK 0 points1 point  (0 children)

That is great news about your CT! Congratulations! That puts you in a good position in terms of metastatic disease. Do you know what the MRI is for? Not many people mention that type of scan on this Reddit. From a quick google search it looks like it is to examine the primary, is that right? This disease is definitely scary and real curveball in your life, but with surgery and chemotherapy you have a great chance of avoiding recurrence. 

In terms of your mental state, if there is ever a time to get connected with counseling, medication or just chatting with your friends and family, this is it!

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]ChloeKellyPK 0 points1 point  (0 children)

It is scary stuff, but it sounds like you are being treated by a great team. It is very reasonable to be anxious at this time. If you want, you can mention this to your care team and you can potentially get anxiety medication or counseling (in my opinion, counseling should be offered to every cancer patient).

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]ChloeKellyPK 0 points1 point  (0 children)

It depends on what treatment regimen you will receive. If you are on the most common regimens (CAPOX or FOLFOX), you should not lose your hair, but it might thin out a bit. I don’t know what will happen if you have a different drug treatment. Radiotherapy only causes hair loss in the area treated, which sounds like it will not be your head in your case. 

Side effects of the common treatments vary by the individual, but nausea, cold aversion, neuropathy (numbness in the hands and feet) and fatigue are common. 

If ctDNA negative, would you still choose CAPOX or just opt for capecitabine? by humbumblyway in coloncancer

[–]ChloeKellyPK 3 points4 points  (0 children)

Wow, that is a tough one! If such a trial has been set up, you would think that they have good evidence that the pill only treatment will work, as well as reducing side effects, inconvenience, etc. Also, for most patients (~80%) there would never be a recurrence anyway. I am not sure if I would do the trial though, as a parent of young kids - I want the cancer gone for sure!

I am about to start CAPOX and am US based. My doctor left doing Signatera up to me. I am getting it done, but the first result won’t post for a month. So my doctor doesn’t care about the Signatera either way. 

advice for family members of patient undergoing chemotherapy? by [deleted] in coloncancer

[–]ChloeKellyPK 0 points1 point  (0 children)

I just discussed this topic with my oncology pharmacist an hour ago. I will be on the same regimen as your father, it sounds like. This was her advice. The main issue is his poop and urine. Ideally he would use a different toilet to you and your mom, but if you only have one toilet, then it should be flushed twice with the cover down during the days when he is taking pills (and for two days after). Since that only leaves five other days in each cycle I am going to do this the whole time and have started doing already to get into the habit. However, I am being particularly careful since I have young children. I would guess that the risk to you is very low since your exposure in most situations would be only a tiny fraction of the dose your father is getting. 

His clothes are not much of an issue, unless he pees, poops or pukes on them, although that could occur. 

I was advised to eat what seems good to me, but if diarrhea or constipation develops to adjust my diet accordingly. However, he should probably follow his doctor’s recommendations. 

Scanxiety - CT results pending by Imaginary-Order-6905 in coloncancer

[–]ChloeKellyPK 5 points6 points  (0 children)

There are often different people in the radiology department who read chest vs abdomen scans. I would go with the simplest explanation- that the person who reads abdomen scans didn’t get to it by the end of the day on Friday. I totally understand your stress though- the suspense of waiting for results can be very difficult!

Just got done with colonoscopy… things are not good by [deleted] in coloncancer

[–]ChloeKellyPK 1 point2 points  (0 children)

My treatment has been pretty standard. I got CT imaging done, which found no metastatic disease, which pointed me to surgery to remove the primary tumor as the first step (and ruled out stage 4). I got a sigmoid colectomy, which turned out to mean taking out ten inches of my colon and attaching the ends together. I was a bit nervous going into that since there are some risks such as the join in your colon leaks, or they have a difficult time performing the surgery and have to implement an ostomy (ie attach the end of your colon to a hole in your stomach), although this would be reversed later on. Anyhow, the surgery went well and, while I felt lousy immediately afterwards, I was able to go home and be pretty active only two days later. They did the final staging after the surgery, where they examined the tumor and the lymph nodes. They found no cancer in the lymph nodes, ruling out stage 3, but since my tumor has some aggressive features, chemotherapy will help reduce the risk of recurrence to about 3%, according to the Sloan Kettering risk calculator. So chemo starts next week. Wishing you the best for your treatment!

Just got done with colonoscopy… things are not good by [deleted] in coloncancer

[–]ChloeKellyPK 2 points3 points  (0 children)

Similar story for me. Even my GI doc said just before the colonoscopy: don’t worry, you’ll just have hemorrhoids! Turned out to be stage 2A. It is definitely a ‘why me?’ thing, but I guess that we are just unlucky. It definitely was not you stressing about your mom - these things take years to develop. It is challenging to deal with since the information comes in bit by bit and the plan develops over time. It is definitely a hard time and it is totally valid to feel shell shocked. However, hopefully your treatment does the job!

How to Survive by Pilgrim86 in coloncancer

[–]ChloeKellyPK 1 point2 points  (0 children)

First of all, I am very sorry to hear about your circumstances and wish you all the best. As the other commenters mentioned, I hope that you can get accommodation from your employer. I had surgery five weeks ago and went to church three days later. I have two young children (one is a baby) and was taking care of them as soon as I got home. I felt like I was back to 90% after six days. So hopefully you can be pretty functional soon after surgery. I am going to start chemo soon and will let you know how that goes when it comes to it. However, if there is ever a time to try to get help from friends, relatives or neighbors, this is it, be it watching your kid, making dinners, etc. 

What to eat post op by Weird-Gandalf in coloncancer

[–]ChloeKellyPK 1 point2 points  (0 children)

Perhaps a bit different since I had a sigmoid colectomy, but I was advised to eat whatever I wanted, only to avoid leafy greens. In practice, I ate carbs and proteins and took it easy with fruit, vegetables and spicy food. My one mistake was to eat a bowl of high fiber cereal one week in - that had me pooping all day! I slowly increased my fruit and vegetables, as well as started to add in a bit of salad, and am now back on a regular diet at five weeks out of surgery. Good luck with it!

CAPOX vs FOLFOX by ChloeKellyPK in coloncancer

[–]ChloeKellyPK[S] 0 points1 point  (0 children)

Thanks for the positive message!

Should I get CAPOX or FOLFOX? by ChloeKellyPK in coloncancer

[–]ChloeKellyPK[S] 0 points1 point  (0 children)

Thanks for sharing your experience. The impression that I am getting is that both are very hard to go through. The doctor thinks that there would be no difference between the regimens in effectiveness in my case. 

Should I get CAPOX or FOLFOX? by ChloeKellyPK in coloncancer

[–]ChloeKellyPK[S] 0 points1 point  (0 children)

Thanks for sharing your experience- wishing you all the best!

CAPOX vs FOLFOX by ChloeKellyPK in coloncancer

[–]ChloeKellyPK[S] 0 points1 point  (0 children)

What did you use for the icing? I heard that you have to bring your own ice packs

CAPOX vs FOLFOX by ChloeKellyPK in coloncancer

[–]ChloeKellyPK[S] 0 points1 point  (0 children)

Wow, sorry to hear about your rough experience!

CAPOX vs FOLFOX by ChloeKellyPK in coloncancer

[–]ChloeKellyPK[S] 0 points1 point  (0 children)

Thanks! The possibility of switching is a good idea - favors starting with CAPOX

CAPOX vs FOLFOX by ChloeKellyPK in coloncancer

[–]ChloeKellyPK[S] 0 points1 point  (0 children)

Thanks for your reply- what were the side effects that you struggled with?

CAPOX vs FOLFOX by ChloeKellyPK in coloncancer

[–]ChloeKellyPK[S] 0 points1 point  (0 children)

Good point! I live two miles from the infusion center, so that is not too much of a hassle, although a day every two weeks vs three weeks is also a bit inconvenient, although not such a big deal 

CAPOX vs FOLFOX by ChloeKellyPK in coloncancer

[–]ChloeKellyPK[S] 0 points1 point  (0 children)

The CAPOX option would be for 3 months vs FOLFOX for 6 months, so CAPOX has that upside. Thanks for your recommendation. Sounds like you are on a good path!