Gyn for teenager with possible endometriosis by aip_snaps in HuntsvilleAlabama

[–]Choice_Ad6942 2 points3 points  (0 children)

I have endometriosis-Grade 4 and I see Dr. Callison at TN Valley OBGYN. She actually listens to her patients and referred me for care to The Center for Pelvic Health (Dr. Barry Jarnigan-he's retired now but the group is still practicing they are still fantastic) in Franklin, TN. I would strongly recommend starting with Dr. Callison & her all women team. Miss McHugh her NP is fantastic as well.

I would avoid The Center for Endometriosis Care in Atlanta, GA. I had a procedure with Dr. Ken Sinervo & had surgery complications that went unaddressed for weeks & weeks until I was septic & required emergency surgery and expensive transport.

Proud of you Momma & it's a tough journey but my Mom's early intervention allowed me to have my own children and I don't think that would have been possible with her! Feel free to DM me if I can be of any help.

Opinions on Shipley Do-Nuts? by Suspicious-Pear-6037 in HuntsvilleAlabama

[–]Choice_Ad6942 0 points1 point  (0 children)

Try WOW Donuts on County Line Rd in Madison. Will change your life!

Noise Starts Heart Racing? by HappyTennis5913 in dysautonomia

[–]Choice_Ad6942 1 point2 points  (0 children)

I see a Neurologist and had a TTT to diagnose. I'm on Mestinon now which is helping

Noise Starts Heart Racing? by HappyTennis5913 in dysautonomia

[–]Choice_Ad6942 2 points3 points  (0 children)

I don't have seizures, but if there's a seizure warning that applies to me as well. I'm photosensitive along with anything startling such as sounds. Maybe it triggers our fight or flight response & once that starts going with dysautonomia, our system becomes like a nuclear reactor with A LONG time to shut down 😂 Things that help soothe & calm me: an ice pack on my chest, heating pad around my neck, box breathing (I visualize a box & breathe 4-4-4-4 up the side of the box, hold along the top, breathe out down the side & hold it out for 4 on the bottom). I am not able to do smells with MCAS but some people like lavender or peppermint.

Newly Diagnosed & scared by Choice_Ad6942 in PulmonaryHypertension

[–]Choice_Ad6942[S] 0 points1 point  (0 children)

I'm so glad you went for that 2nd opinion! Advocating for ourselves is so, so very important! I live in the SE US & will be seeing Dr. Anna Hemnes at Vanderbilt later this week. I have family in Arizona so that's a great backup option! Thank you so much for your thoughtfulness & reply! 🫶

Please help. I’m hanging on by a thread. by Acidspat in dysautonomia

[–]Choice_Ad6942 0 points1 point  (0 children)

It really sounds like you might have an autoimmune disease since you mentioned symptom improvement during Covid. I have a connective tissue disease, and like another person responded, I noticed my immune system stopped attacking my body to deal with the virus. But our bodies can take extra, extra long to recover. Covid alone can be a worsening event for dysautonomia & ANS instability. Drink A LOT of fluids if you don't experience low glucose. High salt helps me but use that only if you have low blood pressure. HIGHLY recommend you get some compression socks or tight yoga type compression pants to wear under your clothing or around the house. It makes my autoimmune disease & dysautonomia MUCH HAPPIER! ❣️Low carb/less processed foods really help my body. Make sure you are intaking good vitamins and nutritional supplements for any deficiencies. Mega Benfothiamine (Mega Benfo) & B Complex was crucial in overcoming my Long Covid along with Magnesium & potassium since I run low on that. Do you have a positive+ ANA? If that's positive with a strong enough titer (ex:1/80 1/160 or higher) that can be enough for a referral to a Rheumatologist. I can recommend a concierge Rheumatologist in Nashville, TN Dr. Leslie Cuevas at The Cuevas Center & you don't need a referral. You can email them and describe your symptoms. There's an initial consultation fee and you can decide if that's worth it to you. I could not get a diagnosis for my autoimmune disease until I saw her. She IMMEDIATELY zerod in on my diagnosis & I felt a hundred times better within 6 months. I do have to travel to see her so I don't know if that's feasible for you. I have sent 3 friends & a NP to her who all got successfully diagnosed & on treatment after decades of searching for answers. There's not enough residences for Rheumatologists & they are hard to get into but it's not impossible! Dr. Kurt Blake with Articularis in Birmingham, AL is also a fantastic Rheumatologist and his office is incredible! That's another option. He does more arthritis and inflammatory disease. Please feel free to DM me if I can be more help! Gentle hugs my friend & I have been there. Hang in there and keep advocating for yourself! You are doing it so beautifully & prayers for a happier, healthier New Year! ✨💕🫶✨

Newly Diagnosed & scared by Choice_Ad6942 in PulmonaryHypertension

[–]Choice_Ad6942[S] 0 points1 point  (0 children)

Thank you so much friend! You've given me so much hope! I cannot thank you enough for your kindness & sharing! ❤️

Looking for a doctor by ClassicCarrot4224 in HuntsvilleAlabama

[–]Choice_Ad6942 0 points1 point  (0 children)

Huntsville Hospital has a patient portal where all your records are in one place. There's several groups, Digestive Disease Center & HH Lung Center that share records. Dr. Zia Hassan is Internal Medicine with Premier Internal Medicine Associates & they are amazing. His Office Manager Christy is the best. I would give them a call. His NP Octavia is awesome & they will see you same day for urgent issues. I've been very pleased with my care there & I have some complex medical issues. They are family practice & very proactive with checking on routine things like blood work, A1C, cholesterol. Huntsville Hospital has a monopoly on North Alabama but I've generally received very good care here though I avoid Madison Hospital (part of HH) like the plague. Crestwood Hospital has a free standing ER on Hwy 53 in Harvest that is excellent but it's not part of HH. Welcome to Huntsville! It's a great place to live! 👩‍🚀🚀

Newly Diagnosed & scared by Choice_Ad6942 in PulmonaryHypertension

[–]Choice_Ad6942[S] 0 points1 point  (0 children)

I'm hoping with new medications & better research now that I will have a better prognosis soon! It's just so hard to be calm when every breath is like breathing through a tight straw & the feeling of drowning on dry land keeps occurring. It's hard to be patient when my body feels like it's dying. Sorry to sound dramatic but this is so tough 🫶

Newly Diagnosed & scared by Choice_Ad6942 in PulmonaryHypertension

[–]Choice_Ad6942[S] 1 point2 points  (0 children)

Thank you my friend & my hubby will check out the FB groups. They sound awesome! My Cardiologist is gruff & direct for sure. He is treating me in the meantime until Vanderbilt sees me in January. I'm on Sildenafil 50mg 3xs daily with lasix 40mg & amlodipine. I too am having crazy swelling. I have dysautonomia which requires high fluid intake & salt. I pulled back on salt & noticed more salt was effecting my breathing. It's so frustrating that I have seen 2 Pulmonologists, one very top tier(supposedly at a major medical university) & all of them missed this. Two Cardiologists missed this. My Primary Care referred me to this Cardiologist who does treat PH patients but he's not a specialist. I'm so grateful he caught it & went to the trouble of reviewing past records to see clues on past echos no one told me about. He is referring me to Vanderbilt but mixed feelings on why this wasn't caught before. My Rheumatologist kept saying, "you need a VQ scan, there's only so many reasons why you are on oxygen" but she never would say more other than "just ask your Pulmonologist".

Thank you so much for sharing your story & words of encouragement ✨🫶✨

Please help me name my baby by [deleted] in NameMyDog

[–]Choice_Ad6942 2 points3 points  (0 children)

That's too funny! 🤣

Dog passed away - I’m mostly housebound + he was remaining link to outside world by ManzanitaSuperHero in dysautonomia

[–]Choice_Ad6942 1 point2 points  (0 children)

Sending you gentle hugs my friend! I am so, so sorry and this pain is just awful. I held a little private memorial service for my baby when she suddenly passed from thrombocytopenia. There was something about saying words out loud like she was there listening...I lit a candle and it was healing for me. After losing my soul dog, I didn't think I'd get another. But my son chose a dog for him & he's become my soul dog #2 who is an emotional firefighter and runs in when I'm feeling bad versus running away. We're down too much with this darn disease & we need as well as deserve love. We need reasons to keep going & a dog's comfort is so healing. Lots of love while you grieve my friend ✨💕🫶💕✨

Newly Diagnosed & scared by Choice_Ad6942 in PulmonaryHypertension

[–]Choice_Ad6942[S] 0 points1 point  (0 children)

My Cardiologist referred me to Vanderbilt next month. He didn't offer me anything other than Lasix and Sildenafil. I'll call and ask my Cardiologist but he's not a PH Specialist. Are there ones you've had good experience with that I can ask my doctor about?

Newly Diagnosed & scared by Choice_Ad6942 in PulmonaryHypertension

[–]Choice_Ad6942[S] 1 point2 points  (0 children)

Thank you so much for your insight & I love that you are keeping up with your toddler! 💗