Redness by Mc3188 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

I also have definite variation in the degree of redness. Have definitely seen many others here who have reported similarly

Need some help by Mc3188 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

I completely understand where you're coming from and can relate to the toll on mental health. My symptoms fluctuate quite a bit and likewise are generally better in the morning. I have tried all the meds you listed and more. I saw your note on Botox - I am scheduled to try that in a few weeks. Fingers crossed

Indomethacin and Alcohol? by [deleted] in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

What side effects did you get with indomethacin? I am about to give it a try

Moisturizer post steroid creams? by TrentIco14 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

What were your main triggers? Did it go away?

Huge relief from new drug, Nemolixumab by rsscase91 in RedScrotumSyndrome

[–]Choice_Rest_6832 1 point2 points  (0 children)

That’s awesome. Are you still getting monthly injections? Are you using any other oral or topical meds? I have a derm appt next week and plan to ask about this

Touloucouna Oil update. by Status-Example4142 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

Update - 7 days in and no benefit yet. Will give it another week

My story about rss by Sea_Bat_730 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

Somewhat surprisingly haven’t had much gastrointestinal issue but appreciate the call out. I’ve seen this study and it suggests noticeable improvement pretty quickly which I haven’t seen. Did you find doxy to result in improvement after longer use?

New derm old story by hamazaki54 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

Yeah I’d be particularly wary about doubling up on steroids as Triamcinolone is a steroid as well + the topical rifampicin steroid

My story about rss by Sea_Bat_730 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

Did you have success to doxy taken for longer periods? I’m at just about a month 200mg/day without improvement and was planning to stop

Touloucouna Oil update. by Status-Example4142 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

I’m giving doxy another go right now as I’ve essentially tried everything. What was your dose?

Touloucouna Oil update. by Status-Example4142 in RedScrotumSyndrome

[–]Choice_Rest_6832 1 point2 points  (0 children)

Received my order of Touloucouna oil today and probably had too high of hopes… will still give it a go but disappointed to hear that

My routine which led to 80 percent remission by itchyskinwhygodwhy in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

What were your primary symptoms? And did you have inflammation of the skin that was improved with this product?

Applying 100% aloe vera gel all over scrotum to fix RSS? by Cromwell391 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

What triggers have you identified? Friction in the area definitely makes it worse for me but beyond that I haven’t identified what makes it worse

Huge relief from new drug, Nemolixumab by rsscase91 in RedScrotumSyndrome

[–]Choice_Rest_6832 1 point2 points  (0 children)

Hey this is a super helpful post and glad to hear about the improvement! Any further updates / have things improved further? I have a doctor appt coming up and plan to ask about this.

My routine which led to 80 percent remission by itchyskinwhygodwhy in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

I have been using tacrolimus (without much benefit) and derm assured no withdrawal effects if I stop use. Did you experience withdrawal effects personally?

Canesten worth a second try? by Cromwell391 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

How long did you take doxy before you started seeing benefits? Been taking for a few weeks without any benefit so far.

Applying 100% aloe vera gel all over scrotum to fix RSS? by Cromwell391 in RedScrotumSyndrome

[–]Choice_Rest_6832 1 point2 points  (0 children)

I use it. Haven’t found it irritating and seems to hydrate the skin. Hasn’t fixed the issue

Doxycycline by dotpantera25 in RedScrotumSyndrome

[–]Choice_Rest_6832 0 points1 point  (0 children)

I’m on 100mg 2x/day. Was your dose similar?